NF2 BioSolutions UK & Europe’s Post

it's the return of Friday facts! learn about NF2 and Rare Disease!

Today we see the return of our Friday Facts series. Each friday we will be issuing facts about NF2..... want to join in then send us your fact! #endNF2 #NF2awareness #neurofibromatosistype2 #NF2SWN #NF2support #nf2 #nf2family #nf2warrior #LetstalkNF2 #nf2charity #nf2cure #nf2treatment #nf2gene #nf2chromosome22 #nf2trials #nf2diagnosis #nf2lifeexpectancy #nf2prognosis #nf2research #nf2ismyteam #nf2awarenessday #nf2journey

Its friday again that means its Friday Facts. Each friday we will be issuing facts about NF2..... want to join in then send us your fact! #endNF2 #NF2awareness #neurofibromatosistype2 #NF2SWN #NF2support #nf2 #nf2family #nf2warrior #LetstalkNF2 #nf2charity #nf2cure #nf2treatment #nf2gene #nf2chromosome22 #nf2trials #nf2diagnosis #nf2lifeexpectancy #nf2prognosis #nf2research #nf2ismyteam #nf2awarenessday #nf2journey

#InternationalMensDay2024 Guys! we wanted to let you know its good for you to talk too! #makeadifference #changinglives #strongertogether #itsgoodtotalk #endNF2 #NF2awareness #neurofibromatosistype2 #NF2support #nf2 #nf2family #nf2warrior #LetstalkNF2 #nf2charity #nf2cure #nf2treatment #nf2gene #nf2chromosome22 #nf2trials #nf2diagnosis #nf2lifeexpectancy #nf2prognosis #nf2research #nf2ismyteam #nf2awarenessday #nf2journey

Midweek knowledge! Merlin! its all about Merlin or lack of for us! #endNF2 #NF2awareness #neurofibromatosistype2 #NF2support #nf2 #nf2family #nf2warrior #LetstalkNF2 #nf2charity #nf2cure #nf2treatment #nf2gene #nf2chromosome22 #nf2trials #nf2diagnosis #nf2lifeexpectancy #nf2prognosis #nf2research #nf2ismyteam #nf2awarenessday #nf2journey

Midweek knowledge! Merlin! its all about Merlin or lack of for us! #endNF2 #NF2awareness #neurofibromatosistype2 #NF2support #nf2 #nf2family #nf2warrior #LetstalkNF2 #nf2charity #nf2cure #nf2treatment #nf2gene #nf2chromosome22 #nf2trials #nf2diagnosis #nf2lifeexpectancy #nf2prognosis #nf2research #nf2ismyteam #nf2awarenessday #nf2journey

Friday Facts time again!. Each friday we will be issuing facts about NF2..... want to join in then send us your fact! Looking at more recent research, it's showing that de-novo cases are now making up more of the stats (around 70%) #endNF2 #NF2awareness #neurofibromatosistype2 #NF2support #nf2 #nf2family #nf2warrior #LetstalkNF2 #nf2charity #nf2cure #nf2treatment #nf2gene #nf2chromosome22 #nf2trials #nf2diagnosis #nf2lifeexpectancy #nf2prognosis #nf2research #nf2ismyteam #nf2awarenessday #nf2journey

Continuing our midweek knowledge today, All about eye issues and we are at serious risk of developing several issues. Do have a read photo credit NF2 Information & Services Watch the NF2 BioSolutions webinar here "Vision Issues and Eye treatments in NF2"  https://lnkd.in/ekpKkkbi #endNF2 #NF2awareness #neurofibromatosistype2 #NF2support #nf2 #nf2family #nf2warrior #LetstalkNF2 #nf2charity #nf2cure #nf2treatment #nf2gene #nf2chromosome22 #nf2trials #nf2diagnosis #nf2lifeexpectancy #nf2prognosis #nf2research #nf2ismyteam #nf2awarenessday #nf2journey #raredisease #rarediseaseday2025

We are over halfway through NF Awareness Month. Let's not just keep the awareness to the month of May. Stay iNFormed all year long! To stay current with information and events from the NF Network, go to https://lnkd.in/eP_Dk7k #nf #nf1 #nf2 #schwannomatosis #neurofibromatosis #nfawareness #connectingnf #nfnetwork #endnf #geneticdisorder #chromosome17 #chromosome22

#gospodinasitbcu Let’s quote “Commitments alone are insufficient if not backed by concrete actions”. Is my country committed? Is my country on track to achieve the #UNHLMTB2024 targets? According to the last #GlobalTBReport, only 51% of new and relapse cases are diagnosed with rapid tests. Target: 100%, by 2027! It’s about inequity. Almost half of the #TB cases in Romania do not have the chance to have a rapid diagnosis and so a proper individualized with the right #TBdrugs