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ME / Chronic fatigue syndrome

August 2024

  • Maeve Boothby-O’Neill

    GP who treated woman with severe ME tells inquest more funding is needed

  • Maeve Boothby O’Neill pictured on her 18th birthday.

    Hugs were too painful for ME patient before she died, mother tells Exeter inquest

July 2024

  • Maeve Boothby O’Neill, who died aged 27 in 2021. She suffered with severe ME/CFS for several years but became acute in the last six months of her life.

    Maeve Boothby-O’Neill’s harrowing case highlights clashing NHS narratives on ME

    Alastair Miller
  • Maeve Boothby O’Neill

    ME patient’s consultant tells inquest staff’s unfamiliarity with condition was ‘unfortunate’

  • Maeve Boothby O’Neill

    NHS wards not capable of treating ME patients, expert tells Exeter inquest

  • Maeve Boothby O’Neill

    Devon woman with ME asked GP to help her ‘get enough food to live’, inquest hears

May 2024

  • James Mowbray

    Other lives
    James Mowbray obituary

    Other lives: Doctor who helped to develop a greater understanding of how to prevent organ rejection in transplants

March 2024

  • Man resting in bed

    Why ME/CFS is still so poorly researched and treated

  • George Monbiot

    ‘You don’t want to get better’: the outdated treatment of ME/CFS patients is a national scandal

    George Monbiot

February 2024

  • ME patients have often been dismissed or stigmatised in the past.

    Scientists find link between brain imbalance and chronic fatigue syndrome

    Scientists describe small study as long overdue deep dive into biology of condition

January 2024

  • Giselle Boxer in the Dragons’ Den studio.

    BBC pulls Dragons’ Den episode after ‘unfounded claims’ of curing ME

  • Screengrab of Giselle Boxer against a dark blue background talking to someone off camera

    Doctors complain to BBC over Dragons’ Den contestant’s claim ‘to have cured ME’

August 2023

  • Stethoscope on laptop

    Women with ME tend to have more symptoms than men, study suggests

    Study of chronic fatigue syndrome also finds women are more likely to develop worse symptoms over time

July 2023

  • Woman sitting on sofa

    ME/CFS guidance that discourages exercise is flawed, say researchers

  • Image of viruses and molecules surrounding a colon and intestines

    Does the microbiome hold the key to chronic fatigue syndrome?

January 2023

  • Young doctor with covid-19 vaccine bottle vial, coronavirus vaccination concept.<br>Woman standing in office, holding ampoule.

    The struggle to live a normal life with long Covid

    Letters: Julia Fahrenkamp has been unable to work since getting Covid. Plus Robert Saunders on the link with chronic fatigue syndrome and the need for better research

September 2022

  • Closeup of sad woman sitting on sofa touch aching head.

    Multiple chemical sensitivity is real – people who have it aren’t making it up

    Letter: For decades, patients with complex illnesses – especially those that affect women more – have been told that it’s in their heads, says Beth Pollack

July 2022

  • Keith Kahn-Harris on the day he was diagnosed with the Epstein-Barr virus in 1993.

    Why I quit
    I gave up hope of a cure for my chronic condition. And it’s made me happier than ever before

    Keith Kahn-Harris
    For 30 years, I tried to ‘fight’ it. In the end, I found relief in embracing my identity as a person with a disability, says sociologist Keith Kahn-Harris

November 2021

  • The drug could help long covid patients.

    UK launches trial of drug to tackle fatigue in long Covid patients

    AXA1125 targets cell power plants that may be dysfunctional in long Covid patients with severe fatigue

October 2021

  • Graded exercise therapy has been removed as treatment from the guidance for managing chronic fatigue syndrome.

    ME exercise therapy guidance scrapped by health watchdog Nice

    Victory for campaigners as therapy they rated ‘harmful’ is taken off list of recommended treatments
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