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The Guardian - Back to homeThe Guardian

Cystic fibrosis

March 2024

  • Portrait of Cheri Nel with one of her dogs

    Fair Access
    South Africans take on big pharma for access to ‘miracle’ cystic fibrosis drug

    Cheri Nel cannot afford Vertex’s Trikafta medicine, so she is suing to end ‘patent abuse’ and allow a generic version

December 2023

  • Felix Munkonge

    Other lives
    Felix Munkonge obituary

    Other lives: Specialist in cell biology who helped with the development of a Covid-19 vaccine and treatments for cystic fibrosis
  • Johanna Tate

    I have cystic fibrosis but experts say drugs for others like me are too expensive. What price a life?

    Johanna Tate
    This medicine comes closer to a cure than any of us could dare to dream of. The planned cut in funding would be a disaster, says Johanna Tate, who works at LSE
  • Ivacaftor, trade name Kalydeco. Drug developed by Vertex Pharmaceuticals for treatment of Cystic Fibrosis. Annual cost $300,000<br>E8BPX4 Ivacaftor, trade name Kalydeco. Drug developed by Vertex Pharmaceuticals for treatment of Cystic Fibrosis. Annual cost $300,000

    The Guardian view on cystic fibrosis treatments: a rollercoaster ride for the sick

    Editorial: Patients are facing shorter lives as drug companies are demanding prices that health services here and in other countries cannot pay

July 2023

  • Facing the jaws of death … Martin O'Brien.

    ‘I was born with death as my sidekick’: the ‘zombie’ with cystic fibrosis who turns pain into art

    At 35, Martin O’Brien has already outlived his life expectancy. And in performances in which he attaches pegs to his testicles or smears himself with mucus, he brutally confronts his mortality

June 2023

  • Human foetus in womb illustration

    Gene genius: how the placenta project is unlocking the secrets of our cells

    The Human Cell Atlas is already helping to ensure safer pregnancies, and scientists believe it will help them understand many other conditions

March 2023

  • sign says your wish is granted

    Make-A-Wish Foundation says cystic fibrosis patients will no longer automatically get a wish

    ‘Tremendous’ progress against disease means charity will make case-by-case decisions

December 2022

  • heel prick test on newborn baby

    Genome sequencing trial to test benefits of identifying genetic diseases at birth

    Study with 100,000 babies to look at faster diagnosis of rare conditions and how genetic data might be used

June 2022

  • Illustration of genome editing

    Half in UK back genome editing to prevent severe diseases

    Survey also finds younger generations far more in favour of designer babies than older people are

January 2022

  • A pharmacist looks through the shelves at a chemist.

    ‘Shocking’: cystic fibrosis patients should not have to pay for drugs that keep them alive, says MP

    Call for charges to be scrapped in England on drugs for the condition

July 2021

  • A mother holding the feet of a new baby

    Whole genome sequencing of all UK newborns ‘would have public support’

    Consultation shows positivity towards screening programme to spot those at heightened risk of certain health conditions

December 2020

  • Studying the genes causing cystic fibrosis

    New drug offers hope for thousands with cystic fibrosis

    There were fears for patients with the lung disease as Covid-19 emerged but new treatments have shown remarkable benefits

August 2020

  • Prof Stephen Powis

    Cystic fibrosis drug Kaftrio to be available on NHS after European licence granted

  • Harry, Sid and I. 2018

    I’m a shielder who's been out for the first time. How do I stay safe?

    Pippa Kent

July 2020

  • A teenager receiving hospital treatment for cystic fibrosis

    Thanks to a new drug for cystic fibrosis, I can plan a future I thought I'd never have

    Isabelle Jani-Friend
    With the NHS deal on Kaftrio, I’m likely to live longer. This is why swift access to novel treatments is so important, says journalist Isabelle Jani-Friend

March 2020

  • Empty shelves in Double Bay

    As coronavirus spreads, I am terrified that fear and greed could cost my son his life

    Sally Killoran
    Stockpiling essential supplies and ignoring quarantine advice can have deadly consequences for the most vulnerable among us

January 2020

  • Cystic fibrosis campaigners protest over the lack of availability of Orkambi in 2017.

    The Tories must learn from the Orkambi victory and keep drug-pricing off the table

    Diarmaid McDonald and Achal Prabhala
  • Cystic Fibrosis drug Orkambi

    Today in Focus
    Who decides the price of a life-saving drug? A look back

November 2019

  • A protest over the lack of availability of a ‘life-saving’ cystic fibrosis drug ‘Orkambi’ in central London, Britain, 26 June 2017.

    It took the cystic fibrosis community years to win this lifesaving drug. It can’t be taken away

    Isabelle Jani-Friend
    A post-Brexit UK-US trade deal could see Orkambi’s price rise again, says journalist Isabelle Jani-Friend

October 2019

  • Orkambi campaigners

    NHS England agrees price for 'unaffordable' cystic fibrosis drug

    Patients will get Orkambi by next month after years of price wrangling with manufacturer
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