SameYou’s Post

Today is #LGSAwarenessDay! LGS is a form of developmental and epileptic encephalopathy (DEE) that typically develops in childhood and results in frequent and difficult-to-treat seizures. People living with LGS experience a variety of complications, including frequent and severe seizures, significant behavioral and developmental delays, movement and balance issues, and sleep difficulties. Even more devastating, they are 24 times more likely to die of premature mortality, including sudden unexpected death in epilepsy (SUDEP). On #LGSAwarenessDay, let’s show our support, advocate for more research, and work toward better treatment options and resources for those impacted. By increasing awareness, we can foster a more understanding and inclusive community for LGS patients and their caregivers. #epilepsy #teamucb

An incredibly powerful short video on the importance of maintaining connections for children in the out of home care system. Please watch.

Based in #Leeds, "Battle Scars" support people of all ages and genders who are affected by self-harm (by self-harm they mean any harm done to the body or mind - including external, internal and psychological self-harm as well as any food-related self-harm). They believe that acceptance, self-awareness and education combined with honest peer support can result in managing self-harm. Their vision is to make sure that nobody struggling with #SelfHarm has to fight alone and to break down the stigma surrounding self-harm. They run face-to-face, virtual and online peer support groups for people who self-harm and their families/friends. Virtual services are UK-wide with the online support is worldwide. They deliver highly acclaimed training to professionals all over the UK and provide a wide range of free resources. See more here: https://lnkd.in/en_eQaJT #BattleScars #SelfHarmSupport #MentalHealth #BreakingTheSelfHarmStigma

"Assume I can do it". Being underestimated and people assuming all the things we as disabled people cannot do is one of the biggest barriers to disability inclusion. Something I hear again and again in my research and advocacy work. This video made for World Downs Syndrome day 2024 (today) sums that up amazingly well. Because I'm blind people have assumed: - I can't cook. - I got my PhD before I lost my sight. - I will not be able to finish High School - I need feeding as I would be unable to find my own mouth... - I would be a liability as I would break displays and computers in my wake by bumping and smashing into them. - ... https://lnkd.in/eZhF9dd3 #disability #disabilityinclusion #edi #inclusion #employment #advocacy

Great to have the opportunity to talk about the importance of coproduction, listening to family voices and understanding family trauma caused by systems #family #voice #coproduction #familytrauma #learningdisability #autism #asklistendo #keyworking https://lnkd.in/efKTp9ep

The numbers keep on climbing! How do we fix a broken system? I always go back to the age old saying... See something - Say something. It all starts by asking the questions. You may be saving a life. #childsafety #childrenmatter #childadvocate #mentalhealthmatters #mentalhealthadvocate #childrensmentalhealth

Early intervention is key! By identifying developmental needs early, UpliftEd can provide the support children deserve and help them thrive. Together, we can create brighter futures for every child. 📍 Uday bungalow G/4 B , somnath society,opposite somnath Mahadev temple, ichanath road 395001 #uplifted #childrenwithspecialneeds #specialneedssupport #educationalassistance #flexiblelearning #specializedcare #personalizedsupport #therapeuticsupport #personalizedcare #emotionalwellbeing #learningdifficulties

Do you support foster families raising kids with prenatal substance exposure? Download our FREE GUIDE, Understanding Prenatal Exposure to Alcohol and Drugs, to help you strengthen and support the families you serve: https://lnkd.in/eveS-EqJ #NationalFosterCareMonth #fosterparents #fostering #fostercare

🙌 Expanding employment opportunities for people with Down syndrome This video describes the employment experience of Aidar Shamkeev, who has Down syndrome, as a kitchen assistant in one of the coffee shops in Bishkek.      📣 Based on the experience of working with Aidar, the management of the "Clever Bishkek" coffee shop recommends three conditions for the employment of people with intellectual disabilities: to promote greater independence of the employee, to use simple and clear language in communication with him, and to use visual cues that help to successfully cope with tasks ✅    💙 Aidar notes that employment allows you not only to earn money, but also to communicate with others and feel part of society.     Learn more: https://lnkd.in/dKKh6zy4 #DisabilityInclusion Rakhat Orozova

This Guardian article helps to explain more about The For Baby's Sake Trust and how we work with families to break cycles of #domesticabuse.