February 29 is Rare Disease Day. There are limited treatment options and cures for patients battling their rare disease. Take a moment to learn about a rare disease today!: Abeona Therapeutics, a clinical-stage biopharmaceutical company, is advancing gene-corrected epidermal sheets to treat recessive dystrophic epidermolysis bullosa. This genetic skin disorder makes the skin fragile and susceptible to chronic wounds. The Ataxia Telangiectasia Children's Project works to find therapies and a cure for children with Ataxia-telangiectasia, a genetic disease that impairs muscle control and the immune system. #rarediseaseday2024
This Rare Disease Day, listen to Dr. Karen Wiss talk about the possibilities and changing landscape of treatment for severe dystrophic epidermolysis bullosa (DEB) as we all work together to make a difference. At Abeona, we are dedicated to advancing therapies for severe DEB. Our commitment to innovation is steadfast, and every story of patient courage fuels our pursuit of new advancements. #WeFightEB #EpidermolysisBullosa #RDEB #SevereDEB #RareDiseaseDay
Data-Driven Engagement Expert | Senior Program Director | Social Impact Leader | Transitioning to Data Analyst Role
7moThanks for sharing Kara Evans! It's crucial to raise awareness about rare diseases and the challenges faced by those living with them. Every bit of knowledge and support counts towards better understanding and improved care for these individuals. Let's all take a moment to educate ourselves and show solidarity with those fighting rare diseases. #RareDiseaseDay 💙