Ultragenyx’s Post

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Since our founding days, our mission has been to support and empower those affected by #XLinkedHypophosphatemia (XLH), a condition that often emerges in childhood. On this #XLHAwarenessDay, we continue to champion the strength and resilience of the XLH community. Their stories inspire us, and we #GoBeyondEveryDay to improve the lives of those living with XLH. Explore more about XLH and the experiences of those impacted by this #RareDisease: https://lnkd.in/eRYGgja5 #XLHAwarenessMonth #XLHAwareness #XLHStrong

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William Kondratiuk, Jr.

Key Account Manager of Sales - East Coast

1mo

Was a pleasure to work to find these patients and bring them answers and understanding.

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David Silas Connor

RDDT: We have SOLVED the Rare Disease diagnostic odyssey PROBLEM with a compliant commercial patient centric SOLUTION, that closes a WIDE care gap for PROVIDERS and generates important new revenue for HEALTHCARE

1mo

See finding-rare.com to do more for XLH patients by helping them get an early and accurate diagnosis!

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