Scienta’s Post

Why is it acceptable for 1.5 million people to die each year from drug-resistant infections? 💊 If 1.5 million people died in plane crashes annually, would you still board a flight? It's shocking that these staggering numbers go largely unnoticed. 👉 This is exactly what I discussed with Jon Stokes on Episode 2 of the 'Sinclair Podcast.' Jon, Co-founder and CSO of Stoked Bio and Assistant Professor at McMaster University, is an expert in antibiotics and drug-resistant diseases. His insights are a wake-up call we can’t afford to ignore. LISTEN NOW - https://lnkd.in/gEKfn8Vv . . . . #Sinclair #ChrisSinclair #Sinclairbrand #sinclairpodcast #sinclaiecoaching #coaching #entrepreneurcourse #businesscourse #personalgrowthcourse #courses #howtobuildyourbusiness #businesspodcast #personaldevelopmentpodcast #antibiotics #antibioticresistance 

How to navigate the complex rare disease landscape and apply the three pillars of launch excellence to achieve success? Find it out in the latest podcast with Sarah Rickwood and Stefan Lutzmayer discussing key findings from the recent “From Orphan to Opportunity: Mastering Rare Disease Launch Excellence” white paper. Access here: https://bit.ly/4bLmPQl #IQVIAPodcast #raredisease #LaunchExcellence

🎙Podcast: TB-CHAMP, VQUIN, and the first effective treatment to prevent multidrug-resistant #tuberculosis. Using new evidence from the TB-CHAMP & VQUIN #ClinicalTrials, the World Health Organization now recommends the use of preventative levofloxacin in contacts of people multidrug-resistant #TB. On the Trial Talk podcast, we learn more about these trials, as well as how the teams came together to combine their data and strengthen their evidence, using new statistical methodologies developed at the MRC Clinical Trials Unit at UCL. Listen now👉https://bit.ly/3XTf8na

Are you considering whether pursuing a curative therapy is ultimately worth it, find out from sickle cell survivors Genesis Jones and Wunmi Bakare in episode 5 of #ThroughTheGenes podcast. But also we want to hear from you, is undergoing a curative therapy for sickle cell disease worth it when weighing the potential benefits against the risks and challenges involved? Let us know in the comments section below. Use the link in the bio to listen. https://lnkd.in/gqtuWXZ5 #CurativeTherapies #SickleCellDisease #SickleCell #SickleCellAwareness #NHGRIxTTP #SickleCellCure

🎙️Tune In Tonight for Episode 5 of Our Podcast! 🎙️ Join us for an exciting and educational episode on prostate diseases! Tonight at 8pm on CNC3, we’ll delve into crucial topics, share expert advice, and provide valuable insights you can’t afford to miss. Whether you’re interested in men’s health or want to stay informed about the latest medical breakthroughs, this episode is packed with information for you! Don’t forget to mark your calendars and watch Episode 5 tonight at 8pm on CNC3. You won’t want to miss it! #Podcast #ProstateHealth #MensHealth #WatchNow #CNC3 #Episode5

On the 20th September 2024 the #FDA approved Arimoclomol for use in Niemann Pick C patients aged 2 years and above. We shared initial results from the Phase 2/3 trial back in 2021 (Efficacy and safety of arimoclomol in Niemann-Pick disease type C: Results from a double-blind, randomised, placebo-controlled, multinational phase 2/3 trial of a novel treatment) and then we did a podcast! Listen here 👉 https://lnkd.in/daQkXyWX as Dr Marc Patterson and Dr Eugen Mengel explain why it is so challenging to treat Niemann Pick Type C. They discuss the Arimoclomol paper mention above and another study from the same period on the efficacy of Miglustat. Marc and Eugen conclude that, ultimately, a multi-drug approach may be required. You can find the podcast on Apple, Spotify, Soundcloud or wherever you get your podcasts. #niemannpickC #lysosomalstoragedisorders #NPC #raredisease #newtreatments #orphandrugs

🎙Are you interested in learning how psoriasis affects patients’ wellbeing, and you want to listen to dermatologists and patients? Made by EUROPSO in collaboration with Almirall, this new podcast aims to raise awareness of psoriasis and highlight the impact of this condition beyond skin. In this first episode, titled “Beyond the Surface: Assessing the Wellbeing of Psoriatic Patients” we explore the core concerns of psoriatic patients and how their wellbeing is assessed. Don't miss this opportunity to join the conversation: https://lnkd.in/dVnfUiWs

🎙️ Exciting News! 🎙️ On this Rare Disease Day, we're proud to announce the launch of our podcast, Initiation, dedicated to shedding light on the complexities of health economics, market access, and patient perspectives in the rare disease community. 🔍 Patient Perspectives: Amplifying the voices of those living with rare diseases and addressing the unique challenges they face. 💡 Health Economics: Exploring the economic factors influencing healthcare decisions and the importance of access to innovative treatments. 💼 Market Access: Navigating the landscape of market access strategies and advocating for broader access to life-changing therapies. Our inaugural episode features an insightful interview on LHON (Leber's hereditary optic neuropathy) and the inspiring story of The Blind Chocolatier, offering a first-hand perspective on navigating life with a rare disease. You can buy his delightful chocolates via the links below: Shop: https://lnkd.in/em36QYmW Facebook: https://lnkd.in/eqXmnCTH Subscribe now to stay informed, inspired, and engaged in shaping the future of healthcare. Together, let's make a meaningful impact in the lives of patients and the healthcare ecosystem. You can listen to the first episode here: https://lnkd.in/eBuY32H8 #podcast #marketaccess #heor #theblindchocolatier #rarediseaseday 

HOT OFF THE PRESS 🔥! LISTEN TO EPISODE 87 OF THE DERMS AND CONDITIONS PODCAST.... Hear about practical use of nonsteroidal topical therapy for psoriasis with some emphasis on specific modes of action. Significant advances in the development of topical nonsteoidal agents for psoriasis and other indications is reshaping how many of our patients can be effectively treated, both initially and over time, with highly favorable efficacy and improved safety. See the access link below. #nonsteroidaltopicaltherapy #dermsandconditions #dermsquared https://lnkd.in/gbAZRB5i

Can I Butt In? episode 19 is now available to stream wherever you get your podcasts! In this episode, Sam talks to Helen West, Public Patient Involvement & Engagement Officer at Guts UK. They discuss the charities’ joint project, a diverticular disease priority-setting partnership. Helen and Sam explain what a priority-setting partnership is, what we’ve done so far, what’s going to happen, how you can get involved, and why we’re looking into diverticular disease. You can tune in directly here > https://lnkd.in/erdnV2E2 Please fill out the survey > https://lnkd.in/eUBng2nR Please think about your experience of diverticular disease and related conditions. What questions would you like to ask that future research could answer? This is your opportunity to help shape future research! #CanIButtIn #DiverticularDisease #Diverticula #Diverticulitis #Diverticulosis #ComplicatedDiverticularDisease #BowelResearch