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17,673 followers

3mo

Our newest video interview features Christine Gustafson of the TED Community Organization, the only nonprofit dedicated to thyroid eye disease (TED). In the snippet below, Christine talks about her journey with TED and receiving decompression surgery. To watch the full interview, head to our YouTube channel at the link below! https://lnkd.in/g2bvZ_5X

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It's called decompression surgery. I had three of those. Two were not really very successful and then the last one was very successful. That the problem was afterwards I had. Double and chaotic vision, which means that I was like, I could see like a car would be sitting on top of a building and it was supposed to be sitting in the street park by the sidewalk and the sidewalks would disappear into a bee. And when I went to swim my laps, I there were just like all kinds of lanes that were never there before. And it looked like someone was in the lane I was going to get in, but they were actually three lanes over. And so it was just a. Complete. And it's because my eyes weren't lined up. So your eyes have to be exactly lined up and they weren't. So for six months they thought, well, it's just a surgery and once the swelling goes down from the surgery, my eyes will realign. But they didn't. And so I got another surgery, Strabismus at Stanford and brilliant Doctor Lambert, absolutely brilliant. He just, he fast tracked me because he said you're actually losing your sight. Umm it was so bad and so he in one surgery I. You can't really see it without really hard for me emotionally, but. I could see perfectly after that surgery. He stood before me and then his assistant and they said, what do you see? And there was just one of each of them. And they were just completely clear, like everything. And in that one, so I had stitching in my eyes. So you think, oh God, you know, they put stitching in your eyes. How terrible. But you, if you, you know that you have to go the rest of your life seeing cars sitting on buildings when they're supposed to be sitting on the street. You think, go ahead, put stitching in my eyes. Because if you can, if you can help me see again. And so, umm, yeah, so it was. He did a beautiful job and my eyes are almost 2020. I can just see very well and and I don't frighten children. Anymore and so then you can see where that kind of leads into my. With the tech community. How that can be such a need and that I'm going to be able to see why that's in need.

3mo

Thank you Christine Gustafson - we're always learning from you, and really inspired by your commitment to patient advocacy.

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