The first paper from our longitudinal survey on families' experiences of childhood brain tumour is out! Highlights: • Little is known about QoL early after diagnosis of a paediatric brain tumour • Caregiver QoL did not differ by child's tumour risk grade • Caregiver QoL lower for those whose child had chemotherapy and/or radiation • Caregiver QoL lower for those diagnosed 6 months previously compared to earlier • Lower problematic family functioning associated with higher caregiver QoL https://lnkd.in/eQxw9Jzj
Kate Young’s Post
More Relevant Posts
-
I'm looking to connect with academics, consumers, clinicians, working groups, policy makers, etc who look at cancer and gender for those who identify as women. Particularly interested in those who are addressing the priorities stated in the recent Lancet commission: https://lnkd.in/gqAhu7c4. Please reach out here or by email (kate.young@qut.edu.au) if you would like to connect 🙌🏼 Thank you!
-
-
Recently I had the honour of being selected as the QUT applicant for a Creative Australia funding scheme. With a wonderful team of dance artists, academics, exercise physiologists, and a phenomenal consumer partner, we have put together an innovative interdisciplinary project brimming with heart and ambition. Too often in academia we only celebrate the grants awarded, papers published, etc. This has been such a joyful experience that I want to acknowledge the path travelled thus far—regardless of where it will end. To hearing and honouring people’s stories. To being creative. To diving into new disciplines. To making new connections. To having fun. The little dancer in me who grew up to be a scientist is excited to be here.
-
-
At the end of 2023, we had the honour of co-curating an art exhibition about experiences of childhood brain tumour. We worked with families and heard more of their stories through the words they spoke and the art they shared. We also heard some of the perspectives of clinicians, researchers, and support organisations. It was an honour to write about our experience of this for The Lancet Oncology, now available online: https://lnkd.in/g2-3CpkB. The exhibition is also available online: https://lnkd.in/gfVNBkY6. #childhoodcancer #braincancer #artsbasedresearch
-
Our latest paper with families who have a child with brain tumour is out now! The following factors indicate a need for increased early psychosocial support: 👉🏼low household income 👉🏼child cognitive difficulties early after diagnosis 👉🏼child aged <4 years at diagnosis 👉🏼child having received chemotherapy and/or radiation ⭐"Parents with a lower household income reported worse cognitive difficulties and pain and hurt at each timepoint for their child, consistent with several studies to have evidenced children diagnosed with cancer from households with low-income experience higher symptom burden and lower quality of life. These associations are underpinned by a complex constellation of biopsychosocial variables at the individual, familial, community and societal levels."⭐ ⭐We also found an interaction between family functioning and tumour grade, with family functioning improving for those with a high grade tumour and becoming more problematic for those with a low grade tumour.⭐ Open access available here: https://lnkd.in/gCD5BDke #openacess #braintumour #childhoodcancer
Quality of life and family functioning 12 months after diagnosis of childhood brain tumour: A longitudinal cohort study
onlinelibrary.wiley.com
-
An excellent example of the need for gender-informed research! In the comments are additional thoughtful considerations.
safe, sustainable & ethical food systems | circular (bio)economy | participatory action-research | science communication
Ultra-processed food is a feminist issue. Here’s why. UPFs are being hotly debated at the moment – definitions, health impacts, and what their public perception means for innovation. The topic comes with several nuances but the consensus seems to be that we need to be mindful about the kind of processed foods we consume and avoid the unhealthy ones if preparing an alternative at home is possible. This is a view that I generally agree with. But it also makes me wonder – who exactly do we expect to put in the time and labour to prepare minimally processed alternatives at home? Who do we expect will compare the nutritional and ethical dilemmas surrounding food processing and decide what’s best for the family? And who will have to spend extra time during grocery shopping to read ingredient lists and make sense of them? Regardless of the changing worldview on this, globally, the burden of food preparation and planning falls disproportionately on women. And moving towards eating fewer processed foods is likely to add to it. It is no coincidence that the rise of processed foods in our diets parallels the increasing number of women joining the workforce. Historically, wives and mothers were expected to be the caretakers of the family’s nutritional needs, toiling away in the kitchen to prepare several ‘made-from-scratch’ meals everyday. However, as women started working outside their homes, they began spending fewer hours in the kitchen. Consequently, modern conveniences such as canned foods, frozen vegetables, and microwave meals became commonplace. As more women start working 40-hour weeks like men do, families are likely to rely on UPFs more than they ever have. So, what’s the best way forward? Should we continue consuming high amounts of UPFs so women can keep working outside their homes? Of course not! Instead, we must look into how domestic duties such as grocery shopping, meal planning, cooking, and staying updated on nutrition guidelines can be divided equitably among men and women. Educational campaigns on UPFs must take this up as a key message because eating fewer processed foods should not come at the cost of women carrying an unfair load in the household!
-
-
Another plain language summary to share with the world! This one is the first paper from our longitudinal survey on quality of life and family functioning with families who have a child diagnosed with a brain tumour. Please share 🙌 #Openaccess paper available here: https://lnkd.in/eQxw9Jzj #childhoodcancer #braintumour #braincancer
-
Associate Professor at QIMR Berghofer Medical Research Institute
11moSuch important work Kate. Well done to you and the team.