The Rose, nonprofit breast health organization’s Post

The LLS annual report is out! Want to learn more about what we do, where the money goes, and why supporting LLS is so important? Please check out the report.

Such a joy to speak with Liam Eves yesterday about my story as a patient, caregiver, and advocate, how it fuels my work as newly appointed Chief Patient Officer at Parexel to shift the paradigm towards patient co-creation of #clinicaltrials, and why it's so important to meet patients' needs in #drugdevelopment. We will drop the link to the podcast episode when it's ready, but in the meantime, check out the great work of three of my favorite industry advocacy groups whom I gave "shout outs" to during our conversation: National Health Council, CISCRP, and DIA. #PatientsFirst

🚀 Exciting Episode Alert! 🚀 🎙️ New episode of *Renal Diet HQ* is live, and trust me, you do not want to miss this one! In our latest episode titled **"What I Wish I Knew Sooner About CKD: Research and Advocacy,"** I dive into the importance of staying informed and being an advocate for your own kidney health. 🦸♀️ Here are 3 key takeaways you don't want to miss: - **Knowledge is Power:** Staying up-to-date with the latest CKD research can open doors to new treatments and therapies that could make a significant difference in your life. - **Be Your Own Healthcare Superhero:** Advocacy means asking tough questions, challenging your healthcare team, and fighting for the best care possible. Don't be afraid to be the Captain America of your kidney health! - **Advocate for Others:** Beyond your own health, lend a hand and raise awareness about CKD. Your voice can make a difference for those who can't speak up for themselves. Let's make a pact to stay informed and stand up for what we believe in. Together, we can turn knowledge into our superpower! 📲 Tune in now at https://lnkd.in/gTqFypXF #RenalDietHQ #CKD #KidneyHealth #ResearchAndAdvocacy #HealthcareSuperhero #StayInformed #BeAnAdvocate

Have You Seen It Yet? Our latest episode with Dr. George Ackerman, PhD, JD, MBA, is a must-watch! Learn about his advocacy for Parkinson’s & Dementia awareness and his ongoing journey to find a cure. Catch up now: https://lnkd.in/ef7vJHe4 Your support means the world to us. Let's raise awareness together! #TogetherForSharon #ParkinsonsAwareness #DementiaAwareness #ServingSeniorsPodcast

In considering any treatment process, it’s always paramount to consider the patient need. In our third psychedelics-focused podcast, we spoke to Kathryn Tucker, JD, the National Psychedelics Association's Director of Advocacy. Her focus today is on expanding psychedelic-assisted therapy. As she shared, “the missing tool in the palliative care toolbox has been an effective tool for relief of non-physical suffering. And that's what psilocybin assisted therapy offers.” Tune in to learn more about how psychedelic-assisted therapies are impacted by federal and state policy, and what we can do to help move the needle for patients in need in this crucial time: https://lnkd.in/eEtSXSdi #psychedelics, #MDMA, #psilocybin, #mentalhealth, #therapeuticuse, #patientcare, #publichealth, #drugregulation

Continuing to get word out about need for DEA to open a path to access to psilocybin for patients w/life-threatening illness, either pursuant to Right to Try laws or by rescheduling psiloycbin from Schedule I to II.

Cholangiocarcinoma can be hard to explain, so our Cholangiocarcinoma Foundation team works on ways to simplify information so we can educate the community about symptoms, diagnostics, talking to your provider, treatments, and more. As part of CCA Awareness Month, we developed this one-pager: https://lnkd.in/guJBYD-X. We encourage you to become familiar with it, and if you are interested in advocacy, please consider sharing it in your communities. You can get ideas on where to share it via our toolkit (https://lnkd.in/gWAtKfwH) #beclearoncca #ccaawareness #ccahope #cholangiocarcinoma #patientadvocacy

Physicians today face immense challenges, but change is possible. In this episode, the Founders of DocNation dive deep into the issues and how we're making a difference. Tune in for insights, advocacy, and a path forward for physicians. Subscribe now and be part of the change! #HealthcareRevolution #TheDocNationPodcast #PhysicianAdvocacy #DocNation

Join me in increasing visibility about the unique needs and concerns of those navigating solo! https://lnkd.in/eWGCP3K5 #soloagingvisibilityday #navigatingsolo #savvyday #soloaging #HealthcareAdvocacy #patientadvocacy #soloagingsupport #soloagers

The final episode of the Clive Treacey Review Podcast discusses the groundbreaking review published in December 2021. Learn about the 52 recommendations that could revolutionise NHS care and how Clive's family remains at the heart of advocacy and change. https://lnkd.in/e4UW_gWk #EducationForAll #HealthcareJustice #SystemicChange #HealthcarePolicy