Lupus Research Alliance ’s Post

WORLD LUPUS DAY: The time is now to pursue remission as a key care goal in lupus.    Aligned with the latest clinical recommendations, we can aim to reduce reliance on oral corticosteroids and work to build a future where remission is possible for more people living with lupus.     This World Lupus Day, learn more about how we’re following the science to help make remission a reality: https://bit.ly/3Wt2QkT    #WorldLupusDay #MakeLupusVisible 

🔥 There has been a lot of hype about a lupus discovery that could lead to better treatments and possibly "a cure." Join us next Saturday, July 27, 5PM EST on FaceBook to discuss this topic. (go to the More Than Lupus page at that time, and click on the live video feed) Go to this link and click on "Going": https://lnkd.in/e_rRS-xf 👉 I'll put things in true perspective 👉 I'll give advice that patients can use to better understand news hype like this, which pops up now and then 👉 I'll go over some actual, really exciting new lupus information that patients can put to use immediately (studies that should be hyped up more than it is) Thanks to More Than Lupus

Today, on #WorldLupusDay, we shine a spotlight on lupus, a complex #autoimmunedisease affecting millions worldwide. Together, we can advocate for better research, treatments, and support systems. 💜 #LupusAwareness

10 Lupus Tips on May 10 (World Lupus Day) by More Than Lupus https://lnkd.in/eb83DBjT #lupus #SLE #LupusAwarenessMonth

LUPUS EUROPE is conducting a survey to gather insights into the experiences of individuals living with #lupus across Europe. 🌍 In 2020, Lupus Europe launched a large “Living with lupus survey”. Thanks to the huge participation from patients around Europe, the insights from this survey are largely used. Time has now come for a new survey, with different topics, to add to our knowledge of what it means to live with lupus in 2024. The survey is anonymous and should take approximately 10 minutes to complete. It is available in 19 different languages. Click the following link to complete the survey: https://lnkd.in/eA8A57sh 🔗 Thank you for sharing your views! #LupusAwareness #LupusResearch #SLE #LupusCommunity #LupusEurope

Today kicked off the beginning of my favorite 3 days of the year! Our Lupus Research Action Network (aka amazing lupus warriors) met today. More pics tomorrow! 💜 #lupus #patientadvocacy #lupuspolicy #diversityinclinicaltrials #clinicaltrials #nationallupusadvocacysummit

Have you discovered Inside Lupus Research? It’s your go-to source for the latest and most significant lupus research news. Stay informed with current headlines and subscribe to receive updates directly in your inbox! Check out the latest here: https://lnkd.in/en9zHa4N #lupusresearch #lupus

Potential To Reverse Lupus: https://lnkd.in/ew8bmA5d

On World Lupus Day, we bring to light the personal battles and triumphs of those living with lupus. It’s a day to share patient stories that inspire and educate, like those of Hronn Stefansdottir and Annemarie Sluijmers, who have faced lupus with incredible bravery and grace. Their narratives are a powerful reminder of the resilience that defines the human spirit. Visit http://ms.spr.ly/6045Yn6a7 to learn more about lupus. Let’s work together to make lupus visible and support the lupus community worldwide. #WorldLupusDay #MakeLupusVisible #AsOneForPatients #PatientDirected #LupusAwareness #Lupus100

Uniting Lupus Groups Around the World https://lnkd.in/gcjiiMAz It's estimated that at least 5 million people worldwide have some form of lupus. On average, it can take nearly six years to be diagnosed with lupus. So the numbers are probably higher. Use the link above to see if there is a lupus group in your country. If there is one not listed please feel free to post a link to the group here. #arizonalupus #lupusawareness #lupuswarrior #menhavelupus