Telethon Kids Institute’s Post

☕ *GPHSA NewsBytes - 16/10/2024* ☕ 🦠 *CDC Report on Violence Against Health Workers:* Nearly 1 in 3 public health workers faced violence during the pandemic, per the CDC, highlighting urgent safety concerns. 🧪 *Rwanda’s Marburg Treatment Trial:* Rwanda begins its first-ever clinical trial for Marburg virus treatment, backed by WHO, aiming for better outbreak management. 💉 *World Anaesthesia Day*: Today celebrates the vital role of anesthesia in modern medicine, marking a breakthrough in pain-free surgery since 1846. 📢 *RG Kar Rape-murder Case:* Hunger Strike Appeal AIIMS resident doctors urge the President to address demands from RG Kar Medical College students on hunger strike for better facilities. 🇬🇧 *UK’s Biggest Health Research Initiative:* "Our Future Health," the UK's largest program, seeks to transform disease prevention, detection, and treatment for conditions like dementia, cancer, and diabetes.

🌟 Honouring #RareDiseaseDay, we invite you to watch our recent HTAi Webinar, hosted by HTAi Rare Diseases Interest Group 🌟 Evaluating the value of rare disease technologies poses challenges due to factors like poor natural history, small populations, limited data, complexity, and high unmet needs. Challenges vary across the spectrum of ultra-rare to more prevalent diseases, with added complexities in different populations, such as pediatrics. This webinar highlights these characteristics, elucidates their role in hindering evidence generation and value assessment, and discusses the resulting difficulties in obtaining approvals. Don't miss perspectives from: Elena Nicod – Director, Dolon Ltd | Italy Fleur Chandler – Head of Market Access UK and Ireland, Sanofi | UK Dan Ollendorf – Chief Scientific Officer, Institute for Clinical and Economic Review (ICER) | USA Karen Facey – Independent | UK Sheela Upadhyaya – Life Sciences Consultant | UK Gain invaluable insights into the assessment of rare disease treatments. Watch now: https://lnkd.in/g48V-DbG #RareDiseaseAwareness #rarediseaseday2024 #HealthcareInnovation #ValueAssessment #HealthTech #HTAiWebinar

ICYMI: Solve Responds to Findings From the NIH Intramural ME/CFS Clinical Study Published in "Nature" https://lnkd.in/gCmRvc-Y The long-awaited and costly study underscores the commitment of the NIH to understand ME/CFS, highlights that patients are often neglected or ignored, and researchers discovered that several patients were living with undiagnosed health issues. Multiple major news outlets tapped members of Solve’s extensive network of experts–including multiple scientists from Solve’s Ramsay Research Grant Program–for their response to the study, bringing much-needed visibility to ME/CFS. But we're concerned that the study: —Failed to adequately address post-exertional malaise (PEM). —Claimed that an outsized portion of the participants recovered spontaneously. —Does not account for remission periods for people with ME/CFS. —Used highly problematic and controversial language regarding “effort preference.” Read our response in its entirety here: https://lnkd.in/gCmRvc-Y

Read our latest publication about how the CVD-related education is crucially needed for the prevention of the CVD-related mortality. Thanks for the team!

Save the Date: October 23 - QuidelOrtho Science Bytes Presents: "Spotlight on syphilis: Breaking the chain with early detection.” Syphilis rates in the U.S. have surged 76% from 2018 to 2022, creating a nationwide public health challenge. Join Dr. Lily Li, Senior Director, Medical, Scientific & Clinical Affairs at QuidelOrtho, as she discusses: - The rising prevalence of syphilis and congenital syphilis - Importance of maternal testing to prevent vertical transmission Syphilis testing strategies, including the CDC-recommended algorithms - How laboratories play a pivotal role in early detection and reducing infection rates Don't miss this crucial episode on combating the syphilis epidemic. #SyphilisAwareness #PublicHealth #MaternalTesting #LaboratoryMedicine

📣Mariangela Pellegrini is part of Panel 1 of the first International Conference on Sickle Cell Disease in Lusophone Countries, in Lisbon #today. 🎯She is pesenting the updated second version of the anonymous survey to assess the points of view of people living with Sickle Cell Disease (patients, parents of patients, caregivers, partners, siblings) on how to improve outcomes in SCD: https://lnkd.in/df5CcGwP ℹ️Discover more about the initiatives of the ERN-EuroBloodNet (European Reference Network on Rare Hematological Diseases) here: https://bit.ly/3xfohvQ #ERNeu #ERNs #HealthUnion #EU4Health #ShareCareCure #WorldSickleCellDay European Health and Digital Executive Agency (HaDEA) European Commission EU-HEALTH Greater Paris University Hospitals - AP-HP Hospital Universitari Vall d'Hebron Vall d’Hebron Institute of Research (VHIR) - Vall d'Hebron Institut de Recerca CCBD_VH Research Université libre de Bruxelles Pierre FENAUX Gulbis Béatrice María del Mar Mañú Pereira Greater Paris University Hospitals - AP-HP Hôpital Erasme - Cliniques Universitaires de Bruxelles APPDH

🎙️ Danilo Buonsenso, a Paediatrician expert in #PaediatricInfectiousDiseases, Long COVID, and Point-of-Care Ultrasound, shares his thoughts on the ESPID community. 📌 ¨ESPID offers me the opportunity to see in person the most important reseachers in the field of Pediatric Infectious Diseases, both those that contributed to create and implement the specialty during the last decades, but also new clinicians that are contributing to the lastest development.¨ Learn more about upcoming ESPID Meeting ➡️ https://bit.ly/3zDQfNe #ESPID2024

Have you been diagnosed with #myocarditis (inflammation of the heart muscle) from 2020 - 2024? If so, we are seeking people like YOU from across the community to help advance medicine! Renown Health Institute for Health Innovation’s Healthy Nevada Project is seeking participants for a research study that is looking into the genetic connection between myocarditis and COVID-19 vaccination or infection. Researchers and scientists with the University of Nevada, Reno and Helix hope to identify and understand genetic predispositions for patients with myocarditis. Never participated in the Healthy Nevada Project but want to contribute to this study? Please call 775-982-6914 or email RenownIHI@renown.org for next steps. If you are enrolled in the Healthy Nevada Project, this means you have previously consented to contribute your data to science so you’re all set – you don’t need to sign-up again!  If you need to sign our most current consent form, our study team members will reach out to you to help you through this process. #AmericanHeartMonth #HealthyNV #GeneticResearch 

This new paper from the NIH RECOVER program delves into the impact of COVID-19 on kidney health in children and adolescents under 21 years old in the United States. - Study includes 864,637 children and young people divided into three groups: those with pre-existing chronic kidney disease (CKD), acute kidney injury (AKI) during the initial COVID-19 infection, and those without prior kidney issues. The findings indicate that children and adolescents with COVID-19 face a higher risk of developing severe kidney problems later on, irrespective of any pre-existing kidney conditions. This research underscores the critical importance of preventing COVID infections and reinfections in children, emphasising the necessity of monitoring kidney function in paediatric COVID-19 patients. Furthermore, it reinforces the significance of accurate diagnosis, appropriate healthcare access, and the maintenance of medical codes on patient records, all crucial for ensuring optimal care pathways for children. Let's work towards addressing these crucial needs. Long Covid Kids is there to help. Link to the study: https://lnkd.in/eiW7m8uf #KidneyFunction #Children #Paediatric #LongCovid #LongCovidKids #CleanAir

Our full-slide summary of the Kwon et al. study “Comparative Risk of Incident and Recurrent Acute Anterior Uveitis across Different Biological Agents in Patients with Ankylosing Spondylitis” is now live on the #IMIDforum! 🚨 The Immune-Mediated Inflammatory Disease forum is a valuable resource for keeping you up to date with hand-selected axSpA publications. Visit the website to view this content and more! 📈 🔗 https://lnkd.in/eqwxACtX #AS #bDMARD #uveitis