Scribe-X’s Post

Diversity Matters. I think it's important to prioritise that people are represented in every aspect, from materials to perceptions, when it comes to clinical trials. This is why feedback is key to understanding barriers and ensuring inclusivity. By actively seeking feedback throughout the process, we can work towards improving inclusivity and effectiveness in our efforts. 2024 is all about committing to represent and listen to ALL voices in the clinical trial process, especially the underrepresented voices! #DiversityMatters #DiversityInResearch #HealthcareEquality #PatientEngagement

DEI has become a buzzword for people on both sides of the aisle. Some advocate for renewed and persistent efforts to promote diversity, equity, and inclusion. Opponents, however, claim that DEI has strayed from its original purpose. In this clip from our episode titled "Confronting Healthcare Disparities in Black Communities", Caretha Coleman explains the true mission of DEI and how advocates can adapt to the pushback while continuing to drive meaningful change. #healthcarepodcast #healthcare #DEI #healthequity #racialbias #blackhealthcare #blackcommunity

Grounded in resilience, the Communities of Care Summit has something for everyone, whether you’d like to learn, network, or engage in self-care. Our hope is that all attendees leave the summit with a sense of empowerment. https://lnkd.in/g2yxNjZv

Did you know Rhode Island passed a new law to make legally changing your name easier, safer, and more affordable? Did you know you can update the gender marker on your state and federal IDs without having to present “proof” of gender transition? Did you know your Rhode Island voter record doesn’t show your gender and you can get a free voter ID that better reflects your current appearance to vote in person? GLBTQ Legal Advocates and Defenders, Rhode Island Department of State, Swearer Center, Brown Votes, and Thundermist Health Center present “Know Your Rights: Updating IDs & Voting While Trans." Trans, nonbinary, gender diverse people and their invited guests are invited to this afternoon workshop to learn about updates to the legal name-change process in RI, how to update your ID documents, and considerations when participating in elections as a gender diverse person. Doors open at 1 p.m. and the workshop begins at 1:30 p.m. Participants will be able to receive individual support for name change and ID updates, register to vote, apply for a free voter ID, and learn about other available community resources. When: Sunday, September 29, 1-3:30 p.m. Where: Community Collaborative at 339 Eddy - 339 Eddy St., Providence, RI 02903 Who: Trans, nonbinary, and gender diverse people and their invited loved ones and guests Cost: FREE Register online at https://lu.ma/user/that.  Have questions? Email transhealth@thundermisthealth.org.

Let’s put our words into action. As activists for anti-racism, anti-discrimination, and anti-oppression in the workplace. By applying a systemic lens to our practices, behaviors, and values, we are not just talking about change—we are driving it, ensuring that our organization embodies the principles of equity and justice in every action we take.

My first Patients as Partners conference was a fantastic experience. Highlights included connecting with colleagues and friends, making new connections, and all the sessions where we got to hear directly from those with lived experience. Here are some of my favorite learnings:   1. The siloing of patient data in clinical trials is a burden and a barrier. Why can't blood draws done for a clinical trial not show up in a patient's portal, so they don't have to do multiple blood draws for the trial and their regular doctor visits.   2. When working with under-supported communities, always ask the community how can we help you? Make sure to break down the barriers and work to get to know the community before ever introducing your clinical trial. The community will advocate on behalf of you if you continue to meaningfully show up.   3. "I am a Black man. I don't represent every Black person." Patrick O Gee, Sr, PhD, JLC on the tokenism he has experienced working with sponsors. While there are shared cultures and experiences, no community is a monolith. Talking to one Black person, one disabled person, one neurodivergent person, one Hispanic person, one queer person means you have talked to one person.   4. Don't put the responsibility on the patient to prove their health literacy and understanding of educational materials. Make sure you are taking the time to make your materials health literate and accessible for multiple audiences using different types of mediums for your materials.   5. One of my favorite sessions came at the end of day two about the caregiver's lived experience. While it is extremely important to include the voice of the caregiver, avoid the term "burden." Many caregivers, including myself, think it is an honor to care for a loved one. Always consider the impact on caregivers in clinical trial protocols but not how it might "burden" them. And lastly, playing with Legos is always a good time even if you think you aren't creative! #PatientsAsPartners #PatientInclusivity #PatientAdvocacy  

𝘌𝘲𝘶𝘢𝘭𝘪𝘵𝘺 𝘏𝘦𝘢𝘭𝘵𝘩 𝘍𝘰𝘶𝘯𝘥𝘢𝘵𝘪𝘰𝘯, 𝘊𝘩𝘢𝘮𝘱𝘪𝘰𝘯𝘴 𝘵𝘰 𝘜𝘯𝘥𝘦𝘳𝘴𝘦𝘳𝘷𝘦𝘥 𝘊𝘰𝘮𝘮𝘶𝘯𝘪𝘵𝘪𝘦𝘴 𝘍𝘢𝘤𝘪𝘯𝘨 𝘏𝘦𝘢𝘭𝘵𝘩 𝘋𝘪𝘴𝘱𝘢𝘳𝘪𝘵𝘪𝘦𝘴, 𝘏𝘰𝘴𝘵𝘴 𝘐𝘯𝘢𝘶𝘨𝘶𝘳𝘢𝘭 𝘚𝘵𝘢𝘳-𝘚𝘵𝘶𝘥𝘥𝘦𝘥 𝘍𝘶𝘯𝘥𝘳𝘢𝘪𝘴𝘦𝘳 𝘪𝘯 𝘖𝘤𝘵𝘰𝘣𝘦𝘳 𝘗𝘳𝘰𝘮𝘰𝘵𝘪𝘯𝘨 𝘔𝘦𝘯𝘵𝘢𝘭 𝘏𝘦𝘢𝘭𝘵𝘩 𝘈𝘸𝘢𝘳𝘦𝘯𝘦𝘴𝘴 Since 2019, Equality Health Foundation has been an advocate in combating health disparities rooted in economic, racial and social conditions across Arizona, Louisiana, Texas, Tennessee and Virginia. This thriving organization believes a zip code should not determine how long or how well we live, and that everyone should have access to resources that enable and encourage healthy living. The core mission of the Foundation is "to level the healthcare playing field in the underserved communities we touch." Visit Equality Health’s website at https://lnkd.in/gZWhPUQg to read about people like 𝗠𝗲𝗹𝗶𝗻𝗱𝗮, 𝟭𝟱, who was actively suicidal and having a difficult time coping with her brother dying of cancer, to whom she was very close; or 𝗠𝗶𝗸𝗲, 𝟱𝟴, a successful sales executive whose career was cut short due to unemployment from chronic illnesses and major depression. Melinda’s and Mike’s lives were positively impacted from the compassionate care, intervention and appropriate access to the professional services they received to assist them on their journey back to wellness. The first 𝗥𝗵𝘆𝘁𝗵𝗺 𝗼𝗳 𝗪𝗲𝗹𝗹-𝗕𝗲𝗶𝗻𝗴 𝗖𝗼𝗺𝗺𝘂𝗻𝗶𝘁𝘆 𝗖𝗼𝗻𝗰𝗲𝗿𝘁 & 𝗟𝗲𝗮𝗱𝗲𝗿𝘀𝗵𝗶𝗽 𝗛𝗼𝗻𝗼𝗿𝘀 𝗖𝗲𝗹𝗲𝗯𝗿𝗮𝘁𝗶𝗼𝗻, described in the attached post, is a chance to support the Equity Health's Community Well-Being Fund. This year, the public health 𝘁𝗵𝗲𝗺𝗲 𝗶𝘀 𝗺𝗲𝗻𝘁𝗮𝗹 𝗵𝗲𝗮𝗹𝘁𝗵. Statistics show that 𝗮𝗽𝗽𝗿𝗼𝘅𝗶𝗺𝗮𝘁𝗲𝗹𝘆 𝗼𝗻𝗲 𝗶𝗻 𝗳𝗼𝘂𝗿 𝗔𝗺𝗲𝗿𝗶𝗰𝗮𝗻 𝗮𝗱𝘂𝗹𝘁𝘀 𝘀𝘂𝗳𝗳𝗲𝗿 𝗳𝗿𝗼𝗺 𝗮 𝗱𝗶𝗮𝗴𝗻𝗼𝘀𝗮𝗯𝗹𝗲 𝗺𝗲𝗻𝘁𝗮𝗹 𝗶𝗹𝗹𝗻𝗲𝘀𝘀 𝗶𝗻 𝗮 𝗴𝗶𝘃𝗲𝗻 𝘆𝗲𝗮𝗿. This equates to about 26% of the adult population. 𝗔𝗯𝗼𝘂𝘁 𝟭𝟲.𝟱% 𝗼𝗳 𝘆𝗼𝘂𝘁𝗵 𝗮𝗴𝗲𝗱 𝘀𝗶𝘅 𝘁𝗼 𝟭𝟳 𝗲𝘅𝗽𝗲𝗿𝗶𝗲𝗻𝗰𝗲𝗱 𝗮 𝗺𝗲𝗻𝘁𝗮𝗹 𝗵𝗲𝗮𝗹𝘁𝗵 𝗶𝗹𝗹𝗻𝗲𝘀𝘀, affecting around 7.7 million young people. 𝗔 𝗴𝗲𝗻𝗲𝗿𝗼𝘂𝘀 𝗱𝗼𝗻𝗼𝗿 𝘄𝗶𝗹𝗹 𝗺𝗮𝘁𝗰𝗵 𝘆𝗼𝘂𝗿 𝗰𝗼𝗻𝘁𝗿𝗶𝗯𝘂𝘁𝗶𝗼𝗻 𝘂𝗽 𝘁𝗼 $𝟭𝟬,𝟬𝟬𝟬, 𝗱𝗼𝘂𝗯𝗹𝗶𝗻𝗴 𝘆𝗼𝘂𝗿 𝗶𝗺𝗽𝗮𝗰𝘁. Your contribution will help reach underserved and under-resourced communities. Take action now to make a difference in the lives of those who need it most. 𝗖𝗮𝗹𝗹 (𝟲𝟬𝟮) 𝟳𝟵𝟵-𝟰𝟯𝟴𝟮 𝗳𝗼𝗿 𝗺𝗼𝗿𝗲 𝗶𝗻𝗳𝗼𝗿𝗺𝗮𝘁𝗶𝗼𝗻. Equality Health Foundation is a 𝟱𝟬𝟭(𝗰)(𝟯) 𝗻𝗼𝗻-𝗽𝗿𝗼𝗳𝗶𝘁 𝗼𝗿𝗴𝗮𝗻𝗶𝘇𝗮𝘁𝗶𝗼𝗻. 𝘈𝘳𝘪𝘻𝘰𝘯𝘢 𝘉𝘢𝘳𝘳𝘪𝘰 𝘚𝘵𝘰𝘳𝘪𝘦𝘴 𝘢𝘯𝘥 𝘓𝘢𝘵𝘪𝘯𝘰 𝘜𝘚𝘈 𝘛𝘝 proudly support this 𝘦𝘷𝘦𝘯𝘵 𝘢𝘯𝘥 𝘫𝘰𝘪𝘯 𝘵𝘩𝘦 𝘌𝘲𝘶𝘢𝘭𝘪𝘵𝘺 𝘏𝘦𝘢𝘭𝘵𝘩 𝘍𝘰𝘶𝘯𝘥𝘢𝘵𝘪𝘰𝘯 𝘪𝘯 𝘵𝘩𝘦𝘪𝘳 𝘦𝘧𝘧𝘰𝘳𝘵𝘴 𝘪𝘯 𝘴𝘶𝘱𝘱𝘰𝘳𝘵 𝘰𝘧 𝘵𝘩𝘦 𝘤𝘰𝘮𝘮𝘶𝘯𝘪𝘵𝘺. Tomás León, MBA; Frank M. Placenti

Listen to the latest episode and learn how innovation and compassion for a community is improving oral health in Oregon!

At NPHI, we recognize the importance of National Minority Health Awareness Month. It's a time to reflect on the unique health challenges faced by minority communities and reaffirm our commitment to health equity for all. We recognize that healthcare outcomes among marginalized groups and ethnic minorities are impacted due to mistrust, coupled with disparities in healthcare provision – which persist among Black, Indigenous, People of Color (BIPOC), and ethnic minorities. We therefore believe that barriers in utilization and disparities in outcomes for both palliative and hospice care require increased access to culturally competent care. To achieve this, we work with our membership to ensure that care teams include members of the patient’s community and culture – including people who represent the patient’s hospice catchment area, particularly BIPOC communities. By doing so, we will bridge linguistic and cultural barriers that can prevent utilization of services. Learn where we stand: https://lnkd.in/gQDDNC7e

Hola, Healthcare Trailblazers! 🌮 Let's taco 'bout making a significant shift in our #healthcare system to better embrace and celebrate the vibrant #Hispanic culture. With nearly 6 in 10 Hispanic adults facing communication difficulties in healthcare settings due to language or cultural barriers, it's time for a change. I'm thrilled to share the latest edition of our newsletter: "🌶️ Spicing Up Healthcare for the #HispanicCommunity 🌶️." This edition is packed with insights, actionable steps, and advice to not only address these challenges but to also pave the way for a more inclusive healthcare environment. What's Inside? 1. Three Insights to Chew On. 2. Two Actionable Steps to Take. 3. One Piece of Advice to Savor. We also feature a curated five-minute video from the American Psychiatric Association and a must-read article from NHI about understanding Hispanic patients. 🔗 Read the Newsletter by following this link.