People living with metabolic dysfunction-associated steatotic liver disease (#MASLD) face a multifaceted disease burden, including: 1️⃣ Impaired health-related quality of life (#HRQL) 2️⃣ Potential stigmatization. Take a look at JHEP Reports "Read of the week", which highlights MASH Cities Series Chair Jeffrey V. Lazarus's and other authors' contribution to the matter. **key insight: addressing disease stigma may improve patients’ well-being and self-efficacy.** 🔗 https://lnkd.in/guaQBdJA
MASH Cities’ Post
More Relevant Posts
-
Global Human Resources Executive | Driving Business Success Through People Strategy | CHRO with Global Professional Services Expertise
Today is Rare Disease Day, a day to bring awareness to the struggles of those affected by rare diseases. Did you know that the definition of a rare disease varies across the world? In Europe, a rare disease affects fewer than one in 2,000 people, while in the United States, the standard is 1 in 200,000. These conditions can be difficult to diagnose and even harder to understand, with some being genetic in origin and others the result of infections, environmental factors, or degenerative issues. For those with rare diseases, the struggle can be multi-faceted, with limited voices bringing awareness to their needs for research, medical, and financial support. This can lead to physical, social, and even mental burdens. That's why #RareDiseaseDay is so important - it gives those voices a chance to come together and shed light on these issues. Let's all take a moment to recognize and support those affected by rare diseases. And let's continue to push for more research, medical support, and understanding. #D2VClinicalResearch #ResearchMatters
To view or add a comment, sign in
-
-
Did you know that 70% of rare diseases start in childhood? A disease is considered rare when it affects fewer than 1 in 2,000,000 people. Those with rare diseases can struggle to get the care they need due to lack of scientific knowledge and quality information about their disease. Rare Disease Day® (on the rare Feb. 29) aims to help achieve equitable access to diagnosis, treatment, health and social care, and social opportunity for all of those impacted by rare diseases. Learn more about rare diseases and the importance of supporting research and treatment here: https://bit.ly/3JammLR. #RareDiseaseDay #RareDiseases
To view or add a comment, sign in
-
-
Did you know that 70% of rare diseases start in childhood? A disease is considered rare when it affects fewer than 1 in 2,000,000 people. Those with rare diseases can struggle to get the care they need due to lack of scientific knowledge and quality information about their disease. Rare Disease Day® (on the rare Feb. 29) aims to help achieve equitable access to diagnosis, treatment, health and social care, and social opportunity for all of those impacted by rare diseases. Learn more about rare diseases and the importance of supporting research and treatment here: https://bit.ly/3JammLR #GlenwoodRegionalMedicalCenter #RareDiseaseDay #RareDiseases
To view or add a comment, sign in
-
-
Did you know that 70% of rare diseases start in childhood? A disease is considered rare when it affects fewer than 1 in 2,000,000 people. Those with rare diseases can struggle to get the care they need due to lack of scientific knowledge and quality information about their disease. Rare Disease Day® (on the rare Feb. 29) aims to help achieve equitable access to diagnosis, treatment, health and social care, and social opportunity for all of those impacted by rare diseases. Learn more about rare diseases and the importance of supporting research and treatment here: https://bit.ly/3JammLR. #RareDiseaseDay #RareDiseases
To view or add a comment, sign in
-
-
Did you know that 70% of rare diseases start in childhood? A disease is considered rare when it affects fewer than 1 in 2,000,000 people. Those with rare diseases can struggle to get the care they need due to lack of scientific knowledge and quality information about their disease. Rare Disease Day® (on the rare Feb. 29) aims to help achieve equitable access to diagnosis, treatment, health and social care, and social opportunity for all of those impacted by rare diseases. Learn more about rare diseases and the importance of supporting research and treatment here: https://bit.ly/3JammLR #StewardHealthCare #RareDiseaseDay #RareDiseases
To view or add a comment, sign in
-
-
Did you know that 70% of rare diseases start in childhood? A disease is considered rare when it affects fewer than 1 in 2,000,000 people. Those with rare diseases can struggle to get the care they need due to lack of scientific knowledge and quality information about their disease. Rare Disease Day® (on the rare Feb. 29) aims to help achieve equitable access to diagnosis, treatment, health and social care, and social opportunity for all of those impacted by rare diseases. Learn more about rare diseases and the importance of supporting research and treatment here: https://bit.ly/3JammLR #StewardHealthCare #RareDiseaseDay #RareDiseases
To view or add a comment, sign in
-
-
Did you know that 70% of rare diseases start in childhood? A disease is considered rare when it affects fewer than 1 in 2,000,000 people. Those with rare diseases can struggle to get the care they need due to lack of scientific knowledge and quality information about their disease. Rare Disease Day® (on the rare Feb. 29) aims to help achieve equitable access to diagnosis, treatment, health and social care, and social opportunity for all of those impacted by rare diseases. Learn more about rare diseases and the importance of supporting research and treatment here: https://bit.ly/3JammLR #StewardHealthCare #RareDiseaseDay #RareDiseases
To view or add a comment, sign in
-
-
Did you know that 70% of rare diseases start in childhood? A disease is considered rare when it affects fewer than 1 in 2,000,000 people. Those with rare diseases can struggle to get the care they need due to lack of scientific knowledge and quality information about their disease. Rare Disease Day® (on the rare Feb. 29) aims to help achieve equitable access to diagnosis, treatment, health and social care, and social opportunity for all of those impacted by rare diseases. Learn more about rare diseases and the importance of supporting research and treatment here: https://bit.ly/3JammLR #StewardHealthCare #RareDiseaseDay #RareDiseases
To view or add a comment, sign in
-
-
Did you know that 70% of rare diseases start in childhood? A disease is considered rare when it affects fewer than 1 in 2,000,000 people. Those with rare diseases can struggle to get the care they need due to lack of scientific knowledge and quality information about their disease. Rare Disease Day® (on the rare Feb. 29) aims to help achieve equitable access to diagnosis, treatment, health and social care, and social opportunity for all of those impacted by rare diseases. Learn more about rare diseases and the importance of supporting research and treatment here: https://bit.ly/3JammLR #StewardHealthCare #RareDiseaseDay #RareDiseases
To view or add a comment, sign in
-
-
Did you know that 70% of rare diseases start in childhood? A disease is considered rare when it affects fewer than 1 in 2,000,000 people. Those with rare diseases can struggle to get the care they need due to lack of scientific knowledge and quality information about their disease. Rare Disease Day® (on the rare Feb. 29) aims to help achieve equitable access to diagnosis, treatment, health and social care, and social opportunity for all of those impacted by rare diseases. Learn more about rare diseases and the importance of supporting research and treatment here: https://bit.ly/3JammLR. #RareDiseaseDay #RareDiseases
To view or add a comment, sign in
-