National Urea Cycle Disorders Foundation’s Post

Does my child need a specialist or can my pediatrician treat this disorder? You need both. Ideally, the initial testing and the acute treatment for a urea cycle disorder should be done by a metabolic/genetic specialist experienced in treating these disorders. This metabolic specialist is often a pediatric geneticist and works in a hospital-based metabolic clinic that has a metabolic nutritionist, genetic counselor and social worker. This team approach offers the best chance for a good outcome. The metabolic team can then work with your pediatrician to provide ongoing care in a collaborative fashion. Want to learn more? https://lnkd.in/e3BP8Kd7 #ucd #ucds #ucddisorder #metabolichealth #raredisease #rarediseases #rarediseaseawareness #rarediseaseresearch #ureacycledisorder #pediatrics #pediatrichealthcare

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