NORC at the University of Chicago reposted this
It was an honor to join the North America Rare Disease Summit today and present NORC's recent research on the prevalence of sickle cell disease among individuals with Medicaid and their health care expenditures. I learned so much from the researchers, providers, and advocates I met today. #HealthCareStrategy #NARDS #RareDiseases #SickleCellDisease #NORC
At #NARDS, the final panel "Accelerating the Path to Orphan Drug Development, Innovative Gene Therapy and Genomics" has just begun. This critical discussion focuses on cutting-edge advancements in gene therapy and genomics that are paving the way for new treatments in rare diseases. 👉 Stephan Grupp, Section Chief, Cellular Therapy and Transplant, Division of Oncology, Children's Hospital of Philadelphia 👉 David Barrett, Chief Executive Officer, American Society of Gene and Cell Therapy 👉 Millan Patel, Chief Medical Officer, Rare Disease Foundation (Canada) 👉 Julia Taravella, Executive Director, Rare Trait Hope Fund 👉 Sarah Snyder Rayel, Senior Director, NORC at the University of Chicago 👉 Peter Hulick, Janardan D. Khandekar, MD, Chair of Personalized Medicine and Division Head for Medical Genetics, Endeavor Health Ultragenyx | Thrivewell Infusion, LLC | Novartis | Sanofi. #RareDiseases #HealthcareInnovation #OrphanDrugs #bamberghealth #RDSseries #rds #rareconditions