TransImpact’s Post

Today, let's unite against Alzheimer's! September 21st marks World Alzheimer's Day, a global initiative to raise awareness, support research, and advocate for those affected by dementia. Let's break the stigma surrounding Alzheimer's and dementia! 5 ways to show support: 1. Educate yourself and others. 2. Share your story or listen to someone else's. 3. Support research and advocacy organizations. 4. Volunteer and help caregivers. 5. Wear purple to show solidarity! Let's make a difference together! #WorldAlzheimersDay #AlzheimersAwareness #DementiaSupport #BreakTheStigma #PurpleForAlzheimers"

I appreciate today's article by Dana Territo in The New Orleans Advocate about our efforts at the Louisiana State Capital. The State Advocacy Day, organized by the Alzheimer's Association Louisiana Chapter and Alzheimer's Impact Movement (AIM), brings advocates from Louisiana together to meet with policymakers. Their goal is to share personal stories and push for policies that enhance the lives of those affected by Alzheimer’s and other forms of dementia. This annual event, which occurred on April 25 this year, saw Governor Jeff Landry declaring it Alzheimer’s and Related Dementias Awareness Day. Advocates like me, who have lost family members to the disease, emphasized the urgent need for support and research. They rallied on the Capitol steps, urging legislators to support Senate Bill 46, which aims to establish an advisory council to prioritize Alzheimer’s and related dementias as public health concerns in Louisiana. Senate Bill 46, if passed, will create the Alzheimer’s and Related Dementias Advisory Council, fostering collaboration between private sectors and state agencies. This initiative aims to raise awareness, improve healthcare, and support caregivers amidst the growing impact of Alzheimer’s on Louisiana's health systems and budgets. With projections indicating a significant increase in affected adults by 2025, addressing Alzheimer’s is crucial. The Alzheimer's Association® and AIM are committed to ongoing advocacy efforts, working with policymakers to tackle the dementia crisis and ensure coordinated responses at the state level. To learn more about their advocacy work and efforts in Louisiana, visit alzimpact.org/louisiana. #AlzheimersAdvocacy #StateAdvocacyDay #ENDALZ #ENDALZLA The Times-Picayune | Nola.com https://lnkd.in/gt8XndVe

Discover the resilience and advocacy of Phyllis Fehr in IG Wealth Management's recent webinar. Diagnosed with early-onset Alzheimer's at 53, Phyllis's story is one of courage and empowerment. Tune in to hear her incredible journey of recognizing the early stages of dementia, the importance of advocacy, financial planning to support living with dementia and maintaining levels of independence. Available on Demand. https://lnkd.in/gAHPxnxT #IGWealthManagement #PhyllisFehr #LivingwithDementia #DementiaAdvocate #AlzheimersAdvocate #Webinar #FinancialPlanning #YEGFinancialPlanner

Seventy three percent of people with I/DD live with a family caregiver and 23% of those caregivers are over the age of 60. The Self Directed Advocacy Network (SDAN), while working to address current system challenges is also working with other organizations and advisors to ensure supports and services are in place long-term, across the lifespan especially as natural caregivers age. People with I/DD, their natural caregivers and other family members, CCS, Support Brokers and others who may be involved in future planning are invited to Take This Survey  and help document the needs, challenges and barriers of the Maryland I/DD community and their existing care giving team and discern resources needed for creating sustainable later years transition plans and pathways as natural caregivers age. Your responses will inform policy, program and planning for sustainable/long-term, person-centered support and services.   If you are an adult with I/DD, a natural caregivers or other involved family member, CCS, Support Broker, or other person who may have responsibilities for future planning, Take The Survey Today! And inform how we better plan for the future. https://lnkd.in/eAMvksS7

We love partnering with organizations that we believe in! ❤️ We created Custom Mini Death Decks for Compassion & Choices and included hand- selected cards focusing on advance care planning. We even created a new question focusing on dementia to align with Compassion and Choices robust dementia education and advocacy programs. It was such an honor to be creating a product just for Compassion and Choices, an organization that is so important to the end-of-life space! Compassion and Choices is now using these decks within the community for outreach and education. What is included in a Custom Mini Death Deck? ✔️ 16 cards selected from The Death Deck Themes include: Disposition, Healthcare and Advance Care Planning ✔️ Your company logo on the back of the box ✔️ Your personalized message on the back of the box ✔️ An insert card with your company information and messaging, personalized however you like. Interested learning more? Link in comments

Dementia in Ireland: A Growing Concern Did you know that approximately 64,000 people in Ireland are currently living with dementia? This number is expected to more than double to over 150,000 by 2045. At the Alzheimer Society of Ireland, we are dedicated to supporting those affected by dementia and their families. Here’s how we are making a difference: Support Services: Providing crucial services such as helpline, home care, and day care centres to assist families and people living with dementia. Awareness Campaigns: Raising awareness through campaigns and events like the Memory Walk, helping to reduce stigma and educate the public about dementia. Research and Advocacy: Supporting the development, delivery and dissemination of high-quality research and evaluation and advocating for the rights and needs of all people living with dementia and their carers. Together, we can make a meaningful impact on the lives of those affected by dementia. Join us in our mission to support, educate, and advocate! #AlzheimersFacts #Awareness

Big News in Alzheimer's Care! 🌟 Last month, Voices of Alzheimer’s unveiled a game-changing Bill of Rights! 📜✨ This is more than a list; it's a movement for the 6.7 million Americans bravely living with Alzheimer's. Key highlights on the Bill include: 👏 Respect & Dignity for Everyone 🚫 Say No to Discrimination 🕒 Quick Access to Diagnosis & Treatment 💊 Fair Medicare Coverage 🏥 Quality Care Everywhere This is a HUGE step forward in Alzheimer's advocacy! Let's rally behind this cause and make a real difference. 💪💜 Here is the article if you would like to read more: https://bit.ly/3Obkxk8 #AlzheimersAwareness #ChangeMakers #HealthForAllLast #camellaliving #camellaatcopley #memorycare #assistedliving #alzheimerscare #dementiacare #momentsofjoy #ComeHomeAgain

Empowering the Sickle Cell Community: The Warriors Project Initiative As a proud Sickle Cell Warrior, I understand firsthand the unique challenges that come with this journey. It’s not just about enduring physical pain; it’s about resilience, hope, and the pursuit of a full life. This is why I am thrilled to be part of the Warriors Project Initiative. The Warriors Project Initiative is more than just a cause; it is a mission dedicated to improving the lives of children living with sickle cell anemia. We aim to provide educational resources, health support, and emotional encouragement to empower these young warriors, ensuring they are not defined by their condition but by their potential. Our work is rooted in advocacy, raising awareness about sickle cell disease, and offering practical solutions to the challenges faced by warriors and their families. By fostering a supportive community, we ensure that these children feel seen, understood, and valued, helping them build confidence to chase their dreams. Through education and health initiatives, we create a brighter future for every warrior, breaking down barriers and rewriting the narrative surrounding sickle cell disease. Join me in supporting this cause, because together, we can make a difference in the lives of these warriors, one step at a time. #SickleCellAwareness #theWarriorsProject #EducationForAll #HealthcareAdvocacy #WarriorSpirit

Why Attending KRACON 2024 Mattered for Us; Our time at KRACON 2024 was a significant milestone for the Ronald Kasyoka Foundation (RKF). Here's why it was so important: 🌍 Networking – We connected with healthcare professionals, researchers, and advocates dedicated to improving kidney care. 💡 Learning – We gained insights into the latest advancements in dialysis and kidney disease management, empowering us to bring new ideas back to our work. 🗣️ Raising Awareness – We shared the importance of psychosocial support for dialysis patients with a specific focus on children on dialysis and their caregivers, an often overlooked aspect of kidney health. 🤝 Collaboration – By being part of key discussions, we opened doors for new partnerships that will help us extend our reach and impact. 🚀 Advocacy – We continue to advocate for better policies and access to holistic care for kidney patients. KRACON 2024 strengthened our resolve and equipped us with more tools to continue making a positive difference in the lives of kidney patients and their families. Together, we bring hope and healing! #KRACON2024 #KidneyHealth #DialysisSupport #PsychosocialCare #RonaldKasyokaFoundation #HopeAndHealing #HealthcareAdvocacy

Low birthweight in Boston is directly correlated to income and therefore race. Predominantly BIPOC and low income neighborhoods such as Mattapan and Dorchester experience the highest rates of low birthweight in all of Boston. GenUnity Community Partner, Vital CxNs, is a nonprofit forging partnerships in collaboration amongst existing resource providers to tackle the city’s persistent, pervasive and multifaceted health inequities. Vital Cxns does their work through various key initiatives: Neighborhood Food Action Collaborative, Community Health Hubs, Maternal Health Equity Project, Community Convos, and COVID-19 Vaccine Equity and Youth Activation. Learn more about Vital Cxns’ work and how to get involved via LINK IN COMMENTS! Interested in exploring the state of Boston’s Maternal and Infant Health? We’ve linked the Health of Boston 2023 report in the LINK IN COMMENTS. For those looking to get more civically engaged, stay up to date on community happenings by signing up for GenUnity’s monthly newsletter (LINK IN COMMENTS). Thank you to the amazing folks at Vital Cxns like Ariel Childs, Ayanna B. Polk, and Rich Joseph for leading this important work! #maternalhealth #infanthealth #communityinitiative