Zakiya Norton, Esq.’s Post

This particular day highlights the need, especially among minorities, for more organ, eye, and tissue donors. #estateplanning #estateplanningattorneys #planyourestate #willsandtrusts #probate #livingtrust

In this project, we are seeking to analyze factors that influenced organ donation and transplantation before, during and after the Covid-19 pandemic! Specifically, we will be focusing on: 🩺Specific clinical features of the donors 📊Outcomes of allocation procedures 📝Operational protocols and practices put in place to ensure safety and continuity of supply of organ donation. Follow us as we embark on this research journey! bravest-project.eu #WeAreBRAVEST European Health and Digital Executive Agency (HaDEA) #EU4Health #EUFunded #covid19research

Did you know that July is Cord Blood Awareness Month? This month raises awareness about the importance of preserving umbilical cord blood for potential medical use in the future. Cord blood is a valuable source of stem cells that can be used to treat various diseases and injuries. Consider learning more about cord blood donation and how it can make a difference in someone's life. #CordBloodAwareness #StemCells #UmbilicalCord #MedicalResearch #DonateLife

#WorldThalassemiaDay, observed annually on May 8th, aims to raise awareness about thalassemia, a genetic blood disorder characterized by abnormal hemoglobin production leading to anemia. The day serves to educate people about the causes, symptoms, prevention, and treatment of thalassemia. It also highlights the importance of early detection through genetic testing and counseling, as well as the significance of blood donations for patients undergoing regular transfusions. Various organizations, healthcare professionals, and individuals worldwide participate in activities such as educational campaigns, blood donation drives, seminars, and support group meetings to mark the occasion and support those affected by thalassemia. Through these efforts, World Thalassemia Day seeks to promote better understanding, support, and care for individuals living with thalassemia and their families. #Worldthalassaemiaday #thalassaemiadayAwarenss #beinghuman #donateblood #Savesomeoneslife #blooddonation

Worth hearing. An ethical perspective...

It’s Living Donation Week! Curious to know where organ transplants happen in Canada? Learn more in this infographic and explore our new web page that features 13 health system performance indicators, an interactive tool (ODT at a glance) and 2 other new infographics. Learn more about organ donation and transplantation data in Canada on CIHI’s new interactive web page: https://ow.ly/yXV350Rk9Na Learn more about international comparisons on the Global Observatory on Donation and Transplantation website: https://lnkd.in/g6TAvWke #LDW2024 #LivingDonationWeek #OrganDonation #Transplantation

Traditionally, phlebotomy has been used to lower hematocrit levels, aiming to reduce thrombosis risk. But is it the best approach?  Josef Prchal, MD, uncovered a pivotal shift in understanding PV with his 2021 study, “Iron Deficiency in Polycythemia Vera Increases HIF Activity and Transcription of Prothrombotic Genes.”   His research revealed that the real concern might lie not in high hematocrit levels but in the phlebotomy process itself. Surprisingly, it's associated with an increased risk of thrombosis in PV patients, potentially due to iron deficiency (ID) induced by repeated phlebotomies. This ID elevates hypoxia-inducible factors (HIFs), which, in turn, may upregulate prothrombotic genes.  This study not only challenges existing practices but also opens new avenues for managing PV, emphasizing the importance of careful consideration of phlebotomy's role. It highlights the critical need for ongoing research to refine treatment strategies. He furthered this study on iron deficiency in PV patients with MPN Research Foundation 2021-2023 MPN Challenge™ grant.  Your stories and support shape our strategy in what new and innovative research should be prioritized when finding better solutions for the MPN community.    Together, we can make a significant impact on the lives of those affected by PV.  Donate today: 

Today, Debra Silberg, MD PhD, CSO of Beyond Celiac, presented at the International Celiac Disease Symposium (ICDS) on "Highlighting US healthcare inequities in CD and their global implications." Additionally, a poster presentation on patient willingness in clinical trials for new celiac disease treatments was shared. Ensuring all voices are heard in the pursuit of celiac disease treatments is crucial, and we are honored to spearhead this conversation. #celiacdisease #autoimmunedisease #celiacawareness #celiacresearch #ICDS #glutenfreeliving #chronicillness #nonprofit #autoimmuneresearch

🌟 Empowering Hope: Join Us in Supporting Thymic Carcinoma Patients! 🌟 At Thymic Carcinoma Center, we are dedicated to making a difference in the lives of those battling thymic carcinoma. As a rare and often overlooked cancer, thymic carcinoma presents unique challenges for patients and their families. We believe that everyone affected deserves support, understanding, and access to resources that can improve their journey. Our mission is clear: to provide comprehensive support through advocacy, education, and direct assistance programs tailored to the needs of thymic carcinoma patients. Through collaboration with healthcare professionals, researchers, and the community, we aim to raise awareness, fund critical research, and offer a supportive network for those impacted. How You Can Help: Spread Awareness: Share our mission and educate others about thymic carcinoma. Donate: Every contribution helps fund patient support programs and research initiatives. Volunteer: Join us in making a direct impact on the lives of patients and their families. Partner: Collaborate with us to amplify our efforts and reach more individuals in need. Together, we can make a difference. Join Thymic Carcinoma Center in our commitment to supporting thymic carcinoma patients and their loved ones. Visit https://lnkd.in/gxHQBpyj to learn more about our initiatives and how you can get involved. #ThymicCarcinoma #CancerSupport #NonprofitOrganization #PatientAdvocacy #RareDiseaseAwareness #HealthcareSupport #CommunityImpact

2/2: 💙 For more information about CTNNB1 rare genetic disease, please visit CTNNB1 foundation https://lnkd.in/dxwieesf and CTNNB1 Connect & Cure foundation https://lnkd.in/d92rDUP2 websites and make a donation to support our common goal: finding treatment for ctnnb1. I also recommend you to visit a profile of my 2.5yo daughter Zofia with CTNNB1 syndrome on Fundacja Polsat website https://lnkd.in/d5jGSD-a. If you are a polish PIT tax payer, please allocate 1.5% of your PIT tax for purpose of my daughter - numer KRS: 0000135921, cel szczegółowy: ZOFIA CHEŁCHOWSKA 8434. There is also a possibility to make a donation. At this point we are focused on rehabilitation that should bring Zofia an improvement in mobility, coordination of movements and balance areas. #ctnnb1 #ctnnb1syndrome #CTNNB1Awareness #RareDiseaseAwareness #Hope #raredisease #jeansforgenes