Mural Health’s Post

Yes. This. ESMO - European Society for Medical Oncology Patient communication and shared decision making • Information on diagnosis and treatment choice should be given repeatedly (both verbally and in writing) in a comprehensive and easily understandable manner [V, A]. • The use of reliable, patient-centred websites or similar sources of information is recommended [V, A]. • Patients should be actively involved in all management decisions and should have equitable access to the full range of reproductive care options including pregnancy counselling, contraception and fertility preservation [V, A]. This section highlights an important role of medical societies, colleges and organisations in the provision and curation of medical information co-designed with and for consumers, patients and their families. Would love to see more of this in Australia for the prevention, early detection and management of #breastcancer. Is there an opportunity for medical groups to partner with consumer groups? Melanie Walker BreastSurgANZ Clinical Oncology Society of Australia (COSA) Australasian Society for Breast Disease The Royal Australian & New Zealand College of Radiologists (RANZCR) Australian Society of Plastic Surgeons Kirsten Pilatti and Vicki Durston I'm not sure if they are co-designed - but Royal Australian and New Zealand College of Obstetricians and Gynaecologists RANZCOG have some excellent examples of 'information for the public' on their website.

🌍🎗️This #WorldCancerDay we stand united in our mission for #IndependentMedicalEducation prioritising evidence-based medicine, & supporting the integration of the best evidence with clinical expertise and patient values. In the realm of healthcare, education plays a pivotal role in shaping practices that stand at the forefront of patient-centric care. By fostering an environment that emphasizes continuous learning and the convergence of scientific evidence with practical wisdom, we strive to elevate medical professionals to new heights of excellence. 🗣️ Let our collective voice amplify the call for informed medical practices, where the synergy of evidence, expertise, and patient values leads to the most effective care. Together, we embark on a journey to make a profound difference in the lives touched by cancer. Join us in celebrating the spirit of #MedEd and the shared vision for a world where the impact of cancer is minimised, and every patient receives the highest standard of care. 💙🩺 🌈 Together, we pave the way for a brighter, healthier future. Explore more: https://ow.ly/HmSr50QwYMx #MedEd

🌍🎗️This #WorldCancerDay we stand united in our mission for #IndependentMedicalEducation prioritising evidence-based medicine, & supporting the integration of the best evidence with clinical expertise and patient values. In the realm of healthcare, education plays a pivotal role in shaping practices that stand at the forefront of patient-centric care. By fostering an environment that emphasizes continuous learning and the convergence of scientific evidence with practical wisdom, we strive to elevate medical professionals to new heights of excellence. 🗣️ Let our collective voice amplify the call for informed medical practices, where the synergy of evidence, expertise, and patient values leads to the most effective care. Together, we embark on a journey to make a profound difference in the lives touched by cancer. Join us in celebrating the spirit of #MedEd and the shared vision for a world where the impact of cancer is minimised, and every patient receives the highest standard of care. 💙🩺 🌈 Together, we pave the way for a brighter, healthier future. Explore more: https://ow.ly/OqrX50QxBEC #MedEd

#ICYMI: AJMC - The American Journal of Managed Care featured ADVI Health's Sarah Butler, chief commercial officer, and Lindsay Bealor Greenleaf, federal and state policy solution leader, in its highlights of Asembia's #AXS24 Summit focused on reshaping specialty pharmacy. Including a summary of Sarah and Lindsay's session "2024 Election Policy Issues and the Patient Journey Ripple Effect: IRA, The War on Cancer, and More", read the full article for their predictions of potential election outcomes: https://lnkd.in/eWMHFb6A

New from #EHA2024 | Final long-term follow-up results of the #RELAZA2 study: #MRD-guided treatment with aza in #MDS and #AML 🎥 🩸 Dr. Anne Sophie Kubasch, MD, University Hospital Leipzig, presents the final long-term follow-up results of the #RELAZA2study (NCT01462578), a Phase II trial investigating #measurableresidualdisease (#MRD)-guided treatment with #azacitidine (aza) in patients with #myelodysplasticsyndrome (#MDS) and #acutemyeloidleukemia (#AML) 🌟 #MRD responses were classified into major and minor, and those patients achieving a major response had significantly better survival outcomes than those with a minor response or no response 🌟 Dr Kubasch concludes that aza was able to prevent or delay #hematological relapse in the cohort of patients enrolled in this study Learn more 👉 https://lnkd.in/eREZtYYD #VJHemOnc #CLLsm #Leusm

"Although patients considered both outcomes and experiences important, on average 83.0% of patients considered [patient-reported outcome measures] more important than [patient-reported experience measures] for choosing a medical team, with PROMs more important among 86.9% of the breast cancer sample, 82.6% in diabetes, 80.8% in inflammatory bowel disease, 79.4% in depression, and 86.7% in arthritis. Older patients were more likely to consider outcomes more important than experiences. These results suggest that outcomes and experiences are not viewed as the same by patients and that PROMs may need to be integrated to a larger extent into current payer efforts involving incentives to improve quality; these efforts could include value-based payment models that reward or put payments at risk based on quality performance.

#ASCO24 Attendees: Please don't miss our Chief Patient Officer, Melinda Bachini, presenting: Amplifying the Patient's Voice in Early-Phase Clinical Trials: Solutions to Burdens and Barriers Mon., June 3 at 9:45 a.m. CDT Location: E350 | On Demand The session will explore the importance of early-phase immunotherapy trials in patient care and how to identify patients who are candidates for such trials. The patient experience regarding barriers to participation, including financial and non-financial burdens of participation, will be discussed, along with the role of patient-reported outcomes as valuable outcome measures in early-phase immunotherapy trials. More information here: https://lnkd.in/eKuVUdNe #curecca #clinicaltrials #asco #patientperspective #patientadvocacy #earlyphaseclinicaltrials

Today is the annual Clinical Trials Day – a day to honour clinical research that is crucial for both individual patients and society as a whole. As we know, access to clinical trials may be the last straw for patients to overcome their disease, for example in cancers or neurological diseases, when no treatment is yet available or existing therapies are ineffective. 👨⚕️ The Medfiles Clinical Team is happy to be part of several ongoing and coming trials. We celebrate the sponsors, sites, study nurses, investigators, other CROs and above all – the patients – who make it all possible. Let’s keep up the good work and co-operation! #CTD2024 #clinicaltrials #clinicalresearch #clinicalinvestigation

"Although patients considered both outcomes and experiences important, on average 83.0% of patients considered [patient-reported outcome measures] more important than [patient-reported experience measures] for choosing a medical team, with PROMs more important among 86.9% of the breast cancer sample, 82.6% in diabetes, 80.8% in inflammatory bowel disease, 79.4% in depression, and 86.7% in arthritis. Older patients were more likely to consider outcomes more important than experiences. These results suggest that outcomes and experiences are not viewed as the same by patients and that PROMs may need to be integrated to a larger extent into current payer efforts involving incentives to improve quality; these efforts could include value-based payment models that reward or put payments at risk based on quality performance.

Did you tell your doctor, "Thank you" or state to the medical staff, "Bless you" after your colonoscopy procedure? The patients' heartfelt gratitude was abundant at the Free Colonoscopy Day this past Saturday. HCB2 teamed up with Colon & Rectal Specialists, Ltd., Access Now of the Richmond Academy of Medicine Services, and the area free clinics to offer 15 colonoscopies to our community members. The preliminary results show: * 14:15 patients showed for their appointment. * 100% of the patients had completed their bowel prep perfectly. * 50% of the patients had polyps removed. 50% is almost 4x above the average. * Two patients had more than six polyps removed! Needless to say, lives were saved on Saturday. Why? The Free Colonoscopy Day service was offered due to partnerships and partnerships make a broader, deeper impact. HCB2 is blessed to have these partners. Sending the entire planning committee and medical team a high five, fist bump, and butt slap. Well done, kids! #colorectalcancer #screeningsaveslives #partnershipsmatter #HCB2