World Duchenne Organization’s Post

⏰ On average, it takes 2.5 years from when symptoms of Duchenne muscular dystrophy (DMD) first appear to when the diagnosis is made. Parents often see symptoms much earlier, sometimes when their children are very young. One of the reasons for this delay is that doctors and healthcare workers do not recognize early symptoms of DMD. 🎈 This is why raising awareness on early symptoms is super important! Join us this September 7 on World Duchenne Awareness Day to improve awareness and understanding of Duchenne and Becker muscular dystrophy. *Originally, the global incidence of DMD was 1 in 3500 newborn boys. However, in countries with improved knowledge, genetic testing and counseling, this number has improved to 1 in 5000.

Zalan EGYED

I am a solution-seeking professional.

2mo

My son's name Dusan. He was born on 07.09. He lives with Duchenne. Interesting coincidences.

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