Northwestern Department of Neurological Surgery’s Post

Check out our interview with Anna Diaz & Luis Martinez of Epilepsy Alliance Florida! They share facts about #epilepsy #seizures and how the Alliance is working to increase awareness and support.

At Angie Epilepsy Foundation, we are dedicated to educating and supporting individuals and families affected by epilepsy. We believe that knowledge is power, and we want to empower you with the information you need to understand and manage epilepsy. So, we want to hear from YOU! What do you want to know about epilepsy? Do you have questions about: - What causes epilepsy? - How is epilepsy diagnosed? - What are the different types of seizures? - How is epilepsy treated? - How can I support a loved one with epilepsy? Ask us anything! Please feel free to comment below with your questions; we will do our best to provide accurate and helpful information. We will also feature some of your questions in our upcoming blog posts and social media updates. Let's work together to raise awareness and understanding of epilepsy! #epilepsyeducation #epilepsyawareness #AskUsAnything #epilepsyeducation #angieepilepsyfoundation #Epilepsycure, #epilepsystrong, #epilepsywarrior CURE Epilepsy, ROW Foundation, Epilepsy Foundation, International League Against Epilepsy, Epilepsy Wellness Advocates, Epilepsy Society

MONDAY, FEBRUARY 12TH, 2024 IS INTERNATIONAL EPILEPSY DAY! 💜 International Epilepsy Day is an annual awareness-raising initiative organised by the International Bureau for Epilepsy (IBE) and the International League Against Epilepsy (ILAE). One of the key barriers to achieving epilepsy specific global targets are the low levels of health literacy and the high levels of misunderstanding and misconceptions about epilepsy: - This lack of knowledge translates into social stigma and exclusion and leads to the discrimination of people with epilepsy across all levels of society. For example, at work, at school or in the community. - Lack of knowledge can also contribute to challenges in access to treatment due to misdiagnosis, inappropriate treatment decisions, inadequate provision of care and insufficient support for people with epilepsy and those who care for them. In fact, due to the stigma surrounding epilepsy, in many parts of the world, those affected will not come forward to seek care. - Additionally, lack of knowledge also hampers prioritisation of, and resource allocation, to epilepsy by our policy and decision-makers, and acknowledgment of the need for specific policies and programmes to address the burden of epilepsy. I will appreciate If you can like/share this post to expand epilepsy awareness all over the world and debunk many myths on this desease. #EpilepsyDay #Epilepsy #EpilepsyAwareness #SeizureFree #EpilepsyFirstAid Fundacja Epi Bohater Epilepsy Foundation Epilepsy Wellness Advocates NEUROSPHERA | Centrum Neurologii, Padaczki i Psychiatrii

As we gear up for our highly anticipated event, "You Need to Know," at Angie Epilepsy Foundation, we're excited to share essential information about epilepsy to educate and empower our community. Epilepsy is a neurological disorder characterized by recurrent seizures, affecting millions of people worldwide. Despite its prevalence, there are still many misconceptions and gaps in understanding that we aim to address. First and foremost, it's important to know that epilepsy can affect anyone, regardless of age, gender, or background. Seizures, the hallmark of epilepsy, occur due to sudden, abnormal electrical activity in the brain and can manifest in various forms. They can range from brief lapses in attention or muscle jerks to severe convulsions. Understanding the diversity of seizures is crucial in recognizing and responding to them appropriately. One of the most pervasive myths about epilepsy is that it is contagious. This is absolutely false. Epilepsy is not an infectious disease; it is a condition related to brain function. Another common misconception is that individuals with epilepsy cannot lead normal lives. In reality, with proper treatment and support, many people with epilepsy manage their condition effectively and live full, active lives. It’s also important to know how to assist someone experiencing a seizure. Stay calm and ensure their safety by moving objects away from them, cushioning their head, and turning them on their side if possible. Do not put anything in their mouth or try to restrain them. After the seizure, stay with them until they are fully aware and oriented. At "You Need to Know," we will delve deeper into these topics, featuring expert speakers, personal stories, and interactive sessions designed to educate and engage. By increasing awareness and understanding, we can foster a more inclusive and supportive environment for those living with epilepsy. ANTICIPATE! #epilepsyeducation, #EpilepsyAwareness, #Epilepsycure, #epilepsystrong, #epilepsywarrior, #epilepsy, Epilepsy Foundation Washington, Epilepsy Foundation, Epilepsy Wellness Advocates, Advocating for Epilepsy Inclusion, International League Against Epilepsy, INTERNATIONAL BUREAU FOR EPILEPSY, ROW Foundation, CURE Epilepsy

Hello!!! Would you like to know more about our most recent study K2E Newbies? This is a study where Zippy and Zappy will explain different topics about seizures and epilepsy to families who have been recently diagnosed with epilepsy. Please visit our website for more information. https://lnkd.in/gRvZi23M Julia Jacobs - Le Van #epilepsyawareness #epilepsyeducation #epilepsyresearch #pediatrics #patientempowerment #patienteducation

Our friends at the International Bureau for Epilepsy (IBE) are running the Global Epilepsy Needs Study (GENS) to aim to understand the diverse needs and challenges faced by people living with epilepsy worldwide. Visit https://bit.ly/4gKgF6u to participate in the research study today! The goal of the study is to collect detailed information and insights from people living with epilepsy and their caregivers to better understand their experiences, challenges, and needs. This information will be used to drive meaningful change in global policy, research, and healthcare programs to improve the lives of people with epilepsy. Participants should be 18 years or older and either a person living with epilepsy or a caregiver of a person living with epilepsy. Caregivers can also complete the survey on behalf of a person living with epilepsy who is under the age of 18. Your participation is confidential. All responses will be anonymized (you won’t be able to be identified) and all data will be stored securely. The data from the study will be used to create a scientific publication and a global policy advocacy report. These will influence global and national policy for epilepsy as well as epilepsy research, and healthcare programs. This project will also help national epilepsy support groups to better support their communities. Image Description: This graphic contains the logo of the Global Epilepsy Needs Study (GENS) which features a purple globe with "Global Epilepsy Needs Study" written in curved text around the top of the globe and the text "GENS" on a banner in the centre of the globe. The logo of the International Bureau for Epilepsy (IBE) is featured underneath the globe. #globalepilepsyneedsstudy #gens #internationalbureauforepilepsy #ibe #epilepsy #seizures #seizure #seizuredisorder #epilepsyawareness #epilepsyeducation #epilepsywarrior #epilepsylife #epilepsystrong #epilepsypositivity #epilepsyadvocate #endepilepsy #acceptepilepsy #epilepsycommunity #bcepilepsysociety #iamavoiceforepilepsyawareness #epilepsyvoice #bcepilepsyvoice

Have you registered to join yet? This year, Epilepsy South Africa calls on people from all walks of life to use Epilepsy Week from 12 to 18 February, 2024 to raise awareness of, broaden education about, and address the ongoing stigma around Epilepsy. Epilepsy South Africa proudly presents the *EPILEPSY INDABA 2024* on Thursday afternoon, 15 February 2024 during Epilepsy Week, in grateful partnership with Netcare. This impactful gathering aims to educate on and break the “stigma” around Epilepsy. Please join us to help Stamp out Stigma by registering for this FREE event, hosted by Netcare at their Head Office, 76 Maude Street, Corner West Street, Sandton. Note that in-person seating is very limited, on a first registered basis with tickets via Quicket and the link is: https://lnkd.in/dHjqG2zB An online Teams link will also be available for those unable to attend in person - please email us. The programme will include keynote addresses by prominent neurologists and psychologists, Epilepsy SA representatives and those living with Epilepsy. There will also be a ‘candle lighting’ ceremony after the Indaba as we seek to illuminate the path for those with Epilepsy, their families, friends, and colleagues, reminding us of the value and importance of those living with Epilepsy have to us all. In the words of the great Nelson Mandela: “Education is the most powerful weapon which you can use to change the world.” So, join us and let’s be the change we want to see in the world. For more information, visit epilepsy.org.za or email marketing@epilepsy.org.za for any interview requests.

How Epilepsy Warriors Can Break Through Misconceptions Epilepsy warriors face not only the challenges of managing their condition but also the burden of stigma and misconceptions surrounding epilepsy. Let's explore empowering strategies for epilepsy warriors to dismantle stigma and foster understanding. 1. Knowledge is power. Epilepsy warriors can break through misconceptions by educating themselves and others about the realities of epilepsy. Sharing personal stories, participating in advocacy efforts, and engaging in open conversations can dispel myths and promote understanding. 2. Confidence is key in challenging stigma. Epilepsy warriors can empower themselves by embracing their journey and advocating for their needs. By confidently sharing their experiences and advocating for equitable treatment, they can inspire others to see beyond the stigma. 3. Strength lies in solidarity. Building supportive communities of fellow epilepsy warriors and allies provides a safe space to share experiences, seek advice, and gain strength. Together, epilepsy warriors can amplify their voices and effect positive change. 4. Epilepsy warriors can lead by example, demonstrating resilience, perseverance, and achievement in spite of their condition. By showcasing their capabilities and accomplishments, they challenge stereotypes and inspire others to see epilepsy in a new light. 5. Lastly, fostering empathy can bridge the gap between stigma and understanding. By promoting empathy and compassion, epilepsy warriors can encourage a more inclusive and supportive society. #epilepsyeducation, #epilepsystrong, #epilepsy, #epilepsyadvocate, #everyone, #epilepsywarrior Epilepsy Foundation, ROW Foundation, CURE Epilepsy, Epilepsy Society,

Our newest Blog post is all about how we’ve teamed up with Epilepsy Society this week to help spread their “Calm, Cushion, Call” messaging. This simple first aid advice offers members of the public 3 really easy steps to follow if they see someone having a seizure. We take a look at what epilepsy is, what causes it, what might happen during a seizure and how to seek help. Read more at: https://lnkd.in/e2kj6cXa

How do you keep track of your child's epilepsy medication? Last week I re-ordered my daughter's epilepsy medication. Out of 3, one was out of stock. This. Happens. Too. Often! I waited a few days and was advised all was in stock, so I drove to the pharmacy to pick up. The pharmacist handed me the medication, but there were only 2 bottles, not 3. Once again, I asked where the 3rd medication was and once again I was told it was out of stock. Then I was told, "Oooops, it IS in stock!" and the pharmacist handed me the 3rd bottle. This is your sign to create a habit to keep track of your child's medication. SUGGESTIONS FOR KEEPING TRACK OF MEDICATIONS: 💜 Always keep track of medications and ALWAYS order at LEAST 3 weeks ahead before running out. 💜 Teach your child how to keep track of medication so they can alert you they are getting low. This will create a habit for them into adulthood so they never run out. 💜 Always, always, always check medications before leaving the pharmacy to make sure you are receiving all medications your child needs. 💜 If your pharmacy is out of stock and your child needs medication asap, request the pharmacy to transfer to the nearest pharmacy for pick up. Yes, this can be done and yes, I have done it. If you or someone you know has a child who has recently been diagnosed with epilepsy who could use 1:1 coaching & support to navigate the world of epilepsy, I am here to help. DM's are always open. Be well & stay safe 💜