Patient Information Forum (PIF)’s Post

Our website has a shiny new look – let us know what you think! We are very proud of our website – it contains a wealth of information about intrahepatic cholestasis of pregnancy (ICP) including links to research papers and guidelines on managing ICP pregnancies. We know that ICP is a complicated condition which can take some time to get your head around – time you don’t always have depending on the severity of the condition! Many of the families we support have never heard of ICP until they are diagnosed with it, and we know how important our research-based information is to them. Our website is always available, even when our support services aren’t open. Our webmaster Ian and Founder Jenny have worked incredibly hard on its design and transferring all our content across to get our new site live. The design template was chosen by trustee Natalie Brown who was key in researching the best platform to allow us to update our website and for the team to maintain it going forward. A special mention to volunteer, Vrinda, from Experian who offered her support and design expertise. A new website has been on the charity’s wish list for some time, but it hasn’t been possible to get the experts in due to finances and capacity within the team has been limited. However, Ian, Jenny, Natalie & Vrinda have done a fantastic job of pulling this all together themselves with no extra cost to the charity - a huge thank you to them for achieving this! #SmallCharityDoingBigWork #ResearchBasedCharity #Information #Support #IntrahepaticCholestasisofPregnancy #PregnancyComplications #Stillbirth #StillbirthAwareness #Website #SavingLittleLives

🌸 Maternal Pituitary Awareness Day 🌸 is Sunday October 20th. we’re supporting Maternal Pituitary Awareness Day. The day shines a spotlight on maternal pituitary conditions, including Sheehan’s Syndrome and Lymphocytic Hypophysitis. Maternal Pituitary Support is a nonprofit voluntary organisation that helps those who have suffered pituitary damage during pregnancy and childbirth. This year’s awareness day theme is From Head to Heart: How to Have Conversations About Your Maternal Pituitary Health. Talking to your children, partner, or family about your pituitary condition can sometimes be tough, but it’s essential for understanding and support. Head over to @maternalpituitarysupport as they share experiences from mothers, insights from partners, and guidance from experts to help make these conversations a little easier. 💬💖 For more info visit https://lnkd.in/gJuzNSrT #MaternalPituitary #AwarenessDay #SheehansSyndrome #LymphocyticHypophysitis #PituitaryAwarenessMonth

🌸 Maternal Pituitary Awareness Day 🌸 is Sunday October 20th. we’re supporting Maternal Pituitary Awareness Day. The day shines a spotlight on maternal pituitary conditions, including Sheehan’s Syndrome and Lymphocytic Hypophysitis. Maternal Pituitary Support is a nonprofit voluntary organisation that helps those who have suffered pituitary damage during pregnancy and childbirth. This year’s awareness day theme is From Head to Heart: How to Have Conversations About Your Maternal Pituitary Health. Talking to your children, partner, or family about your pituitary condition can sometimes be tough, but it’s essential for understanding and support. Head over to @maternalpituitarysupport as they share experiences from mothers, insights from partners, and guidance from experts to help make these conversations a little easier. 💬💖 For more info visit https://lnkd.in/gJuzNSrT #MaternalPituitary #AwarenessDay #SheehansSyndrome #LymphocyticHypophysitis #PituitaryAwarenessMonth

Our website has a shiny new look! We are very proud of our website – it contains a wealth of information about intrahepatic cholestasis of pregnancy (ICP) including links to research papers and guidelines on managing ICP pregnancies. We know that ICP is a complicated condition which can take some time to get your head around – time you don’t always have depending on the severity of the condition! Many of the families we support have never heard of ICP until they are diagnosed with it, and we know how important our research-based information is to them. Our website is always available, even when our support services aren’t open. Our webmaster Ian and Founder Jenny have worked incredibly hard on its design and transferring all our content across to get our new site live. The design template was chosen by trustee Natalie Brown who was key in researching the best platform to allow us to update our website and for the team to maintain it going forward. A special mention to volunteer, Vrinda, from Experian who offered her support and design expertise. A new website has been on the charity’s wish list for some time, but it hasn’t been possible to get the experts in due to finances and capacity within the team has been limited. However, Ian, Jenny, Natalie & Vrinda have done a fantastic job of pulling this all together themselves with no extra cost to the charity - a huge thank you to them for achieving this! Have a look and let us know what you think: https://lnkd.in/eWkZ2Rbe #SmallCharityDoingBigWork #ResearchBasedCharity #Information #Support #IntrahepaticCholestasisofPregnancy #PregnancyComplications #Stillbirth #StillbirthAwareness #Website #SavingLittleLives

It's crucial to prioritize your health and that of your baby during pregnancy. To minimize the risk of birth defects, it's important to maintain a healthy lifestyle, avoid unauthorized substances and medications, be aware of your risk factors, and attend regular prenatal check-ups. While these measures are essential for minimizing risks, it's vital to seek advice from your healthcare provider if you have any concerns about your baby's development. At the You Matter Charity Foundation, we're dedicated to ensuring the health and well-being of every individual, particularly the healthy growth and development of our children. #YouMatter #HealthyBabies

Our partnership with Tommy's, the UK’s leading Pregnancy and Baby Charity, is built on three commitments: to provide hope and support for every pregnancy journey; to provide access to expert pregnancy information for those who need it the most; and to funding research and work to help every parent have a safe and healthy pregnancy. In delivering our commitment to provide hope and support for every pregnancy journey, together we have committed to create and roll out a bespoke Tommy’s training programme that will not only equip every customer facing Mamas & Papas colleague by the end of 2025 with the important tools they need to support their own mental wellness when partaking in difficult conversation, but also provide invaluable comfort and reassurance to our customers who are navigating difficult pregnancy journeys. This training has already started, and we are delighted to share what this means to our dedicated Customer Care team. Thank you Tommy's for creating and delivering our training. We’re proud to be supporting you save babies' lives. Click here for more information around our partnership: https://lnkd.in/e6R_8qiE 💗 #AlwaysProud #BabyLossSupport #CustomerCare #ParentingCommunity #MamasAndPapas #Tommys #SupportAndCare #Partnership #CharityPartnership

Egg donation pregnancies: what medical challenges should you be aware of? "Egg donation can be an amazing way to achieve your dream of parenthood, but it's important to understand the medical challenges that may come with it. From higher risks of pregnancy complications to potential health impacts on the recipient, being well-informed is key to making empowered decisions on your journey. 💖👶 #EggDonation #FertilityJourney #EggDonationRisks #IVF #DonorEggs #Parenthood #FertilityAwareness #ReproductiveHealth #InformedChoice"

#BLAW2024 - Baby Loss Awareness Week 2024 - the 22nd year of bringing a community together who have experienced baby loss. Baby loss in the UK affects thousands of families, and every year causes them heartbreak and trauma. It is estimated that 1 in 4 pregnancies end in loss during pregnancy and approximately 60,000.00 babies are born prematurely each year. We DP Medical Law are supporting #BLAW2024, please read my article on how you can help raise awareness. #BLAW #BLAW2024 #Babylossawarenessweek #waveoflight #1in4

🌸 Maternal Pituitary Awareness Day 🌸 Today, we’re supporting Maternal Pituitary Awareness Day. The day shines a spotlight on maternal pituitary conditions, including Sheehan’s Syndrome and Lymphocytic Hypophysitis. Maternal Pituitary Support is a nonprofit voluntary organisation that helps those who have suffered pituitary damage during pregnancy and childbirth. This year’s awareness day theme is From Head to Heart: How to Have Conversations About Your Maternal Pituitary Health. Talking to your children, partner, or family about your pituitary condition can sometimes be tough, but it’s essential for understanding and support. Head over to @maternalpituitarysupport as they share experiences from mothers, insights from partners, and guidance from experts to help make these conversations a little easier. 💬💖 For more info visit https://lnkd.in/gJuzNSrT #MaternalPituitary #AwarenessDay #SheehansSyndrome #LymphocyticHypophysitis #PituitaryAwarenessMonth

Having a healthy pregnancy starts before a person is pregnant. Many risk factors for preterm birth are preventable and a person’s overall health is a strong determinant of their pregnancy health outcomes. This year’s March of Dimes report reveals many risk factors for preterm birth are not improving, and many pregnant people still are not receiving adequate prenatal care. Disparities continue to deepen for communities of color. Louisiana must prioritize the health of its moms and babies. We can all make a profound impact for today and future generations by investing in our communities, advocating for policy change, and raising funds for critical research and programs. #PrematurityAwarenessMonth