Looking for support and resources for Multiple Sclerosis in the UK? Check out these amazing organisations that are dedicated to helping those affected by MS: These organisations offer a range of services including information, support groups, research funding, and advocacy. Whether you have MS yourself or have a loved one affected by the condition, these organisations are here to help. Give them a follow and reach out for more information. Together, we can make a difference in the lives of those living with Multiple Sclerosis. #MSsupport #MSawareness #UKorganisations #MultipleSclerosis #MSAwareness #HealthcareJourney #MSCommunity #MSSociety #MSUK #livingwithMS #MSAwarenessmonth #multiplesclerosissupport
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Today, on World Multiple Sclerosis Day, we raise awareness and support for those living with MS. 🧡 Let's unite in understanding, compassion, and advocacy to empower those affected by this condition. Together, we can make a difference. #MSDay #RaiseAwareness #AliciaPeterkin #NewMethodsConsulting
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Today, on World Multiple Sclerosis Day, we raise awareness and support for those living with MS. 🧡 Let's unite in understanding, compassion, and advocacy to empower those affected by this condition. Together, we can make a difference. #MSDay #RaiseAwareness #AliciaPeterkin #NewMethodsConsulting
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Today marks the start of #WorldAlzMonth 30 days of global awareness raising, advocacy and action to challenge global stigma surrounding dementia. Every person - every post, share, like or comment can make a difference this September. Help us raise awareness of dementia and address stigma and discrimination - join the race. #TimeToActOnAlzheimers #TimeToActOnDementia
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#FriedreichAtaxia is a progressive, degenerative multi-system disorder impacting approximately 1 in 50,000 people in the United States. Sean is one of those rare cases. Explore his patient journey to gain understanding of living with a #neuromusculardisease, learn more about his advocacy efforts, and the importance of resilience in the search for new #genetherapies. https://lnkd.in/ghQrA6cb
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Experienced Leader in Patient Advocacy and Engagement, Specializing in Program Leadership for Healthcare Initiatives | Founding Member at Chronic Boss Collective
The only constant you are guaranteed as a rare patient is unpredictability. In the face of so much ambiguity, Global Genes decreases the burden of uncertainty on a patient through education, support, and community. There is still time to register for Week in Rare! You can use code FriendsofKenz at checkout for 15% off! I found Global Genes in 2018, 3 years after my diagnosis, and knew then that this organization was not like any other. From finding my community and sharing my story at The Rare Advocacy Summit to utilizing the toolkits created for advocates, to most recently needing the services of Rare Concierge, I couldn’t imagine what my health would look like had I not learned about Global Genes early in my journey. My family and I want to use our knowledge and experience in this space to help others, and Global Genes has enabled us to do just that. #PatientAdvocate #CareAboutRare #WeekinRARE #RAREHealthEquity #BeCounted #RARESummit #PatientCentricity #clinicaltrials #patientadvocacy #patientengagement #mentalhealth #cPTSD #PTSD #medicalgaslighting #research #livedexperience #advocate #advocacy #championsofhope #patientsupport #research #treatment #patientvoice #biotech #pharma #healthtech #realworldevidence #realworlddata #researchanddevelopment #patientexperience #patientsolutions #orphandrugs #raredisease #ChronicIllness
Week in RARE begins on Thursday, and there is still time to register and join us virtually! Tune in for three days of valuable insights from over 100 speakers and more than 30 sessions covering topics such as empowering individuals with rare diseases, advocacy, community building, research growth, organizational support, and health equity awareness. Register as a virtual attendee below! 🦓👋 https://lnkd.in/ew8SRdZt #WeekInRARE #RARESummit #RAREHealthEquity #GGSummit #GGSummit2024 #GlobalGenes #CareAboutRare #BeCounted #RAREX #RareDisease
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Today is #PurpleDay. 630,000 people in the UK have epilepsy. That's 1 in a 100. Go to @EpilepsySociety for more resources and information; we're working to transform the lives of people of epilepsy in the UK through world-leading research, advocacy, and care. #StampOutSeizures
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Better serve adolescents and their parents by taking advantage of our online resources aimed specifically at them. These include support groups, peer networks, helplines, treatment locators, and advocacy opportunities, empowering AYA with with knowledge and support. Find them here: https://buff.ly/3xaydWT. #SAHMResources #AYAHealth #Empowerment #SupportAdolescents
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Understanding why volunteers participate in research studies is critical to successful enrollment for clinical research. Dr. Angie Randazzo, Director of Patient Engagement and Advocacy at #Clinilabs, speaks with Claire, a person living with Parkinson’s, about why she has participated in research studies in the past and what would help motivate the community to get involved. Visit https://loom.ly/QjP8-Sk to learn more. #parkinsons #parkinsonsdisease #volunteer #clinicalstudies #clinicalresearch
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"Together, we can break the stigma around menstrual health and provide young girls with the resources they need. Our organization focuses on donation of sanitary pads, health advocacy, and education to empower and uplift every girl. Be part of the change. #BreakTheStigma #MenstrualHygiene #EmpowerGirls #SupportHer #EducationForAll"
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By disseminating this public form, RCAW will connect with underserved population advocacy entities we may not have known about and who might not know about RCAW. We want to make contact, build relationships, and share education and resources. To learn more about RCAW's Policy for Underserved Populations (determined from First Principles: Cross-Cutting Considerations for Family Caregiver Support, Developed by The Recognize, Assist, Include, Support, and Engage (RAISE) Act) and to connect with us, visit https://lnkd.in/gFKfjgqV
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