Want to learn how to develop your rare disease patient group from the bottom up? Enrol in our course on the Resources Hub now 💻🔥 💡 Now with NEW resources included to support with recruiting and managing volunteers! Learn more: https://ow.ly/PvMQ50Sttb5
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Patient groups are scarce for time and do not have the capacity to read 38 pages of the new UK Rare Disease Framework to understand what it means for them. If you want to better understand the Framework’s key priorities and themes, but don’t have the time to read a full policy document, enroll in our free, NEW course ‘Understanding the UK Rare Disease Framework’. Learn: ✅The background to the UK Rare Disease Framework ✅The Framework’s 4 priorities ✅The Framework’s 5 underpinning themes ✅What the new Framework means for you and your rare community All in under 1 hour! https://ow.ly/j8Ep50Q9Nc9
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Rare disease awareness days: It's about the disease, not about your company. Before jumping on the bandwagon, take a moment to consider how your company can genuinely support these causes and demonstrate your true commitment to making a difference. Join Sandra Laird and Matthew Dickinson as they discuss how to approach disease awareness days to create a meaningful impact: https://lnkd.in/dnNQHRTP
Disease Awareness Days
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Exploring the intricacies of disease management, this episode sheds light on the importance of standardizing test values for consistent and reliable results. Discover more about advancing disease management in the full episode: 'Dr. Betsy Armenta Leyva: Advancing Disease Management' – available on major platforms. https://lnkd.in/ddRXmfWi
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Assistant Professor of Dermatology at Pamukkale University, MD, MSc in Immunology & Inflammatory Disease, Dermatologist #Hacettepe School of Medicine #the University of Glasgow
As a member of Y-GRAPPA, we are proud to present the AAD 2024 "Do Not Miss" newsletter featuring outstanding posters on the basic science, clinical, and treatment aspects of psoriatic disease presented at the American Academy of Dermatology Annual Meeting in San Diego, California. It was an honor for me to work with a fantastic team in preparing this newsletter. In the basic sciences section, I have featured a summary of the following: * Preliminary in vivo evidence suggests that neurogenic stress can exacerbate psoriasis, with the study also proposing potential treatment options to prevent these flares. * Modulating the gut microbiome may have a calming effect on systemic inflammation in psoriatic disease. * A study on psoriatic itch mechanism and the effects of anti-IL17AF monoclonal antibodies on itch resolution in psoriasis treatment.
The 2024 AAD Annual Meeting is under way and the Y-GRAPPiAns have put together another "Do Not Miss" Newsletter, highlighting interesting abstracts to be presented on psoriatic disease. Read now 👉 https://lnkd.in/gs_ZsdBz
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Check out this 18-minute video that outlines some of the more recent studies surrounding antithrombotic therapies
📆10 Minutes to go! Don't miss Christopher P Cannon, MD and Deepak L. Bhatt, MD, MPH as they share the latest Thromboembolic Disease and Antithrombotic Therapy highlights from ACC. Join us now ➡️http://ms.spr.ly/6045cfdKt
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Learn about the risk of heart disease for first responders and the benefits of the HeartStart screening program in our upcoming webinar on May 22. Experts will discuss the risk of heart disease for first responders and the ways HeartStart is addressing these challenges >> https://trib.al/RQt7Mmx
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Learn about the risk of heart disease for first responders and the benefits of the HeartStart screening program in our upcoming webinar on May 22. Experts will discuss the risk of heart disease for first responders and the ways HeartStart is addressing these challenges >> https://trib.al/VKPGlDp
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Last week we had good company at our last strategic meeting of the year. In total six meetings with a focus on ultra rare disease. Gave us lots of information and insights. Let’s continue next year! #orangebrain #orangebrainhealthcarematters #strategicmeeting #advisoryboardmeeting #rarediseases #ultrararediseases.
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Learn about the risk of heart disease for first responders and the benefits of the HeartStart screening program in our upcoming #webinar on May 22. Experts will discuss the risk of heart disease for first responders and the ways HeartStart is addressing these challenges >> https://trib.al/XDvbmRb
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Patient groups are scarce for time and do not have the capacity to read 38 pages of the new UK Rare Disease Framework to understand what it means for them. If you want to better understand the Framework’s key priorities and themes, but don’t have the time to read a full policy document, enroll in our free, NEW course ‘Understanding the UK Rare Disease Framework’! Learn: ✅The background to the UK Rare Disease Framework ✅The Framework’s 4 priorities ✅The Framework’s 5 underpinning themes ✅What the new Framework means for you and your rare community All in under 1 hour! ⏰ Learn more: https://ow.ly/Tspe50Q6jIz
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