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Motor neurone disease

July 2024

  • Fans line street as Rob Burrow's hearse passes

    ‘He was an inspiration’: rugby fans pay tribute at Rob Burrow funeral

    Thousands of people gather to celebrate achievements of Leeds Rhinos star and MND campaigner
  • Fans in a stadium stand beneath a screen showing a picture of Rob Burrow and the words: 'Rob Burrow CBE, 1982-2004'

    Test for genes linked to motor neurone disease offered to relatives in UK

    Scheme will enable siblings and children of those with fatal condition to know if they are likely to develop it themselves
  • Tributes were paid to Rob Burrow before the England football team’s friendly against Bosnia and Herzegovina in Newcastle.

    ‘We must still dare to dream’: Rob Burrow’s final message is shared in film

    Rob Burrow’s final message to the world has been shared in a BBC documentary following his death on Sunday at the age of 41
  • Rob Burrow and Kevin Sinfield

    Brief letters
    Politicians could learn from Rob Burrow’s honesty and dignity

    Brief letters: Motor neurone disease | Remembering war casualties | A teenager talking sense | Music for animals | Underpoured pints
    • Rob Burrow obituary

    • ‘He’ll be proud’: work starts on Rob Burrow motor neurone disease centre in Leeds

    • RFL to celebrate life of Rob Burrow at Challenge Cup final as tributes pour in

  • Rob Burrow waves a Leeds flag

    Rob Burrow was a rugby league giant and a most extraordinary man

    A flickering fire burned inside the inspirational former Leeds scrum-half despite the gravity of his motor neurone disease diagnosis
  • Rob Burrow: the rugby league great who inspired others after MND diagnosis – video obituary

    The former rugby league star helped inspire almost £20m in fundraising to support people living with MND
  • Rob Burrow, pictured in 2021

    Rob Burrow, former Leeds scrum-half, dies at 41, years after MND diagnosis

    Rob Burrow, who won eight Super League titles with Leeds, was diagnosed with motor neurone disease in 2019

May 2024

  • Rosy Bremer wearing a pink cardigan sat on the sofa at her home.

    ‘I am very uncomfortable’: MND patient’s long wait for wheelchair

    Delays at AJM Healthcare mean Rosy Bremer, 52, has spent hundreds on private hire

April 2024

  • A woman uses a pipette in a laboratory

    People with MND in England and Wales fear losing access to life-extending drug

    NHS cost threshold has not been raised by National Institute for Health and Care Excellence since 2004

March 2024

  • Illustration shows a mother and child looking out on a scene of environmental destruction, pollution, rain and other issues.

    ‘Everybody has a breaking point’: how the climate crisis affects our brains

    Scientists are just starting to discover how extreme heat and weather is linked to neurological conditions such as Alzheimer’s and motor neurone disease – and can even affect babies in the womb. What can we do about it?

February 2024

  • Jonathan and Nicholas sit at a kitchen table

    ‘Increasingly unbearable’: Jonathan Dimbleby criticises UK’s law against assisted dying

    Exclusive: Broadcaster urges MPs to change law after younger brother died with motor neurone disease

January 2024

  • A pharmacist collects medications for prescriptions

    The Guardian view on medicine shortages: a global issue for which Britain needs a plan

  • Victoria Atkins leaves Downing Street after attending the weekly cabinet meeting in London.

    Health secretary accused of failing to act on shortages of motor neurone disease drug

December 2023

  • Kevin Sinfield sets off at the start of seven ultramarathons in seven days across seven cities for motor neurone disease

    ‘Let’s look after each other’: Sinfield’s ultra effort for MND spreads the love

  • Jayda and Syd

    This is how we do it
    This is how we do it: ‘His disability might change the sex we have, but we’ll adapt’

September 2023

  • Ani George outdoors in a wheelchair

    ‘I don’t want to suffer’: the case for assisted dying in Scotland

    Ani, who has motor neurone disease, and Suzie, who watched her husband die in agony, share their reasons for wanting change

August 2023

  • Bryan Randall pictured with Sandra Bullock in 2018.

    Sandra Bullock’s partner Bryan Randall dies aged 57

    The photographer, who Bullock described as ‘the love of my life’, died after a three-year battle with ALS, the most common form of motor neurone disease
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