CF AMR Syndicate - Meeting unmet patient needs through collaboration. The CF AMR Syndicate continues to support innovators through the provision of samples from the UK Cystic Fibrosis Infection Biorepository and via the publication of Diagnostic Target Product Profiles (TPPs). It has engaged the community by delivering key events and continues to grow its network and knowledge exchange reach, with over 200 members. Follow CF AMR Syndicate Visit https://hubs.li/Q02MkSp10 LifeArc | Cystic Fibrosis Trust
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So looking forward to this webinar and diving into the challenge we face when evaluating the evidence for rare disease guidelines and exploring concrete solutions that can enable us to review systematically all the evidence available to optimize rare disease guidelines 🚀
Onderzoeksmethodoloog | Zorgbeleid | Richtlijnontwikkeling | Patiëntvertegenwoordiging | Zeldzame aandoeningen
On April 29th, Agnies van Eeghen and I will take part in a EURORDIS-Rare Diseases Europe webinar on rare disease guideline methodology challenges, representing ERN ITHACA , together with other methodologist colleagues of other European Reference Networks (a.o. Willemijn Irvine, Manon Engels, Iris den Uijl). Want to be part of the discussion? Make sure to register! https://lnkd.in/eFiiPYJh
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At AstraZeneca, we are continuing to follow the science to further unlock our understanding of complex immune-driven diseases like SLE. If we can recognize and address the underlying drivers of disease, we can tackle key areas of unmet need that remain. On #WorldLupusDay let’s shed light on the urgent need for higher standards of lupus care. Together, we can take action to advance the existing standard of care and help those with lupus lead fuller lives. #MakeLupusVisible #UnlockingLupus #WorldLupusDay #AstraZenecaEgypt
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Critical appraisal of multidrug therapy in the ambulatory management of patients with COVID-19 and hypoxemia Eleftherios Gkioulekas at the 2024 Infectious Disease World Conference, presenting our study on the Hazan, Stone, and Babalola case series of hypoxemic COVID-19 patients, treated with ivermectin-based multidrug protocols. The presentation is focused on reviewing the details of the three case series, the protocols used, the case series demographic characteristics, and our statistical analysis establishing the strength of association between treatment and reduction in hospitalizations and deaths. Watch the full presentation here: https://shorturl.at/NkINp Read the study here: https://lnkd.in/gEaNm7zy #MFEducation
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At AstraZeneca, we are continuing to follow the science to further unlock our understanding of complex immune-driven diseases like SLE. If we can recognize and address the underlying drivers of disease, we can tackle key areas of unmet need that remain. On #WorldLupusDay let’s shed light on the urgent need for higher standards of lupus care. Together, we can take action to advance the existing standard of care and help those with lupus lead fuller lives. #MakeLupusVisible #UnlockingLupus #WorldLupusDay #AstraZenecaEgypt
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At AstraZeneca, we are continuing to follow the science to further unlock our understanding of complex immune-driven diseases like SLE. If we can recognize and address the underlying drivers of disease, we can tackle key areas of unmet need that remain. On #WorldLupusDay let’s shed light on the urgent need for higher standards of lupus care. Together, we can take action to advance the existing standard of care and help those with lupus lead fuller lives. #MakeLupusVisible #UnlockingLupus #WorldLupusDay #AstraZenecaEgypt
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At AstraZeneca, we are continuing to follow the science to further unlock our understanding of complex immune-driven diseases like SLE. If we can recognize and address the underlying drivers of disease, we can tackle key areas of unmet need that remain. On #WorldLupusDay let’s shed light on the urgent need for higher standards of lupus care. Together, we can take action to advance the existing standard of care and help those with lupus lead fuller lives. #MakeLupusVisible #UnlockingLupus #WorldLupusDay #AstraZenecaEgypt
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🌟 At CGM, the topic of "Rare Diseases" is close to our hearts. For years, our team at intermedix Deutschland GmbH has been working with partners to shorten the often lengthy diagnostic journey for those affected. Last year, we launched a major campaign with the motto "Rare is many, together we are strong!" to raise awareness on International Rare Disease Day. This year, on 29th February, we once again want to highlight the unique challenges faced by those affected and their families. This is what CGM does: With WICOM Rare Disease from intermedix, doctors can rely on an innovative technology that supports the identification of rare diseases. GHG Praxisdienst offers a Rare Disease Finder, that is available for doctors using CGM’s German Ambulatory Information Systems. In addition, we are revolutionizing the data landscape in healthcare through INSIGHT Health GmbH, contributing to advancements in disease diagnosis and management. Did you know that in Germany, approximately four million people are affected by a Rare Disease? In the EU, a disease is considered rare if no more than 5 out of 10,000 people have a particular condition. About 80% of rare diseases are genetically based and are sometimes noticed at birth or in childhood. However, there are also cases where symptoms develop in adulthood. The disease is often chronic and incurable, requiring lifelong medical treatment. Yet, the path to diagnosis and suitable therapy is often long and arduous. Join us in supporting Rare Disease Day by sharing a post with the hashtag #RareDiseaseDay Together, let's raise awareness and show our solidarity with those affected. #RareDiseaseDay #RareDiseases #CGMCares
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At AstraZeneca, we are continuing to follow the science to further unlock our understanding of complex immune-driven diseases like SLE. If we can recognize and address the underlying drivers of disease, we can tackle key areas of unmet need that remain. On #WorldLupusDay let’s shed light on the urgent need for higher standards of lupus care. Together, we can take action to advance the existing standard of care and help those with lupus lead fuller lives. #MakeLupusVisible #UnlockingLupus #WorldLupusDay #AstraZenecaEgypt
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At AstraZeneca, we are continuing to follow the science to further unlock our understanding of complex immune-driven diseases like SLE. If we can recognize and address the underlying drivers of disease, we can tackle key areas of unmet need that remain. On #WorldLupusDay let’s shed light on the urgent need for higher standards of lupus care. Together, we can take action to advance the existing standard of care and help those with lupus lead fuller lives. #MakeLupusVisible #UnlockingLupus #WorldLupusDay #AstraZenecaEgypt
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At AstraZeneca, we are continuing to follow the science to further unlock our understanding of complex immune-driven diseases like SLE. If we can recognize and address the underlying drivers of disease, we can tackle key areas of unmet need that remain. On #WorldLupusDay let’s shed light on the urgent need for higher standards of lupus care. Together, we can take action to advance the existing standard of care and help those with lupus lead fuller lives. #MakeLupusVisible #UnlockingLupus #WorldLupusDay #AstraZenecaEgypt
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