Spinal Injuries Association’s Post

In the US alone, roughly 302,000 people are currently living with a spinal cord injury, with about 18,000 new cases reported each year. The impact of these injuries can be devastating, from chronic pain and limited mobility, to paralysis and loss of sensation. Moreover, people with spinal cord injuries often face reduced independence, leading to significant physical, emotional, and financial challenges. Fortunately, organizations are working to advance scientific understanding of spinal cord injuries and provide support to those impacted. So we had to ask: What are the best charities for people with spinal cord injuries? 👇 https://lnkd.in/gRH4yAY5 Christopher & Dana Reeve Foundation, United Spinal Association, Wings for Life - Spinal Cord Research Foundation, Barrow Neurological Foundation, Paralyzed Veterans of America (PVA), National Council on Independent Living, High Fives Foundation, Friends of Disabled Adults and Children (FODAC), Easterseals #charitysupport #spinalcordinjuries #independentliving #disabilitysupport

🎙️LATEST EPISODE🎙️ 𝐒𝐞𝐚𝐬𝐨𝐧 𝟓 𝐄𝐩𝐢𝐬𝐨𝐝𝐞 𝟐𝟑: Navigating Home Care for Spinal Cord Injury Patients with Rebecca McWalters Returning home after inpatient rehab is a pivotal and often overwhelming moment for spinal cord injury patients and their families. Drawing on her extensive experience, Rebecca shares essential insights into Autonomic Dysreflexia (AD). To learn more about AD listen to the full episode. ㅤ 𝐒𝐮𝐛𝐬𝐜𝐫𝐢𝐛𝐞 and please consider 𝐝𝐨𝐧𝐚𝐭𝐢𝐧𝐠 at www.blinkofaneye.org ㅤ #sci #scisupport #spinalcordinjury #scicommunity #scirecovery

We are participating in the Adelaide City to Bay, aiming to raise $3,000 to support The Hospital Research Foundation Group - Stroke. Stroke is a cause close to our hearts. At Micro-X, we're developing a new miniaturised stroke CT scanner that can be easily taken on the road, enabling faster stroke diagnosis and speeding up the time to treatment. Faster access to treatment significantly reduces the likelihood of death and disability. Did you know that one in four people globally will experience a stroke in their lifetime? The Hospital Research Foundation Group invests in world-leading research to improve acute treatment, recovery, and prevention of stroke. They also provide essential support to individuals recovering from stroke. You can make a difference by donating through our team's page. Every contribution, no matter the size, helps us get closer to our goal. https://bit.ly/3M87AWY Thank you for your support! 🙏 #CitytoBay #StrokeAwareness #MedicalInnovation #MicroX #Healthcare #Fundraising

Hello All, The following message might be a little confronting however wanted to update you on Matt Butler. 5 years ago, I was diagnosed with Muscular Dystrophy, at the time on diagnosis, I was told that there is no treatment and the disease progression will lead to complete muscle wasting in my legs, shoulders, lungs and heart.  I was told that over time, it would be highly likely that the disease will lead to total disability with a full dependence of full time care and loss of ability to walk. Eventually, the lungs and heart will stop working causing an early death. With a young family, all our life dreams got caught on the webs of this horrible disease.  The only thing you could do was get on with life. Stick my head in the sand and the problem might go away.   Unfortunately the problems didn't go away, I was getting weaker by the day, falling over for no reason, struggling to get up. My life was likely to be very different to what we had planned. Would I see my life in a wheel chair, would my wife be caring for me, would I live long enough to see my kids finish school, I was so scared about the path ahead. I had to be stronger than ever to push through this.I didn't want to complain, everyone has their own problems. I ended up seeing an amazing man called Dr Robert Henderson. I remember driving to see Dr Henderson for the first time and I was listening to podcast about a clinical trial on my disease in the USA that was showing positive results. A little win, a massive bit of hope!!   The treatment includes the replacement of a chemical called Ribitol that our bodies stop producing. Finally, in May 2024 I got word that I will part of this Clinical Trial, this was one of the greatest moments in my life behind my beautiful family. Almost immediately, I could feel a change in my body. There was hope and was feeling stronger by the day.  Some great things come out of bad things. I have been asked to be the Ambassador for Nerve Connection Foundation , which is very humbling opportunity. It will be an absolute honour to be a part of this amazing charity. Can I ask a massive favour, can you please share, follow, repost Nerve Connection Foundation We need awareness of this Foundation, we also need donations to help undertake other Clinical Trials in the future. If you are wondering what charity to support for a fundraising function, if you are thinking of walking around Queensland to raise money for charity, if your school is wondering what charity to support for a casual clothes day. Please think of Nerve Connection Foundation. We want other stories like mine in the future. My dream is that one day there will be a treatment for MND and other types of Muscular Dystrophy so that sufferers can tell my same story. Remember Nerve Connection Foundation. Please follow on Facebook and Linkedin. Wendy Blucher You too can make an impact on the work of Nerve Connection Foundation by donating here:

The Charcot-Marie-Tooth Association (CMTA), the world’s largest philanthropic funder of research aimed at bringing treatments to patients and improving the lives of those living with Charcot-Marie-Tooth disease (CMT), is thrilled to announce the designation of a new CMTA Center of Excellence at Duke University Hospital in Durham, North Carolina. Learn more: https://lnkd.in/ez9YHUef #CMTAFamily #CMT #CMTStrong #CMTAwareness #CharcotMarieTooth #CMTDisease #CMTCare #CMTCenter #CMTCOE #CMTDoctors #NorthCarolina #Duke #DukeUniversity #LetsBeatCMT

𝐄𝐯𝐞𝐫 𝐰𝐨𝐧𝐝𝐞𝐫𝐞𝐝 𝐰𝐡𝐞𝐫𝐞 𝐲𝐨𝐮𝐫 𝐝𝐨𝐧𝐚𝐭𝐢𝐨𝐧𝐬 𝐠𝐨 𝐚𝐟𝐭𝐞𝐫 𝐩𝐮𝐫𝐜𝐡𝐚𝐬𝐢𝐧𝐠 𝐚 𝐁𝐢𝐠 𝐅𝐫𝐞𝐞𝐳𝐞 𝐛𝐞𝐚𝐧𝐢𝐞? Discover the journey your money goes on from the supermarket to the lab. FightMND beanies are more than just a fashion statement, they are a vital funding source for Motor Neuron Disease Research. You can learn more about how your contributions are making an impact by clicking the link below. https://lnkd.in/gcmqEVic

One of the questions that we keep asking ourselves at Biostache is, 'how can we make this stuff engaging to more people'? By writing this article, not only do I hope to answer this question, but also involve myself in a really interesting piece to write. Please give it a read, let me know what you think! . . . . . . . FightMND #biotech #bigfreeze #clinicaltrials

Today, on World Parkinson's Day, MediRecords proudly supports the Shake It Up Australia Foundation, in the fight to #SlowStopCureParkinsons. 🧡   Our Founder and CEO, Matthew Galetto, said, "Our company's decision to support the Shake It Up Foundation is deeply rooted in both personal connections and a shared commitment to making a difference in health. The Foundation, with its focus on finding treatments and cures for Parkinson's disease, aligns with our values. The founders of Shake It Up Australia, Carolyn and Clyde, are long-standing family friends with shared experiences over 25 years, adding a profound personal dimension to our support.   What sets the Shake It Up Foundation apart is its operational model—every penny raised is channelled directly into groundbreaking research. This is made possible by Carolyn and Clyde's generous commitment to cover all administrative overheads personally, ensuring that all donations have the maximum impact. Moreover, Clyde's personal journey with Parkinson's disease and his determination to be proactive in the fight against it, rather than being defined by the diagnosis, is nothing short of inspirational.   It's this blend of personal connection, fiscal responsibility, and resolve that has guided our decision to support Shake It Up Foundation."   Join us in helping Shake It Up Australia Foundation for Parkinson's Research in their vision for a world without Parkinson’s by pledging a donation today. 100% of all donations go directly to ground-breaking Australian research. Together, we can make a world of difference. - https://lnkd.in/gK6BxHHk #WorldParkinsonsDay #ParkinsonsAwarenessMonth #ParkinsonsResearch #ShakeItUpAustralia

There's no way to sugarcoat the fact that idiopathic hypersomnia is a chronic sleep disorder that impacts every aspect of your life. We take the "burden of the disease" seriously. We're grateful to have had Dr. Rye, a leading researcher and clinician, with us from the beginning. His care and dedication have helped the sleep community understand that idiopathic hypersomnia is a disorder that needs to be researched and that medicines need to be developed. Partnerships with the scientific and medical community are essential. That's why we partner with the AASM Foundation to co-fund a Strategic Research Grant for Central Disorders of Hypersomnolence. When we co-fund a grant with AASM Foundation, we fund 25% and AASMF funds 75%. When we co-fund, every $1 donated by HF turns into $4 for research!⁠ Let’s continue to fund research to change lives for the better.⁠ ⁠ Click the link to donate or learn how to be a fundraiser - https://lnkd.in/eeFs4THa #ThisIsIH #forthesleepyones #hypersomniaawareness #idiopathichypersomnia #sleepdisorder #FakeAwake

As many of you know, my (almost) mother-in-law, Coreen, has ALS. ALS, or Lou Gehrig's Disease, is a devastating neurodegenerative disease that's causing the gradual death of Coreen's upper motor neurons. Over the past couple years, she has slowly lost her ability to move her body and speak clearly. The disease will continue until she cannot swallow, and it will end when she cannot breathe. It's a horrible thing to see happen to someone. As a biomedical researcher myself, I know first-hand how incremental and expensive research is. To help in the small ways I can, I'm participating in the Ride to Defeat ALS on the Resilient Roses Team. Please consider donating to the cause at https://lnkd.in/ge5EfTkE While Coreen won't directly benefit, it means a lot to me to facilitate future research that will eventually lead to curative treatments.