National Colorectal Cancer Roundtable (NCCRT)’s Post

Most helpful and significant research here. From our particular experience this ticks all the boxes. Being able to die at home, having the palliative care support, support for the 24/7 carer. Our issues at the end related to major problems of rapidly increasing nursing costs due to rapid deterioration clashing with the very slow response timescale in the way the Aged Care system processes were required to deal. It is to be hoped that the new Aged Care Act will allow for timely anticipation in the case of terminal illness rather than waiting for the crisis to be fully present before only then being able to fund and offer further supportive measures.

Is it time we took a more nuanced view to inform Australian policy for care at the end of life? Yes for many the place where care is received is important, but there are many other factors that people consider. I was privileged to be involved in an #NHMRC funded program of work led by our colleagues at The Centre for Health Economics and Evaluation (CHERE) UTS Faculty of Health in partnership IMPACCT Centre consumers and Jane Phillips finding that symptom management, carer needs and cost were more important aspects of care than location of care and death. This challenges us to ensure that care in hospital, palliative care units, and aged care also can meet these needs; and for those who wish to die at home this is not at the expense of inadequate clinical and social care, and without equipping the community with the know how to offer compassion and support. The right place at the right time with the right care. #endoflife #palliativecare #discretechoiceexperiment https://lnkd.in/edamJbJD

I was honored to share some thoughts with Medscape about our recently published article AllianceChicago, “A Mixed Methods Evaluation of a Quality Improvement Model to Optimize Perinatal and Primary Care in the Community Health Setting” - read here: https://lnkd.in/giB8zfeQ

In this national cohort study, rtGS in critically ill neonates was feasible and diagnostically beneficial in a public health care setting. This study is a prerequisite for implementation of rtGS for ill neonates into routine care and may aid in design of similar studies in other public health care systems. https://lnkd.in/ezPid2bn #endtheodyssey

📢 Debunking Myths in Palliative Care Dr Choon Meng Yee, Head & Senior Consultant, Division of Palliative Care at NCIS is on a mission to challenge misconceptions about palliative care. Often misunderstood, palliative care is not about giving up hope or being unfilial; it's about enhancing the quality of life for patients and families through compassionate support and symptom management. 💙 “A lot of children feel like they can still do more,” Dr Yee shares. “These feelings, actually, are a part of their grieving process.” By fostering understanding, he hopes to encourage more people to see palliative care as a form of empowerment and dignity. Read the full story below, where he shares more input: https://lnkd.in/g7AQ_e-Q #TeamNCIS #PalliativeCare #Healthcare #CompassionInCare

Important new data from California’s ACE’s Aware initiative: Screening for ACEs in front-line Medi-Cal clinics is feasible, acceptable, perceived to be beneficial by patients, families, clinicians and staff, and has no evidence of adverse effects. This data concretely addresses common concerns about ACE screening and argues for even broader dissemination and research into downstream impacts on health outcomes and health equity. More data coming very soon! #aces #traumainformedcare #adversechildhoodexperiences #healthequity Two papers: 1. https://lnkd.in/gCn6dmtW 2. https://lnkd.in/gJvySn_b

#Incontinence is a major, yet often overlooked, health issue that affects a staggering 100 million women in the U.S. Despite how common it is, only 1 in 4 women ever talk to a healthcare provider about their symptoms, often delaying treatment for years due to embarrassment or not knowing that effective solutions are available. This silence prevents many from accessing treatments that could significantly improve their quality of life. The National Association For Continence (NAFC) is committed to confront this issue head-on. To that end, we are proud to announce our partnership with Phreesia, Health. Equity. Outcomes., and Dr. Christina Escobar at NYU. With support from the Centers for Disease Control and Prevention, we’ll be working to raise awareness and provide education to healthcare providers, public health professionals, and the public about incontinence and #bladderhealth. Our goal is to ensure women receive the support and care they deserve. Because everyone deserves a #LifeWithoutLeaks Read more about our upcoming efforts in the full press release: https://lnkd.in/gRUNw_-G

📝Welcome to the first Rare Rundown Monday! Each week, we’ll dive into 1 of 4 themes. Up first, Keystone Connections—exploring the vital resources and efforts within our rare disease community. Today’s spotlight is on an urgent and impactful initiative that could change lives across Europe. Imagine children with rare diseases being denied life-saving treatments simply because they don’t speak the language of the clinical trial’s host country. This heartbreaking reality affects countless families. But there’s hope! The European Network of Paediatric Research at the European Medicines Agency (Enpr-EMA) is leading the charge to address this issue. They’ve established the Cross-Border Access to Paediatric Clinical Trials Working Group to tackle language barriers in clinical trials. Your voice can make a difference in this crucial endeavor! 📢 Participate in their survey to provide vital insights on how language impacts trial participation. Your feedback will help shape inclusive guidelines, ensuring every child has access to potentially life-saving treatments, regardless of their mother tongue. The survey is brief, taking just 12-15 minutes, and your responses will be anonymous. Don’t miss this chance to contribute to a more equitable future for pediatric clinical trials. A special shoutout to Begoña Nafría Escalera from Sant Joan de Déu Children’s Hospital in Spain, who is leading this important research. Feel free to reach out to her with any questions! 👉Make your voice heard and support this critical cause: https://lnkd.in/eJx5BYdn 👨🏾💻For a closer view of the graphics: https://lnkd.in/eNqM_ZWr Share the survey and help us spread the word. Together, we can ensure that language barriers no longer stand in the way of life-saving care. Join us each Monday for Rare Rundown, where we’ll highlight key resources and efforts in our community. Here’s to creating a more inclusive and supportive world for everyone! 🌍❤️🩹 #RareRundownMonday #KeystoneConnections #RareDiseases #ClinicalTrials #EquitableAccess #PatientAdvocacy #Histiocytosis #HLH #CommunitySupport #AdvocatewithNate

"Recent research examined the impact of pre-pandemic physical activity on COVID-19 risk in older adults. Findings suggest that maintaining an active lifestyle before the pandemic may lower the risk of COVID-19 diagnosis and hospitalization. Prior physical activity levels were associated with reduced odds of COVID-19 diagnosis and hospitalization among older adults. This underscores the importance of staying physically active as a preventive measure against COVID-19. #PhysicalActivity #COVID19Risk #OlderAdults #HealthPrevention #ResearchInsights #ActiveLifestyle #PublicHealth #StayHealthy #COVIDPrevention #HealthyAging"

The rise in prevalence of syphilis is alarming, particularly in the obstetric population. Check out our blog below to learn more.