Did you know? July is National Fragile X Awareness Month! #FragileX is a genetic condition that causes intellectual and developmental disabilities. It arises from a mutation in the FMR1 gene, which impacts the production of an essential brain development protein. Fragile X symptoms can vary but often include: 1. Delays in speech and language development 2. Learning difficulties 3. Behavioral challenges like anxiety and ADHD Early intervention and ongoing support can significantly improve the quality of life for individuals with Fragile X. At #MaxisHealth, we're building a digital health tool specifically designed to help manage #emotions, a common challenge for the Fragile X community. As individuals we can help: #Spreadawareness: Share this post to help others learn about Fragile X. #Supportorganizations: Donate to organizations like the #NationalFragileXFoundation that fund research and provide support to families. #Beinclusive: People with Fragile X can lead fulfilling lives. Let's promote inclusive workplaces and communities. #FragileX #FragileXAwarenessMonth #Inclusion #Community #mentalhealthawareness #NationalFragileXFoundation #MaxisHealth
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Since the WBP, an international nonprofit, was founded seven years ago, its mostly volunteer staff has been working hard to spread the word about sex-and-gender based differences in brain and mental disorders. Many have been listening, supporting, sponsoring and collaborating with us. At least 120 scientific and policy papers addressing sex-and-gender-based differences have been published since then. However, solving the questions as to why most Alzheimer’s patients are women or why more women are diagnosed with depression than men will take years of research. We need your help: https://gofund.me/d9c1e985 #WomensBrainProject #BrainResearch #FundResearch #FundBrainResearch
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🧬 Embracing Diversity and Raising Awareness on 8P Chromosome Day! 🧬 Today I am raising awareness for 8P Chromosome Day, a special occasion dedicated to promoting understanding and acceptance of individuals with chromosomal variations. As we recognize the uniqueness of each individual, let's take a moment to reflect on the importance of inclusion, education, and advocacy. 🌟 What is 8P Chromosome Syndrome? Chromosome 8p is a rare genetic condition with approximately 350 patients around the world and counting. A chromosome disorder typically impacts every cell in your body, not just in one organ of your body, but often your entire human system. Right now, science does not have the means to treat this condition. The good news is that the scientific community is making substantial progress. By learning more about this condition, we can foster empathy and compassion for those affected and their families. 🤝 Supporting Inclusivity On this day, let's pledge to create a world where everyone, regardless of their genetic makeup, feels valued and included. By embracing diversity, we can help individuals with 8P Chromosome Syndrome and other chromosomal variations thrive and contribute their unique talents. 🧠 Promoting Education Educational initiatives play a vital role in shaping perceptions and attitudes. Support organizations and initiatives that work towards researching and understanding chromosomal variations. By advancing our knowledge, we can empower families, healthcare professionals, and educators to provide the best care and support possible. 🗣️ Starting Conversations Initiate conversations about 8P Chromosome Syndrome with your colleagues, friends, and family members. Encourage open dialogue that promotes empathy, questions stereotypes, and fosters a greater sense of community. Together, we can create a more inclusive society. 🙌 Taking Action Consider supporting organizations dedicated to raising awareness and advocating for individuals with chromosomal variations. Your contributions, whether through volunteering, donations, or sharing information, can make a meaningful impact on the lives of those affected. Let's make 8P Chromosome Awareness Day a time of reflection, learning, and action. Join me in spreading the word and supporting those who inspire us every day. 💙🌍 #8PChromosomeAwareness #DiversityMatters #InclusionMatters #EmbraceTheDifference #EverleighRose🌹💕#8pinvdupdel #2pDeletion #VeoIBD #ACC #Chromosome8p #8pheroes #RareDiseases #CareAboutRare #ilove8p #project8p #Chromosome8p
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Today is World Alzheimer's Awareness Day. Since the beginning, Alzheimer’s Disease has been a key focus of the Women’s Brain Project. We are proud of the many milestones we have made in Alzheimer’s Disease research since our founding in 2017. This year, we took a significant step forward by establishing a foundation dedicated to advancing sex and gender precision medicine research for brain and mental diseases — including Alzheimer’s Disease and all forms of Dementia. We have come this far only thanks to the many generous collaborators, sponsors, partners, members and volunteers who have worked to support the work of the Women’s Brain Project. Together, we can make a difference in the field of Alzheimer’s Disease. If you would like to support us, please consider donating: https://lnkd.in/epBrMRP5 #NeverTooEarly #NeverTooLate #WorldAlzMonth #AlzheimersDisease #WomensBrainProject #Alzheimers #AlzheimersResearch #PrecisionMedicine #PrecisionCare #SexAndGender #SexAndGenderDifferences #Dementia #WorldAlzheimersDay
World Alzheimer's Awareness Day 2023
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Influencing Global Biopharma Health Policies | Advocate for Patient Centricity | Strategist in Stakeholder Engagement and Communications | Founder
Today is World Alzheimer's Day. 🧠 Alzheimer's disease is the most common cause of dementia. Women are disproportionately affected by Alzheimer’s disease, comprising approximately two-thirds of all Alzheimer’s patients as well as the majority of caregivers for Alzheimer’s patients. Learn more about our groundbreaking work on Alzheimer’s at the Women's Brain Project 👇 #WorldAlzheimersDay #WorldAlzDay2023 #WorldAlzheimersMonth #Alzheimers
Today is World Alzheimer's Awareness Day. Since the beginning, Alzheimer’s Disease has been a key focus of the Women’s Brain Project. We are proud of the many milestones we have made in Alzheimer’s Disease research since our founding in 2017. This year, we took a significant step forward by establishing a foundation dedicated to advancing sex and gender precision medicine research for brain and mental diseases — including Alzheimer’s Disease and all forms of Dementia. We have come this far only thanks to the many generous collaborators, sponsors, partners, members and volunteers who have worked to support the work of the Women’s Brain Project. Together, we can make a difference in the field of Alzheimer’s Disease. If you would like to support us, please consider donating: https://lnkd.in/epBrMRP5 #NeverTooEarly #NeverTooLate #WorldAlzMonth #AlzheimersDisease #WomensBrainProject #Alzheimers #AlzheimersResearch #PrecisionMedicine #PrecisionCare #SexAndGender #SexAndGenderDifferences #Dementia #WorldAlzheimersDay
World Alzheimer's Awareness Day 2023
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🌟 Today is Rare Chromosome Disorder Awareness Day! 🌟 Let's come together to raise awareness and show support for individuals and families affected by rare chromosome disorders. These unique genetic conditions can present a variety of challenges, but with increased understanding and research, we can improve lives and foster inclusivity. 🔬 What are rare chromosome disorders? Rare chromosome disorders occur when there are changes in the number or structure of chromosomes. These alterations can lead to developmental delays, physical disabilities, and health issues. Despite their rarity, they affect thousands of people worldwide. 🤝 How can we help? 🔹Educate: Learn more about these conditions and share knowledge to promote understanding. 🔹Support: Offer empathy and support to those affected and their families. 🔹Advocate: Push for more research funding and policies that aid individuals with rare chromosome disorders. 🔹Donate: Contribute to organizations dedicated to research and support for those affected. Let's use our voices to make a difference. Every small action counts! #RareChromoDay #GeneticAwareness #Inclusion #Support
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**Supported Content** Did you know that 2 out of 3 patients with #dementia and #Alzheimer’s disease are #women? And did you know that 80 percent of patients with #migraine are women? What if we add multiple sclerosis, depression, anxiety? And what if we told you that more than 80 percent of caregivers, paid or unpaid, are women? The list goes on… Due to a significant gap in medicine, #research, and #policy, women have received and continue to receive less-than-optimal medical care. The Women's Brain Foundation is tirelessly working to fill this gap and trying to understand and address the vulnerabilities of the female brain. They have established a research foundation that aims to tackle the impact of #sexandgender on brain health. Their ultimate goal is to establish a research institute with a clear focus on sex and gender #precisionmedicine, that will develop personalized therapies for females, males, and all gender spectra. Be part of the change and support Women’s Brain Foundation (WBF). Donate today! https://gofund.me/6bb9a35c
Fai una donazione a "Women don't deserve this majority!", organizzata da Women's Brain Foundation WBF
gofundme.com
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If the brains of men and women functioned in the same manner, the Women’s Brain Project would have no reason to exist. If it were not for each and every one of our supporters, we would not be here today. As the year comes to an end, the Women's Brain Project is so grateful to everyone who has contributed and supported us througout 2023. Your support allowed us to continue our groundbreaking work to establish the first Research Institute for Sex and Gender Precision Medicine. Donating today will change the world tomorrow. Let's make a difference, together. https://lnkd.in/eKg2mw8z #Research #WomensBrainProject #BrainResearch
Girls Just Wanna Have Funds (for Brain Research), organized by Women's Brain Project WBP
gofundme.com
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🔍 Addressing the Funding Crisis for Special Needs Education in the UK Despite the government's £2.6 billion commitment to improve SEND services from 2022 to 2025, the support remains insufficient. This affects the future of many children as they grow older and transition through different stages of their education. At H-ABC Foundation UK, we play a crucial role in bridging these gaps: Funding Equipment: Providing essential communication devices, mobility aids, and sensory tools. - Providing Information and Support: Our FAQ section helps families navigate the complex landscape of special needs education. - Fundraising Events: Organising events that raise funds and foster a sense of community. - Advocacy for Screening: Pushing for the inclusion of the TUBB4A gene in NHS screening panels. The need for adequate funding and support is pressing. By working together, we can create a more inclusive and supportive environment for all children with special needs. 📢 Read more about this critical issue and how you can help in our latest blog post - https://lnkd.in/d3wrCM9M #SpecialNeedsEducation #HABC #SupportSpecialNeeds #EducationFunding #InclusionMatters
Addressing the Funding Crisis for Special Needs Education in the UK
h-abcfoundation.org
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Today, January 25th, is Women's Health Research Day, commemorating "the implementation of the National Institutes of Health (NIH) Policy on Sex as a Biological Variable (SABV) in January 2016." "The day aims to raise awareness of the historical underrepresentation of women in clinical trials, the importance of designing basic, preclinical, and biomedical research studies in females and males, and the need to disaggregate and analyze data by biological sex, all of which will lead to more effective, inclusive health care." (FOWHR) As a global organization, IAPMD continues to push for better research for women and AFAB individuals. 🔬🧪 Throughout 2021, we undertook an exciting project to accelerate progress in PMDD research and shine a light on patient experiences and research priorities. With funding through the Patient-Centered Outcomes Research Insititute (PCORI), we built the first-ever global PMDD Community Coalition (PCC) with both patient and professional experts. In July, we held a landmark PMDD Roundtable to share insights and set the direction for future research. This year-long project culminated in the development of two critical resources: 💙 A Guide to Conducting Rigorous, Patient-Centered PMDD Research 💙 A Strategic Plan to Advance Patient-Centered PMDD Research These resources can be found by visiting iapmd.org/pcc. Our funding and donations are substantially lower than in years past, so we are asking your help to keep us going. 🙏 If any of our information has benefited you in any way, please consider donating to IAPMD or organizing a fundraiser of your own. https://lnkd.in/ezaxCTWH. We also hope to see a lot of you taking part during PMD Awareness Month in April. Check out iapmd.org/pmd-2024. 💡 HERE'S TO CHANGE AND BETTER DAYS!! 💙 #womenshealthresearchday #pmdd #pme #pms #mycycle #pmddpeeps #networkforgood #pmddresearch #research #myperiod #premenstrualhealth #premenstrual #treatment #researchstudy #awareness #pmddawareness #nevergiveup #myperiodbelike #moods #mentalhealth #thefutureisbright #trackyourcycle #youarenotalone #peersupport
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A child's cancer diagnosis shouldn't leave families in financial distress. Unfortunately, this is an all-too-common reality, especially for lower income families who are hit the hardest. According to a July 2023 study in the journal Pediatric Blood and Cancer, 68% of low income caregivers experienced significant household material hardship one year after diagnosis, compared to 38% of middle income families and 8.7% of high income families. This month, in recognition of National Poverty in America Awareness Month, we're shining a light on what contributes to pediatric brain tumors' financial impact, resources for families, and ways you can help. Join us in raising awareness by sharing this post and stay informed by signing up for updates at https://lnkd.in/geV6guiz.
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Vice President - Healthcare and Life Sciences @ MethodHub | Building Trust, Strategic Recruiting
2wIt’s great service to support the needy families 😊💐💐