Optometry Times’ Post

Session Topic: Putting CMT Blood Samples to Work. A biomarker may be used to see how well the body responds to a treatment for a disease. Without them, clinical trials rely on clinical evaluations that may not be sensitive enough to capture change (good or bad). Learn about the work our partner, COMBINEDBrain, will be doing with the samples you provide. ***Early Bird Patient/Guest Registration open now until April 30th Enter code at checkout "HNF4CMT" Register: HNFSummit.givesmart.com #cmtsummit #cmtneuropathy #charcotmarietooth #cmtwegotthis #hnf4cmt #combinedbrain #hnfsummit COMBINEDBrain

With greater understanding, comes greater patient outcomes. While you focus on autoimmunity diagnosis, we’ll be at your side, all the way.     Visit us at the International Congress on Autoimmunity 2024 in Ljubljana, Slovenia, 17-20 May, where you’ll trace the steps of a systemic autoimmune rheumatic disease patient journey. You’ll also uncover effective strategies for selecting the most pertinent, relevant tests, utilizing autoimmune serology results to advance toward precision medicine.     Join us at Booth #13 and discover better patient management, together.   #rheumaticdisease #autoimmunity #symposium #autoimmunity2024 #InternationalCongressOnAutoimmunity #Ljubljana2024 #polyautoimmunity #antiphospholipidsyndrome

The past year has been an exciting time for the #AlzheimersDisease (AD) community, as new advancements uncover more information about treating the disease. Esteemed neurologists Sharon Cohen, MD, FRCPC, and David Weisman, MD met with Eisai’s Michael Irizarry, MD, MPH, to share their perspectives on AD clinical trial design and what those in the field need to know when evaluating and understanding data outcomes for patients. Read more about their insightful discussion: bit.ly/3IUcHZ4

We talk so often about costs in healthcare, but how often do we pause to ask: Whose costs? I'm looking forward to this The Innovation and Value Initiative (IVI) webinar to explore the full range of economic impacts that patients and their families experience. #healthequity #measurewhatmatters #livedexperience

🌎 If you attended last week's EHE 360 Patient Conference, you learned how important patient registries and natural history studies are for advancing research and clinical care. The EHE Global Patient Registry is more than just a data collection system. It empowers the EHE community to impact the future of this disease. Anyone anywhere in the world who has been diagnosed with epithelioid hemangioendothelioma (EHE) can join the study. The information you share about your patient journey will help to inform doctors and researchers studying EHE.⁠ Join now, and let your data tell your story!⁠ ⁠ 🔗 EHEregistry.iamrare.org⁠ ⁠ #EHE #epithelioidhemangioendothelioma #ultrararesarcoma #EHEFoundation #EHEGlobalPatientRegistry #theEHEFoundation #EHEcancer #PatientsPoweringEHEResearch

🌊✨ "I haven't seen this clear in years!” Pioneering Clear Vision for Keratoconus Patients ✨🌊 As the Principal Investigator for WaveDyn, I am thrilled to share a breakthrough in correcting higher-order aberrations with impression-based sclerals. Our latest video showcases the significant improvement in aberration data for one of our patients. This patient, who has struggled with keratoconus for years, left our clinic beaming with joy. He said, "I haven't seen this clear in years! The last time I saw this well was before my keratoconus diagnosis." I teach my student doctors that every individual with irregular astigmatism from keratoconus once had clear vision. My mission is to help them reclaim that clarity. With WaveDyn, we are striving to restore their sight as close as possible to their natural vision before the onset of the disease. 👁️✨ Watch the video to see how HOA correcting sclerals improved vision from standard sclerals and the bare eye with WaveDyn analysis. #WaveDyn #Keratoconus #WFGlenses #VisionRestoration #WFGSclerals #astigmatism #HigherOrderAberrations #Sclerals #DontRubYourEyes #Optometry #EyeCare #PatientStories #InnovationInHealthcare

📢 Submit your abstract on SLE-Diagnosis, Manifestations, & Outcomes for #LUPUS2025. Whether it's cutting-edge diagnostic techniques, insights into clinical manifestations, or studies on patient outcomes, your work could play a crucial role in advancing our understanding of SLE. Share your findings with a global audience and contribute to the future of lupus care! 🔗 Explore more topics: https://bit.ly/4dPVQnC #Lupus #LupusResearch #Rheumatology #Autoimmunity

Be sure to download our 2024 Glaucoma Report by Eyes On Eyecare! This report reflects the opinions of nearly 400 optometrists across diverse professional backgrounds and practice settings. Utilizing a mixed-methods approach—combining quantitative and qualitative data through structured and open-ended questions—the 2024 Glaucoma Report explores prevalence, preparedness, preferences in disease diagnostics and management, confidence in treatment, feelings surrounding co-management, and more. Click below to read —and download the report—to garner insight into the challenges eyecare professionals are facing with glaucoma and the innovative ways they are choosing to overcome them. bit.ly/45LXHHs

🚨1-week until the KPMP & @KidneyHealthIn's upcoming webinar, "Collaborations That Advance Precision Medicine for People with Kidney Diseases" 🗓️ Oct 15 @ 12 PM ET Are you signed up? Let us know in the comments below! If not, this is your sign to register today! https://lnkd.in/eCkYhkdh #KPMP #KHI #PrecisionMedicine #KidneyDisease

#MetX, funded by the Metrodora Foundation and in partnership with Metrodora Institute and PrecisionLife, is a first-of-its-kind study to create more accurate diagnostics and precision therapies for patients living with complex multisystem disorders. The first participants have begun receiving their #WGS results in detailed research reports with PrecisionLife insights that identify the possible underlying mechanisms of their disease - a significant breakthrough in #PrecisionMedicine for complex diseases. Read more in the Metrodora Foundation newsletter ft. Amy Rochlin and Steve Gardner. ➡️ https://lnkd.in/ebgrcAve