Rare Disease day

Chances are you know one of the 400 million people around the world living with a rare disease, or someone caring for one. Visit rarediseaseday.alexion.com to send a postcard to a rare disease patient and let them know they have your support.

I am privileged to work for a company that is focused on developing and delivering life-transforming therapies for patients with devastating and rare diseases

4.8 years is the average time it takes for a person living with a rare disease to receive an accurate diagnosis. There is so much more that we can do serve patients in need by unlocking the value of data.

Rare is not as rare as you may think. #RareDiseaseDay