Vitaccess’ Post

This morning, Sam Llewellyn our Director of Patient-Centered Research, will be presenting a second oral session at the 31st Annual ISOQOL Conference, titled "Development of two conceptual models to describe the patient and caregiver reported impacts of living with X-linked myotubular myopathy (XLMTM)". Find him at the Oral Session 302: Caregivers and Patient Support II, at 10:42 AM-10:59 AM CEST. Contact us today at https://bit.ly/4eqlnol if you will be attending the conference and would like to meet with a member of our team.

This afternoon, Sam Llewellyn, our Director of Patient-Centered Research, will be presenting an oral brief session on "Leveraging SMS for patient-reported data collection" at the 31st Annual ISOQOL Conference in Cologne, Germany. Find him at the Oral Brief Session 202: Implementation and Quality Improvement, at 2.38-2.46 PM CEST. Contact us today at https://bit.ly/3XUaXpV if you will be attending the conference and would like to meet with a member of our team.

It's almost time! Mark Larkin PhD and Anna Richards are heading down to Savannah, Georgia for the American Association of Neuromuscular & Electrodiagnostic Medicine (AANEM) conference starting next week. Looking forward to connecting and discussing our syndicated patient registries in #MG and #CIDP. Get in touch if you’d like to meet up!

Next week, Sam Llewellyn our Director of Patient-Centered Research, will be presenting two oral sessions at the 31st Annual ISOQOL Conference. Will you be there? Session 1: Leveraging SMS for patient-reported data collection (B202.7) Session date: Tuesday, October 15; 2.38-2.46 PM CEST Session 2: Development of two conceptual models to describe the patient and caregiver reported impacts of living with X-linked myotubular myopathy (XLMTM) (302.2) Session date: Wednesday, October 16; 10:42 AM-10:59 AM CEST Contact us today at https://bit.ly/3Mzj7P1 if you will be attending the conference and would like to meet with a member of our team.

🚀 Exciting News! RUTISS and RUTIIQ now available as eCOA at Vitaccess 🚀 We’re thrilled to announce that Vitaccess, in partnership with InSpired Health Outcomes Limited, is the first eCOA provider to offer the patient-reported outcome measures RUTISS and RUTIIQ, developed by PARED Insights Ltd. Vitaccess will use the measures to gather crucial patient data of those living with recurrent urinary tract infection (rUTI) on behalf of clients. Applying our Vitaccess Real™ platform, we offer comprehensive real-world evidence (RWE) study design and delivery to support regulatory and health technology assessment submissions, inform product positioning or characterize the impact of diseases and treatments. With this partnership, RUTISS and RUTIIQ can now be rapidly deployed in sponsor studies to provide meaningful insights. David Churchman, Founder of InSpired Health Outcomes Limited adds: “The rapidly growing recognition and adoption of the RUTISS and RUTIIQ for use in rUTI studies has driven the demand to have the instruments in Vitaccess' eCOA library. With this partnership the RUTISS and RUTIIQ rUTI PRO instruments are now readily available for rapid (“off the shelf”) deployment into sponsor studies.” #eCOA #RWE #rUTI #PatientReportedOutcomes #HealthcareInnovation

Mark Larkin PhD and Anna Richards are heading to the American Association of Neuromuscular & Electrodiagnostic Medicine (AANEM) this month. Get in touch to discuss our syndicated patient registries in MG & CIDP. #patientcenteredoutcomes #realworldevidence #neurology

Our team had a fantastic time catching up on exciting business developments in sunny London last week - with some lovely pictures from Anna as a reminder!

This #MigraineAwarenessWeek, we're looking back at our targeted review of the key characteristics of global patient-reported and clinical data migraine registries. Migraine is the third most common condition in the world, with an estimated global prevalence of one in seven people. Despite being recognized as one of the most disabling lifetime conditions, awareness and understanding is low. Patient registries are a valuable source of real-world data for deep and granular insights into the impact of health-related conditions. Find out more here: https://hubs.ly/Q02Ky8Sv0

Will you be attending this year's 31st Annual ISOQOL Conference, 13-16 October in Cologne? Sam Llewellyn, our Associate Director of Patient-Centered Research, will be presenting two oral sessions at the conference: Session 1: Leveraging SMS for patient-reported data collection (B202.7) Session date: Tuesday, October 15; 2.38-2.46 PM CEST Session 2: Development of two conceptual models to describe the patient and caregiver reported impacts of living with X-linked myotubular myopathy (XLMTM) (302.2) Session date: Wednesday, October 16; 10:42 AM-10:59 AM CEST Contact us today at https://bit.ly/3MuEp0q if you will be attending the conference and would like to meet with a member of our team.

Sam Llewellyn, our Associate Director of Patient-Centered Research, will be presenting two oral sessions at this year's 31st Annual ISOQOL Conference, 13-16 October. Session 1: Leveraging SMS for patient-reported data collection (B202.7) Session date: Tuesday, October 15; 2.38-2.46 PM CEST Session 2: Development of two conceptual models to describe the patient and caregiver reported impacts of living with X-linked myotubular myopathy (XLMTM) (302.2) Session date: Wednesday, October 16; 10:42 AM-10:59 AM CEST Make sure to check out Sam's sessions if you will be attending the conference - and if you are interested in meeting with a member of our team, contact us today at https://bit.ly/4dOBbRv to set something up.