Oscar is a ten year-old fan with a rare blood disorder called ITP, which affects 2,000 people in the UK.
After being diagnosed he lost his confidence to play football, until his favourite player Hugo Bueno joined him for a birthday kickabout 💛
By donating plasma, you can help children like Oscar and treat fifty diseases. Sign up here: bit.ly/4c4QjswNHS Blood and Transplant
Oscar is 10. He's just turned 10. He's quite a shy child but loves life. He enjoys going to school, he enjoys playing with his friends. He's just got a zest for life and and we love him. About 2 1/2 years ago now, the seven kick around. And a little bit after people have gone home, Oscar says. Dad, I've got a mark on my leg and. So we had to look at it and we were quite shocked really. It was like the size of the football, his whole thigh was basically black and blue. Obviously were quite worried about it and it took a while to go down, didn't it? And we've noticed more. Made an appointment with the doctor and she referred us then to the hospital. And then diagnosed him, what with what we know now is ITP, which is a condition where he's got very low platelets and he bruises easily, he bleeds easily. It was really, really quite frightening, isn't it, to start with, you know, just to think that if he could have a small cut at school and fall over, haven't asked you Graves or whatever, and he could basically bleed out. So he started his what has been an ongoing treatment. Started with steroids to start with which lifted his plates which were down to two, which is dangerously low. That didn't that responded but went straight back down so that wasn't going to work, which is then we went to the ID treatment where he had his infusion in hostel, had two of those. Now he's on a pill treatment now which brought him back up to safe levels, which is great. And in the meantime he's been quite worried about things. He's a bit of a warrior. He hadn't got the confidence to really go playing football again, which was a real shame. It was like he was really enjoying it. He said to me the other week he went, I just want to be a normal child. And he is like in our in our minds and, you know, in every other sense of the word. But when he says that, I think he just means. I don't want to have to keep going for these hospital appointments and I just want something to make me feel better and the same as everybody else. So it's yeah. Who is your favorite Wolves player? Brianna, If that's how I pronounce it, you go when I. To Oscar. I hope you are OK. I heard you are a big Wolves fan. I like to play some football with you so you can show me your skills. See you soon from Hugo Bueno. Well, we're going to a fancy house called Oscar. They told me about his story and he really likes football and just the fact that he he's not confident to play with his friends, he's he's really frustrating so. We're gonna go there and make him. He'll feel better and hopefully, yeah, that's a good time with him and I make him smile. Let's give Oscar a little surprise. Let's go. Hello my friend. Hello. How are you? OK, give me a hug. You wanna play some football with me? You ready to play? Let's go. So which position do you play? I normally, I normally like goalie because depending well goalie is just painful a bit because it's basically like. Bit painful and you'll be on your hands. It's cold. What is when, like, you get hit with the ball? Yeah. You know, when I start playing football, my first position was going goalie. Yeah. Then I changed because it was a little bit boring just in the golf. Do you know the Ravana? Rabona. This one. How to do it right? Oh oh. Give me 5. Unstable. I'm going to let you score that is here this time. Boy. God make. We're just, you know, celebration, this one. OK, this is for you, Oscar. You want me to sign it for you? These conditions are about 2000 while the UK, which is obviously very small percentage, but all plasma treatments are quite rare and as a result it doesn't sort of get the limelight, you know, blood transfusions do. So you know anyone who does it, fair place and it's brilliant. Obviously it's vital and it's definitely helped us 100%. Thank you to everyone that does it because they help people like Oscar, so thank you.
If Oscar is interested in connecting with a refugee boy his age, one living in a refugee camp, his parents can reach out to me and we’ll add him to our SportzBudz program at Refugee Sports Nerwork. In this program we provide a match for him (and his family) and then the families zoom together to build bonds and friendships. After we make the introduction, we step away and let you do as you wish with your SpirtzBudz family. Thank you.
One time Business Owner in both the Haulage Industry and Retail Sector.
Business Development/Sales Manager in Print and Mailing Industry.
New,Used and Mobility Car Salesman.
Crescent Hotels & Resorts and the Williams Family have come together to match donations up to $1,000 to the JDRF Mid-Atlantic Chapter 💙 JDRF One Walk 💙 TODAY!
I’m raising money for the JDRF One Walk because I believe in a world without type 1 diabetes (T1D). T1D is a serious autoimmune disease that impacts millions of people and cannot be prevented or cured – YET! People who live with T1D regularly monitor their blood-sugar level, inject or infuse insulin through a pump, and carefully balance those doses with eating and daily activities to prevent uncomfortable, and even dangerous, side effects. Every single day.
JDRF is leading the fight against T1D by funding research, advocating for policies that accelerate access to new therapies, and providing a support network for millions of people around the world impacted by T1D. But they can’t do it without our support.
If you feel so inclined, I hope you will support this great cause! No donation is too small, and every dollar truly makes a difference. Thanks for helping us reach our team goal!
https://lnkd.in/eSiFDyMW
There are just over 24 hours left to donate before the end of the financial year ❤️
Living with a chronic disease like cystic fibrosis (CF) often means frequent hospital stays, which can last at least two weeks and involve intense physiotherapy and strong antibiotics administered through an IV drip. On average, people with CF will have two hospital stays a year, though some may have as many as six. The length of stay depends on the reason for admission—chest infections usually require a minimum of two weeks of intravenous antibiotics, but other admissions may be shorter.
For children like Heath diagnosed with CF, this also means parents need to take time off to be there for their children. At Cystic Fibrosis Australia, we are constantly striving and advocating for a better future where people with CF experience a higher quality of life, less time in hospital, and ultimately, finding a cure.
Please support our cause by donating this end of the financial year. All donations over $2 are tax-deductible.
Donate Here: https://bit.ly/4e3VnPJ
💪 Together, we can make a difference. 💪
Did you know 40,000 people are newly diagnosed with Type 1 diabetes EVERY year! Join us on our mission to empower kids in managing their diabetes from day 1 of diagnosis. Donate and spread the word!
Check out Drew’s story here: https://lnkd.in/eYMXUZAa
Please consider donating today and any support you can provide, even if it's simply helping us to get the word out.
Forward this to doctors, educators, nurses, organizations, clinics, friends, and families whom you think would be willing to support this effort. With your help, we can get the T1D1 (Type 1 Day 1) App back up in the App Stores and help make the lives of so many people just a little easier.
Please read the story about how this critical app can be helping those with Type 1 Diabetes, get the help they need in controlling this terrible disease. However, additional funds are needed to get the necessary approvals to bring this app back for free to help people with this terrible disease.
https://lnkd.in/eN6qqHjS
Did you know 40,000 people are newly diagnosed with Type 1 diabetes EVERY year! Join us on our mission to empower kids in managing their diabetes from day 1 of diagnosis. Donate and spread the word!
Check out Drew’s story here: https://lnkd.in/eYMXUZAa
In Spring this year, a tiny life entered the world. My grandson, Harlow, was only 10 days old when he was diagnosed with Bacterial Meningitis. It was a devastating blow to our family. Seeing his fragile body surrounded by tubes, needles, and medical equipment, and witnessing the anguish of his mother, was a heart-wrenching experience that no one should ever have to endure.
Weeks have passed since then, and Harlow has overcome the immediate threat of meningitis. But our journey is far from over. The long-term effects of this disease may not manifest for months or even years, often leaving children with cerebral palsy and other brain-related complications.
We can only hope that Harlow will be one of the lucky ones who escapes any lasting damage. The truth is, we don't know what the future holds for him. But we do know that research holds the key to improving outcomes for children like Harlow.
By supporting the Meningitis Research Foundation, you can make a difference in the lives of countless families affected by this deadly disease. Thanks to ongoing research efforts, treatment options have already evolved and improved. And perhaps, just perhaps, Harlow's story will have a happy ending because of the protocols developed through research.
But without continued funding for research and treatment processes that stem from it, many more lives will be lost to this silent killer.
Join me in participating in the Great North Run 2024 - a half marathon dedicated to raising funds for the Meningitis Research Foundation. Together, let's make sure that no family has to go through what we've experienced with Harlow.
Our goal is to raise £10,000 for this vital cause. Every pound brings us closer to better treatments and brighter futures for children like Harlow.
Please donate generously and help us turn tragedy into triumph.
Click this link to donate via just giving, it’s easy: https://lnkd.in/eyUquM54
Being diagnosed with diabetes as a teenager can be more than overwhelming. Crème de la crème in this timeframe, is having to dose your insulin based on what you eat, all day - everyday😵💫🔄.
Drew has developed a free app #T1D1 that would do the calculation and get this burden off many shoulders💪.
To clear his app with FDA, together with the brilliant team of Comerge AG, they need some crowd-funding.
Learn more about this amazing project, spread the word and donate via this link to empower kids manage their diabetes🤩!
https://lnkd.in/ea-w7BSy
Did you know 40,000 people are newly diagnosed with Type 1 diabetes EVERY year! Join us on our mission to empower kids in managing their diabetes from day 1 of diagnosis. Donate and spread the word!
Check out Drew’s story here: https://lnkd.in/eYMXUZAa
This has to stop!
We have so many treatments available
Asthma still continues to kill Australians every day
Talk to your GP about your asthma; if you wake up at night or early in the morning with asthma symptoms (coughing, wheezing, shortness of breath or tightness in your chest...it is time to get your asthma reviewed.
If you use your reliever more than twice a week time for an asthma review
If you have needed to go to the emergency department for your asthma, ask your GP to refer you to a respiratory doctor experienced in asthma for a review
Ask your local pharmacist about your asthma medications
Get your inhaler technique checked
Take your preventer every day even if you don't have symptoms! It does what it says! It prevents!
Know your asthma plan
Dont ignore your symptoms
Centenary Institute Asthma research
#stopasthmadeaths#asthmamatters#ittakesavillage#preventers#asthmaplan#specialistcare
Harry was only 10 when his dad died as the result of an asthma attack.
He was at a restaurant with his family when the attack came on. He didn’t have his reliever on him and he was taken to hospital in an ambulance.
“When I tell people how my dad passed away, they’re shocked that asthma can kill you,” Harry said.
“To many people, asthma is just something that, ‘Oh, you get shortness of breath. Sometimes you can’t run. It doesn’t kill you’. People are shocked to find out that it can and does – about 400 Australians a year.”
“My dad should have gotten better preventative care. Who knows what that may have done for him?”
“I don’t want other children to lose a parent – or their own lives – when death could be avoided with better asthma management, education and research.”
This year, your donation of just $10 could be the contribution that changes everything for people with asthma. Donate now: https://buff.ly/3WnEkS7
As a chronic childhood and then adult asthma sufferer that had asthma bad enough for periodic hospitalisation, I totally relate. I had no idea there were so many deaths.
I'd known since my twenties that I could take preventers, but I didn't bother because it was too much effort and the pay off didn't seem worthwhile.
All those steroids just to breathe just a little better, pfft! Plus why bother with a preventer when I can just take occasionally ventolin when I'm breathing badly. If it got really bad I knew the hospital could sort me out.
I wasn't totally head-in-the-sand. Whenever I went to get a script for my reliever, my GP would tell me that I should be taking preventers. Eventually I signed up for a field trial of new asthma drugs to see if I could replace my trusty ventolin. What an eye opener it was.
On this trial for combo reliever-preventer drugs I did breathe just a little better. But because the study went for some weeks, I noticed that the tiny bit of extra breath every day, every minute, led to better concentration, easier mornings, brighter vision, and generally more energy available for other things.
What a light bulb.
Sustained use of preventer is the pay-off! Not just temporary relief. Ventolin gives me my immediate breath back, but preventer gave me a quality of life that I didn't even know I was missing.
I still get asthma attacks. They're much less frequent. Whilst an attack is never totally predictable a lot of my triggers are much less sensitive. I still carry ventolin but I no longer worry about asthma like I used to. Always aware. I don't want to be out of breath, and I definitely don't want to go to hospital - particularly in our world-class, but chronically over-worked and over-stretched health system.
FELLOW ASTHMA SUFFERERS, get a diagnosis, you may or may not need daily meds. Better to know. At least you can manage the risk. I sure as heck don't want my friends and family seeing me in hospital for something I could have prevented.
https://lnkd.in/ecQctyxA?
Harry was only 10 when his dad died as the result of an asthma attack.
He was at a restaurant with his family when the attack came on. He didn’t have his reliever on him and he was taken to hospital in an ambulance.
“When I tell people how my dad passed away, they’re shocked that asthma can kill you,” Harry said.
“To many people, asthma is just something that, ‘Oh, you get shortness of breath. Sometimes you can’t run. It doesn’t kill you’. People are shocked to find out that it can and does – about 400 Australians a year.”
“My dad should have gotten better preventative care. Who knows what that may have done for him?”
“I don’t want other children to lose a parent – or their own lives – when death could be avoided with better asthma management, education and research.”
This year, your donation of just $10 could be the contribution that changes everything for people with asthma. Donate now: https://buff.ly/3WnEkS7
Your act of donating blood could be life-changing for someone battling a serious illness or injury. This World Blood Donor Day, your simple yet profound gesture can ensure a healthier and safer future for many. By incorporating #NATtesting, we can screen for infectious diseases more effectively, providing the safest possible blood supply. Your donation, combined with advanced testing, becomes a beacon of hope and a critical lifeline for those in need.
To understand the link between safe blood transfusion and spread of infectious diseases, watch: https://lnkd.in/dy7bsavM#Roche | #ValueOfDiagnostics | #WorldBloodDonorDay | #BloodDonation | #BloodSafety | #IPledgeRED
Did you know that after you donate blood, it goes through a rigorous testing process?
Step 1: Your blood sample undergoes comprehensive lab tests to detect potential infections and diseases.
Step 2: We determine your blood type and check for compatibility.
Step 3: These measures ensure that we can provide safe and transfusable blood to those in need.
Step 4: Your generous donation doesn't just save lives - it also contributes to our ongoing research and development.
The Art of Crafting Solutions and Weathering Storms
4moIf Oscar is interested in connecting with a refugee boy his age, one living in a refugee camp, his parents can reach out to me and we’ll add him to our SportzBudz program at Refugee Sports Nerwork. In this program we provide a match for him (and his family) and then the families zoom together to build bonds and friendships. After we make the introduction, we step away and let you do as you wish with your SpirtzBudz family. Thank you.