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✴️ The Share4Rare platform is looking for the best collaborative research initiative based on patient/caregiver reported data. What kind of projects can participate in this call? 🔹 Natural history of a disease 🔹 Symptom clusters 🔹 Disease burden 🔹 Effects of interventions on quality of life for patients and carers 🔹 Validation of scales 🔹 Patient registries with comprehensive data beyond clinical and epidemiological information Key information: 💰 A bonus of €6,000 will be awarded to the highest scoring project based on: 1️⃣ Level of patient involvement in the research 2️⃣ Impact on the rare disease patient community Calendar: 📅 15/07/2024: Deadline to contact #Share4Rare and schedule an online consultation. Submission of the contact form and pre-proposal is mandatory. 📅 31/08/2024: Deadline for submission of proposals (application form and financial commitment letter). For further information please visit ✅ https://lnkd.in/dW68AyNf #Research #Innovation #Healthcare #RareDiseases #Paediatrics #i4KIDS #Share4Rare
