Australian NPC Disease Foundation Inc

🌟 Alexandra Primary School recently hosted a vibrant Crazy Hair Day, raising $136 in support of Niemann-Pick Awareness Month! Organised by Carly, an ANPDF committee member and dedicated mum, students brought gold coin donations and their boldest, most creative hairstyles to help raise awareness for Niemann-Pick Disease, a rare genetic condition. Huge thanks to the school community for joining us in spreading awareness and support. Every bit of help brings us closer to making a difference for those affected! 💜 Read more: https://wix.to/z2VytJv #CrazyHairDay #NiemannPickAwareness #ANPDF #MakeADifference #Fundraising

🎗️ Exciting news from Mandos Health! In October, they made strides in Niemann-Pick Type C (NPC) treatment, including a successful FDA meeting with top specialists. They also celebrated NPC Awareness Month and continued supporting families through their Expanded Access Program. Looking ahead, they remain focused on bringing new solutions to the NPC community. 💪🧬 #NiemannPickAwareness #NPC #MandosHealth Read more about their October update here: https://wix.to/AMjc9Ks

We are incredibly grateful to our dedicated clinicians who not only provide exceptional care for our loved ones but also generously volunteer their time to support key initiatives within the Niemann-Pick community. We recently caught up with Dr. Michel Tchan, a lead member of our Care and Guidelines project, to hear his insights on the latest advancements shared at the recent LSD Summit. To learn more, visit us online at www.npcd.org.au #NPDawareness #NiemannPick #LSDsummit #HealthCareHeroes #SilverLight

Mandy Whitechurch, founder of the Australian NPC Disease Foundation, has dedicated her life to raising awareness and funds for research after her sons were diagnosed with Niemann-Pick Disease Type C. Read and follow her story with the Florey. #NPDawareness #NiemannPick #CureNPC

Today is Global Niemann-Pick Awareness Day! 🩶 On this day, we come together to shine a light on Niemann-Pick Disease, especially Niemann-Pick Type C (NPC), a rare and life-altering condition. As we continue our journey with NPC, we're reminded of the strength, resilience, and love that unite families like ours. Raising awareness is key to finding better treatments and support for those affected. Let's spread the word and advocate for more research and understanding! Together, we can make a difference. 🩶 #NiemannPickAwareness #NPDawareness #RareDisease #Awareness #SilverRibbon #SilverLight

🎉 The Lysosomal Storage Disorder (LSD) Summit has officially kicked off today with a fantastic welcome reception, and ANPDF is thrilled to be exhibiting! 🌟 We’re here at the Pullman Albert Park to raise awareness and share our efforts in supporting those affected by Niemann-Pick Disease and other LSDs. Stop by our booth to learn more about how we’re advancing research, treatments, and support for families impacted by these rare conditions. Together, we’re creating a future filled with hope and progress! 💪✨ #ANPDF #LSDSummit #NiemannPickDisease #RareDisease #LSDResearch #HopeForACure #TogetherWeFight

Support Niemann-Pick Awareness with a Silver Ribbon! 🌟 The silver ribbon is a powerful symbol of hope and awareness for Niemann-Pick disease. By purchasing a silver ribbon, you contribute to raising awareness and supporting those affected by this rare genetic disorder. Discover the significance of the silver ribbon in our latest blog post here: https://lnkd.in/gfeHBKAg Together, we can create a brighter future. 💪 🔗 Buy Your Silver Ribbon online at the ANPDF Shop: www.npcd.org.au/shop #NPDAustralia #SilverLight #NPCD #ASMD #NiemannPickDisease

Greg’s family has shown remarkable resilience in caring for him and his sister, both diagnosed with Niemann-Pick Disease. Their journey offers hope and a reminder of the power of community. Read more about their story. 💙🔗 https://loom.ly/moBds9w #NpdAwareness #SilverLight #NiemannPick #NPCWarrior

Join our community and be a beacon of hope! 🌟 By becoming a "Supporter" Member, you support crucial research and help families affected by Niemann-Pick disease. Click the link in our bio to join today! 💪🔗 https://lnkd.in/gHFMjVbE #NiemannPickAwareness #SilverLight #JoinTheFight

Learn more about Timmy, a brave warrior living with Niemann-Pick disease type C with the support of his amazing mum, founder and president of the ANPDF, Mandy Whitechurch. Watch Timmy's #NPCDiaries Video here: 🔗 https://loom.ly/0WSn9w0 Read about his inspiring family and how they’re making a difference here: 🔗 https://loom.ly/L_Mplbw #NpdAwareness #SilverLight #NiemannPick #NPCWarrior