This is a fantastic interview by Dave Clarke, CEO of the Australian Patients Association discussing how we empower patients by giving them immediate access to all their test results. The changes proposed by government are fully endorsed by the APA. My favourite quote in this interview: "I think we have to start from the idea that patient's should be able to see everything. This is not GP-centred care or health sector or hospital-centred care it should be patient-centred care." https://lnkd.in/gfxHiK7N
The good thing about transparency & access for a person’s own results is that it will help them track their own health & care & encourages them to be well informed & ask better questions of the health professionals in their care team 👍👏
You might want to check which Pathology companies are actually uploading to MYHR before you get too excited . I checked my record this week to view a recent test and nothing has ever been uploaded . I use Sonic DHM labs on Sydney’s North Shore. We first need to ensure all path labs are uploading results or this is what the patient will see.
There's an enormous scope of changes that are needed to address problems disaffecting the health and wellbeing of patients ("citizens"). It was my view that the credentials work (what is now known as digital id) shouldn't seek a GTM approach via healthcare. But this is done now. As such, the choices, whilst the situation is far less than ideal, means that we need to now sort it out properly which should have a significant impact. The 'status quo' is simply unacceptable.
I 💯% agree with empowering the patient, Nick. However, the question I think needs to be asked is how will this work if someone has some potentially very bad news in those results - or something that could be perceived as very bad news? What practical support will that person get? The risk is people can get VERY stressed about that - depressed, suicidal, even. It could have a huge negative impact on them & their family. E.G. today is the 15th Jan. I could get my results, but I can't get an appointment with my GP until 9am on 30th Jan: 2 weeks of what could be a lot of stress. I'm pretty good at dealing with this stuff, but I remember a few years back I had a CT scan and they found a growth in my left lung...even for me it was hard to not think of the worst case scenario & get stressed about it. Back then I fortunately managed to get an appointment to see my GP quickly, and I got to see a chest specialist within a couple of weeks. Fast forward to recently: in October 2023 my GP referred me to a chest specialist...the first appointment they had was 29th March 2024! Even an urgent referral only brought forward to 5th Feb! How are we going to make support available for people when the results show actual or potential 'bad' news?
Absolutely agree with this, all results should be auto uploaded to MyHR 👍🏼
The only problem I have with path results on My Health is that each result has to be accessed individually, then printed and finally scanned into the patient file A similar problem occurs with Queensland Health’s “viewer”, but even worse, because results and imaging reports are “read only” and cannot be uploaded to the patient’s file…. Any advice/solutions ?
The Dutch Gov are implementing #patientcentric Health records now. Digi.me - A World Data Exchange platform application. is proud to be an accredited Medmij PGO delivery partner making this happen. .
Well shared 👍🏽A thought-provoking interview with Dave Clarke, emphasizing the importance of patient empowerment in healthcare. His vision for patient-centered care, especially regarding immediate access to test results, is a significant step towards transformative healthcare practices.
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10moI strongly agree with this. The issues being raised by some of the medical groups are all about control, but this is fighting a losing battle. Technology means whether we like it or not the traditional information asymmetry between health professionals and patients is dissolving. The majority of our members don’t consider themselves’sick’. They are seeking healthcare, particularly pathology tests, as a way of actively managing their own health and preventing debilitating chronic conditions. Increasingly these consumers are getting better informed and will be in the driver’s seat.