Solid Biosciences’ Post

What does your philanthropy put into action? In this case - technology and innovation as advanced technology does the lung work for a critical patient. After COVID-19 ravaged his lungs in the summer of 2023, 51-year old Ryan’s life was saved by an Extracorporeal Membrane Oxygenation (ECMO) machine used at HonorHealth John C. Lincoln Medical Center. The ECMO machine, simply stated, allowed Ryan’s lungs to rest and regenerate. Ryan’s condition was bad, but his wife Melanie never gave up, saying she "could sense him respond when singing and reading to him." The ECMO machine is used in severe cases and is considered a truly “out of the box” medical protocol. The device removes blood from the patient’s body, pumps oxygen into the blood, then pumps it back into the body, helping relieve strain on damaged lungs and hearts. Being a patient on an ECMO machine can be an intense process, but as Ryan will tell you, “It is a long recovery, but I am blessed to no end.” Stories like these are examples of the critical, personalized care made possible by HonorHealth’s stellar medical teams and the generous support of donors who make advanced technology possible. THANK YOU. #technology #healthcare #innovation #savinglivestogether #philanthropyinaction #philanthropy #philanthropymatters

Great way to end this conference- with a full exploration and discussion of different perspectives on prolonging grief disorder.

World FSHD Day, observed annually on June 20, raises awareness about Facioscapulohumeral Muscular Dystrophy (FSHD), the most common form of muscular dystrophy – and one that has affected my family, friends and colleagues. Originating in Italy on June 20, 2016, this global celebration encourages FSHers, their supporters, and communities to flood social media with orange slice selfies, turn their towns orange, and celebrate our resilient community. The choice of “orange slices” symbolizes the challenge faced by over 1 million individuals living with FSHD: facial muscle weakness often prevents them from smiling. Despite the misnomer, FSHD affects all muscles in the body, not just the face, shoulders, and upper arms. Its progression varies among affected individuals, even within families. On World FSHD Day, let’s recognize the sponsors working toward disease-modifying treatments for FSHD. We’re fortunate that several therapies are now advancing through clinical drug development. #WorldFSHDDay #FacioscapulohumeralMuscularDystrophy #RareDisease #SyneosHealth

For some pediatric patients with spina bifida, everyday activities like running, schoolwork, or playing sports can present significant challenges. As children grow and develop, their ability to move evolves as well. 🏃♂️ Shriners Children’s Northern California's motion analysis center (MAC) has been diligently collecting data to enhance the treatment of patients with movement-related conditions, including spina bifida. 🚶♂️ To delve into the process and the advantages of this technology, explore our blog post in collaboration with Spina Bifida Association of America: bit.ly/4bd4v2c 🖥

The JDRF Kansas & Missouri Chapter Dream Gala is just 1 week away! Some would say raise your goal when you hit it. Which we could, but I want you to know why his goal is 606. 606 was Hunter’s blood glucose when he was diagnosed with T1D on 12/31/2014, dangerously and critically high (in-range 70-140.) Signs were masked initially because he tested positive for flu just 10 days prior. Weight loss, fatigue initially and then super thirsty and frequent urination. In 10 short years we know so much more and technology has helped, making the 24/7/365 management a bit less intrusive. JDRF funded research has been a key driver for those advances including the ability to screen for autoantibodies and take a therapy that delays onset. Yes, we hit our goal and appreciate your additional support as we drive for more breakthrough advances on our path to cures.

With Theranostics, physicians specifically target what they see. The goal is to target the tumor selectively and spare the normal organs. For that, they need post treatment SPECT/CT with the highest quality imaging to review. StarGuide our 3D digital SPECT/CT supports nuclear medicine departments around the globe treating Theranostics patients. #worldTheranosticsday

On March 31st, for World Theranostics Day, we celebrate how Theranostics is connecting healthcare. Theranostics isn't just about treating diseases; it's about treating individuals. By combining diagnostic and therapeutic tools, it enables personalized medicine, and helps improve accuracy and increase efficiency.. Our commitment to innovation extends beyond imaging capabilities. Through initiatives like the Solid Target Platform for our PETtrace cyclotron and the development of StarGuide , innovative digital SPECT/CT powered by CZT, and Omni Legend , digital PET/CT powered by Precision DL software. We’re helping revolutionizing the way clinicians diagnose and treat cancer, improving access to cutting-edge technology and personalized solutions. Let's recognize the impact of #Theranostics on healthcare and commit to advancing precision care for all. https://lnkd.in/ekW9-8TU #GEHealthCare #FutureofHealthcare #WorldTheranosticsDay #PrecisionHealthcare

Sheree Palmer’s life took an unexpected turn in 2008 when she suffered a spinal embolism. As a result, Sheree sustained a spinal cord injury and became a paraplegic, forever changing her life. Today, Sheree is sharing her story and experience of being part of 💥Project Spark and our eWALK* neurostimulation trial. Prior to going on the trial, Sheree was completely unable to walk, but fast forward 12 weeks and she had progressed so much. ✨ To learn more about Sheree's story visit: https://lnkd.in/gZu6nj4A *Important information: eWALK is a rigorous double blinded sham controlled clinical trial. Every volunteer receives 12 weeks of intensive exercise therapy. However, volunteers and scientists do not know whether a volunteer is receiving real or sham stimulation. This information will be available when eWALK results are finalised, which is anticipated to be in the first half of 2025. #ProjectSparkAppeal #SpinalCordInjury #fundraisingforacure #Neurostimulation

Joining us later today at #Techapalooza2024 in support of CancerCare Manitoba Foundation? Here are some things to keep in mind.

Let’s talk about how #legsmatter