Symptone’s Post

Day 2 IDEOM Annual Meeting. We start the day with an engaged panel of patient advocates discussion sharing experience on patient reported outcomes. Have you heard about patient reported outcomes or participated in developing of patient surveys? Join the the call to Action: 🟠 Develop questions with people living with dermatology disease helps to ask the right questions and form the surveys with the patient community! 🟠 Bring in more voices, more experiences and more diversity. The patient voice, lived experience & perspective from caregivers- Is important! Should you wish to contribute, Learn more about IDEOM- a non-profit organisation which is leading the way for outcomes measures in psoriasis, dermatology and beyond. https://lnkd.in/drmi-qtU

Are you suspecting that you might have Acne Keloidalis Nuchae (AKN)? It can be challenging to identify, as it is often misdiagnosed as acne, keloids, barber’s rash, or even razor bumps on the back of the head. 🤔 If you believe you have AKN and are struggling to find help, you may qualify for assistance from HPF. Early diagnosis and treatment planning can prevent the condition from worsening. Please fill out our patient form below if you need our help. https://lnkd.in/gAR49FH2 Read more about AKN: https://lnkd.in/gTM3-K6P" While we at HPF are here to assist, it’s important to note that our services are primarily for severe cases where patients have been unable to find help elsewhere. 🔍💡 #AKN #ScalpCare #Dermatology #HairPeaceFoundation #NonProfit

Are you suspecting that you might have Acne Keloidalis Nuchae (AKN)? It can be challenging to identify, as it is often misdiagnosed as acne, keloids, barber’s rash, or even razor bumps on the back of the head. 🤔 If you believe you have AKN and are struggling to find help, you may qualify for assistance from HPF. Early diagnosis and treatment planning can prevent the condition from worsening. Please fill out our patient form below if you need our help. https://lnkd.in/gAR49FH2 Read more about AKN: https://lnkd.in/gTM3-K6P" While we at HPF are here to assist, it’s important to note that our services are primarily for severe cases where patients have been unable to find help elsewhere. 🔍💡 #AKN #ScalpCare #Dermatology #HairPeaceFoundation #NonProfit

Are you suspecting that you might have Acne Keloidalis Nuchae (AKN)? It can be challenging to identify, as it is often misdiagnosed as acne, keloids, barber’s rash, or even razor bumps on the back of the head. 🤔 If you believe you have AKN and are struggling to find help, you may qualify for assistance from HPF. Early diagnosis and treatment planning can prevent the condition from worsening. Please fill out our patient form below if you need our help. https://lnkd.in/g9AHjb_u Read more about AKN: https://lnkd.in/gpYTZgHH" While we at HPF are here to assist, it’s important to note that our services are primarily for severe cases where patients have been unable to find help elsewhere. 🔍💡 #AKN #ScalpCare #Dermatology #HairPeaceFoundation #NonProfit

GuideStar, a premier research site for non-profit organizations, recently awarded the Dermatology Foundation a Platinum Seal of Transparency for our continuous dedication in funding dermatologic research, as well as making a difference in the lives of others. The Platinum Seal of Transparency is the highest recognition a non-profit organization can earn. At the DF, we continue to strive to make a difference by supporting rising young investigators and advancing science. This accomplishment would not be possible without the tremendous support of our members, supporters, and volunteers. While #AdvancingDiscovery and #AdvancingHealing, the DF will continue to make an impact. Get updates on our impact through our #NonProfitProfile https://lnkd.in/eNrxmvy8 #nonprofit #nonprofitorganization #nonprofitwork #dermatology #advancediscovery #advancehealing #dermatologyfoundation #dermatologyresearch #togetherwereunstoppable #advancingdermatology #changingtomorrowtoday #dermatologyfocus #shapingdermfuture #dfcuttingedge #dfinnovators

Health care in LMICS. Medical care is fundamental human right.

🔬 CLEFT-Funded Research: Exploring Long-Term Effects of Vomerine Flap Surgery 🔬 At CLEFT, our mission is to bridge gaps in cleft care, improving lives both in the UK and internationally. A vital part of this work is sponsoring ground-breaking research with the potential to change treatment outcomes for those born with cleft lip and/or palate. That’s why we’re funding a study in collaboration with the North Thames Cleft Centre at Great Ormond Street Hospital and St. Andrew’s Centre, Broomfield Hospital. This study focuses on a controversial surgical technique, the vomerine flap closure, used during lip repair. The aim? To assess the long-term impact of this technique on: • Facial appearance, including upper jaw growth and dental arch alignment • Speech and hearing outcomes • Psychosocial well-being of patients This research could lead to improved, less invasive surgical approaches and make a significant difference to the care of patients, particularly in low-resource settings. We’re committed to improving cleft care worldwide, and projects like this bring us closer to that goal. Stay tuned for updates on this important work! 🗣️👶 💙 If you’d like to support important research like this, please consider donating to the CLEFT Research Fund. Every contribution helps us make a difference. Please click the link https://lnkd.in/dc9y3Hvd to make a valuable contribution. #CLEFTResearch #VomerineFlap #CleftCare #CleftLip #CleftPalate #MedicalResearch #NorthThamesCleftCentre

“Her face is PERFECT…” 😍😍😍 That’s what everyone would say when they met our sweet Arienne with the rare blistering skin condition. It was a kind compliment, but it was also a sign of disbelief about what we were saying about her skin. No one could understand that a face that looks like this could be connected to a very severe and often debilitating skin condition. Did you know that you have loads of different types of Keratin in your body? 🧐 Arienne’s Keratin 10 gene is affected by a variant that causes her Epidermolytic Ichthyosis. She has almost zero Keratin 10 in the skin on her face, and this is why she looks like this. But other parts of her body have LOTS of Keratin 10 in the skin. So, no matter what her face looks like, the skin that is always covered by her special clothes looks a lot different. She might look happy as can be, but under her clothes there might be blisters and cracks and sore skin that no one can see. Just because you can’t see it, doesn’t mean it’s not there… ❤️🩹 Please donate to fund research to find a cure: https://lnkd.in/enJ3EXAW Thank you 🥰 #eicureproject #hopeforei #RareDERM #ichthyosis #GeneEditing #findacure #BaseEditing #dermatology #swissassociation #ukcharity #american501c3 #canadiannotforprofit

In a groundbreaking medical achievement, the University of Mississippi Medical Center (UMMC) has marked a historic milestone by successfully transporting an organ without a medical team for the first time. The remarkable feat took place during the double transplant procedure performed on Ricky, an inspiring recipient who underwent life-changing surgery. This groundbreaking innovation in organ transportation not only showcases the cutting-edge capabilities of modern medicine but also holds immense potential for revolutionizing transplant procedures in the future. Read the full story here: https://bit.ly/3SCdHql YOU can help us break more milestones by donating to Organs for Life at https://lnkd.in/gQEavt6k. #OrgansforLife #OrganDonation #OrganTransplant #OrganDonor

A living donor lobar lung transplant is a type of lung transplantation where a lobe or part of a lung is donated by a living donor, usually a family member. This procedure is typically used when a suitable deceased donor organ is not available or when the recipient's condition is critical and cannot wait for a deceased donor transplant. The donor undergoes surgery to donate a lobe, which is then transplanted into the recipient, providing them with a functioning lung or part of a lung. This approach can significantly expand the pool of available organs and reduce waiting times for transplant candidates. Transplant Counsellor ensures top treatment/support for lung transplants. Partnering with leading hospitals, we offer various transplants with expert guidance, easing challenges. Click on the link to access more information. https://lnkd.in/d2e6e-7Y #tc #transplantcounsellor #part #donor #transplant #Lung #surgery #familymember #organs #lobarlung  #lungtransplant #counsellor