myHDstory®

We are proud to introduce the latest study to the myHDstory platform, LEAD-HD! Together, we can make a difference!

The online study, LEAD-HD, aims to further deepen our understanding of HD over a 24-month longitudinal research period. By joining #LeadHD, you become an integral part of accelerating progress in HD research. Through the power of collective knowledge, we can enhance the understanding of HD, improve strategies for diagnosis, treatment, and care. Get started at myHDstory.org or download the mobile app.

The #ProjectAWARE 2.0 Survey on myHDstory invites adult participants living in the United States, who either have #HuntingtonsDisease or are at risk, to help design future HD drug trials and observational studies. Visit myHDstory.org or download the mobile app.

Break the silence on #HuntingtonsDisease! Share your experiences and voice your priorities with the online myHDstory® study, LEAD-HD. Join the platform committed to learning from your journey to advance HD research. Register now: myHDstory.org or download the mobile app.

The myHDstory® 24-month longitudinal online study, LEAD-HD is enrolling participants. This study will explore a deeper understanding of the daily challenges faced by individuals with #HuntingtonsDisease. By actively involving yourself in this endeavor, you become a catalyst for change, helping to shape research priorities and influence the development of innovative approaches. Register at myHDstory.org or download the mobile app.

myHDstory® is enrolling for the online research study, LEAD-HD. This 24-month longitudinal study asks participants to report what they feel and experience about #HuntingtonsDisease. The data collected will help… - Create a patient-reported natural history of HD. - Clinically meaningful outcomes for clinical trials. - A resource to enable respondents to participate in future research. - A shared database for researchers to access, analyze de-identified data, and publish findings.

#ProjectAWARE 2.0 survey is now available at myHDstory.org and on the mobile app! This survey asks questions about #HuntingtonsDisease families’ awareness and interest about clinical research, motivations and concerns affecting their willingness, and ability to participate in clinical research.

Break the silence on #HuntingtonsDisease! Share your experiences and voice your priorities with the online myHDstory study, LEAD-HD. Join the platform committed to learning from your journey to advance HD research. Register now: myHDstory.org or download the mobile app.

Are you someone diagnosed with #HuntingtonsDisease? The path to understanding HD better begins with your experience. myHDstory® invites you to take a stand for all those impacted by HD by participating in the LEAD-HD research study. Register: myHDstory.org or download the mobile app. Learn more: https://lnkd.in/d3X4meFj

The myHDstory® platform’s new survey, Project AWARE 2.0 is obtaining input and knowledge about the feelings, attitudes, and beliefs of the HD community concerning HD clinical research. You hold the answers at myHDstory.org or download the mobile app. #ProjectAWARE