Neurelis, Inc.’s Post

Today, on Epilepsy Awareness Day, our team at the Entabeni Epilepsy Unit stands in solidarity with individuals worldwide affected by epilepsy. 💜 Through our dedicated work, we strive to provide support, care, and advocacy for those living with epilepsy. 🧠 Let us continue to raise awareness, challenge stigma, and promote understanding. Together, we can make a difference. 💫 #EpilepsyAwarenessDay #Support #EndTheStigma"

I am humbled and honoured to be moderating this panel of experts on rare disease research and innovation alongside our co-host the Honourable Senator Marie-Françoise Mégie next Tuesday. Details on how to register are below. 1 in 12 Canadians will be affected by a rare disease, but each disease affects only a small number of individuals, which can lead to a lot of challenges for patients and their caregivers. We are bringing together leading researchers, health innovation stakeholders, and policy makers to shine a spotlight on the impact sustained research and innovation can have on the countless Canadians who are directly and indirectly affected by rare diseases. Learn more about our upcoming virtual event: https://lnkd.in/eJipyb82 #rarediseaseday #rarediseases #raredisease #senate #research #healthresearch #healthinnovation #innovation

Lifespan.io (Lifespan Extension Advocacy Foundation) take a look at a recent preprint which showed the combination of rapamycin and trametinib additively extended median mouse lifespan by 35% & 27% for females and males respectively. I believe that this is the largest increase in lifespan shown by a drug combination so far. Rapamycin + Trametinib Increase Mouse Lifespan by up to 35% https://lnkd.in/e75r-6YY

National Eczema Association The Eczema Expo is my favorite conference hands down. Such a great mix of patients, providers, advocacy groups and industry. Can tell… this is how progress happens for eczema patients. We talked: itch, aging, 7 types of eczema, and how to optimize your appointments.

Explore the role of geriatric care managers and how they can assist in managing the complex needs of aging loved ones. Learn about their services, from coordinating care to providing support and advocacy, ensuring a higher quality of life for seniors and peace of mind for families. https://buff.ly/3YJwAv5

#FriedreichAtaxia is a progressive, degenerative multi-system disorder impacting approximately 1 in 50,000 people in the United States. Sean is one of those rare cases. Explore his patient journey to gain understanding of living with a #neuromusculardisease, learn more about his advocacy efforts, and the importance of resilience in the search for new #genetherapies. https://lnkd.in/ghQrA6cb

Learn more about the Whitman-Walker Health System, an organization that strives to ensure equal opportunity to health and well-being through education, advocacy, research, and care. Listen to the next episode of the AAEM Social EM Grassroot Highlight Series: bit.ly/3zNdlGz

Today: Love in the Time of Chronic Illness (Virtual) 4:00 pm - 5:00 pm Based on the research for her book, “Love in the Time of Chronic Illness,” Barbara Kivowitz - MSW clinician, consultant, and author specializing in patient and family advocacy in healthcare - will discuss what happens to the connection between partners when illness becomes the uninvited third party; and what partners can do to recalibrate and build the resilience needed to carry the heavy load of illness. https://buff.ly/3Im7nNR

Let’s have a conversation on how we too can help your practice and community! Send me an email ttrowell@aledade.com

Fetal alcohol spectrum disorders (FASD) is an umbrella term describing the range of birth defects that are caused by prenatal alcohol exposure. Learn more about Family Advocacy in Recovery and Restoration (FARR) on our site: https://lnkd.in/gU-SnyBZ