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Huntington's disease

November 2021

  • Charlotte Raven and Julie Burchill in 1995.

    Patient 1 by Charlotte Raven review – life with the ‘mourning’ illness

    The journalist’s blog about living with Huntington’s disease has become a fragmentary but insightful memoir

October 2021

  • CHARLOTTE RAVEN photographed at her home in London, September 2021

    Living with Huntington’s disease: ‘For our family, the end of days is always close at hand’

    Fifteen years ago, writer Charlotte Raven was diagnosed with the incurable neurodegenerative disease – what did it do to her family and her marriage?

August 2021

  • Loading Docs
    Fifty percent: Short film asks 'Is it better to know your future or live in the moment?' – video

  • Lillian Hanly

    I have a 50/50 chance of inheriting Huntington’s disease – should I take a test to find out?

    Lillian Hanly

February 2021

  • Crispr, the ‘genetic scissors’

    After the Nobel, what next for Crispr gene-editing therapies?

  • Peter Harper

    Sir Peter Harper obituary

March 2020

  • Midsection Of Doctor Discussing With Patient<br>Posed by model Doctor holding pen and talking serious to the patient about medication and treatment.

    Huntington’s ruling on doctors’ duty to tell patient’s family

    Case establishes precedent for relatives’ right to know about serious conditions, lawyers say

August 2019

  • Illustration of two women facing each other, dressed identically in blue jeans and a white t-shirt, the older woman explaining something to the younger pregnant woman, who has her hand on her hip

    Self and wellbeing
    Do we have a right to know if we could have the Huntington’s disease gene?

    Not telling your child that this hereditary condition is in the family can be devastating later on

April 2019

  • Mark Newnham and his cocker spaniel, Lenny.
Sent by him for Robin McKie's  Huntington's disease story.

    Today in Focus
    Finally, hope for those with Huntington's

    Robin McKie, the Observer’s science and environment editor, discusses an innovative drug that may soon offer ways to fight Huntington’s disease, while Mark Newnham describes being diagnosed with the inherited condition. Plus: Peter Beaumont describes his trip to the Costa Rican cloud forest, at threat from climate change

March 2019

  • Matt Ellison with his wife Marianna and son Joey

    Observer special report
    At last, hope for families living in the shadow of Huntington’s disease

    An innovative drug may soon offer new ways to fight this cruel inherited condition

November 2018

  • St George’s Healthcare NHS Trust in south-west London.

    Woman who inherited fatal illness to sue doctors in groundbreaking case

    Legal action over non-disclosure of father’s Huntington’s disease could lead to huge changes in patient confidentiality

August 2018

  • Psychology illustration.

    Science Weekly
    Huntington's disease: the price paid for our big brains? – Science Weekly podcast

    This degenerative illness has a few genetic quirks which scientists believe could cause secondary health benefits. Emerging research suggests that people with Huntington’s are less sickly, don’t get cancer as often and even have more brain cells. Hannah Devlin investigates.

February 2018

  • Child with parent

    Fostering must be a public service for the public good

    Letters: Clive Sellick writes that by allowing the private sector to flourish in fostering, a two-tier service has been created; plus a letter from a reader who is on the verge of collapse for want of support for her son with Huntington’s disease

December 2017

  • Campaigner Malala Yousafzai won a place at Oxford University.

    2017 miscellany
    Everything is awesome (ish)! Ten reasons why 2017 was actually brilliant

  • Robin McKie

    Stunning gene therapy breakthroughs are a riposte to our truth-tarnished times

    Robin McKie
  • Cardi B<br>DEC- 2017 - LONDON; HOME - positive results from a new huntington's disease trial at UCL. Pictured Peter Allen and brother and sister. (Photography by Graeme Robertson)

    'You know that you’re gradually lessening': life with Huntington's

  • Normal brain. Coloured magnetic resonance imaging (MRI) scan of an axial section through a healthy brain. The front of the brain is towards top of the image. Seen here is the cerebrum, the largest part of the brain. It is divided into two cerebral hemispheres and is responsible for conscious thought, emotion and voluntary movement.
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Not Released (NR)
Taken on
23 Feb 2013, 00:00
By
PASIEKA

    Excitement as trial shows Huntington's drug could slow progress of disease

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