Today is #RareDiseaseDay 2024, a great opportunity to learn more about cerebral #Adrenoluekodystrophy (cALD), a devastating and fatal rare disease. Watch out this film to hear from Prof. Fanny Mochel, a world renowned expert and Director of the Reference Center for Leukodystrophies - La Pitié-Salpêtrière Hospital (Paris), and Karen Harrison from Alex The Leukodystrophy Charity (Alex TLC) who shares powerful insights into the patient experience. Click on the link to watch the film and please spread the word, every share counts in raising awareness for cALD and other rare diseases! https://lnkd.in/dVYzmPft Minoryx Therapeutics Neuraxpharm #ALD #cALD
