Breast Cancer Network Australia

In September 2024, the Federal Government announced it would introduce a total legislative ban on genetic discrimination in life insurance. This was to be introduced in the current parliamentary term, however it has been four months and progress has slowed. Urgent reform is needed to protect those with genetic predispositions, ensuring that people are not deterred from taking genetic tests. BCNA calls for the prioritisation of legislation that bans the use of genetic results in life insurance underwriting, partnering with Dr Jane Tiller from Monash University and other key stakeholders. Why is genetic testing needed? Five to ten percent of breast cancer diagnoses are a result of inherited genetic factors and genetic testing assists their healthcare team in deciding on interventions that may reduce their cancer risk. For those diagnosed, genetic testing can show the targeted treatment options that may reduce the risk of recurrence or progression. For more information, including how you can support the prioritisation of this urgent reform click https://ow.ly/1Zck50UPZS6

Early-onset breast cancer now accounts for over one-fifth of all breast cancer cases in Victoria, with 1,067 diagnoses out of 5,197 breast cancer cases. This upward trend is not confined to Victoria, with a steady increase in breast cancer diagnoses also on the rise nationally and internationally. Breast Cancer Network Australia (BCNA) is calling for greater awareness, improved education, investment into research, and tailored prevention efforts to address the steady increase in breast cancer diagnoses among younger women. Often younger women are overlooked or even dismissed as breast cancer is associated with older women. Younger women diagnosed with breast cancer face unique challenges that impact critical life stages such as career development and family planning, leading to significant psychological and financial challenges. Katie Elson, now 29, was first diagnosed with breast cancer two days after her 27th birthday. She discovered a small lump in her breast, which grew over time, but her concerns were dismissed by her GP who said the lump didn’t feel ‘nasty’ and that she was too young to have breast cancer. Two years later, Katie’s cancer returned, and she is now living with metastatic breast cancer. “Being diagnosed at such a young age was emotionally devastating. I’ve been dismissed and doubted simply because of my age, but I’m not alone, many young women face similar experiences.” “There is clearly a need for expanded prevention efforts,” says Vicki Durston, BCNA Director of Policy, Advocacy & Support Services. “Health professionals play a pivotal role in recognising symptoms and providing timely advice to younger women. No woman should feel overlooked or dismissed simply because of her age.” Link to media release: https://ow.ly/p7WA50UOskO #BreastCancerAwareness #YoungerWomen #BCNA #BreastHealth #CancerResearch #EarlyDetection

Our Helpline team have noticed an uptick in calls about the financial impacts of breast cancer. We hear you. Breast cancer can add the worry of financial strain to what is already a challenging time for you and your family. BCNA continues to work to improve timely and affordable access to optimal breast cancer care and treatment, including through contributions to the Pharmaceutical Benefits Scheme (PBS) listings of breast cancer drugs. We also have online resources that may help you navigate the financial burden and outline the practical supports you may be entitled to. Click the links for information and support: Tips to manage the financial impact of breast cancer: https://lnkd.in/gc5fb6dS Webcast on Managing the cost of breast cancer: tips and resources https://lnkd.in/gjvRMhtn Financial options and entitlements: https://lnkd.in/gq4qSHnn Finance and practical support: https://lnkd.in/gPnRE6yG Need help navigating which financial supports might be available to you? Call our free Helpline on 1800 500 258.

Breast Cancer Network Australia (BCNA) understands there has been some confusion surrounding the eligibility criteria for subsidised BRCA testing under Medicare Benefits Schedule (MBS) item number 73295. You may have heard that testing is available for all people with breast cancer, but this not accurate. We requested clarification from the Medical Services Advisory Committee (MSAC), which has verified that this testing is not currently subsidised for all people diagnosed with breast cancer. Rather, it is available to those who may be eligible for specific treatments subsidised under the Pharmaceutical Benefits Scheme (PBS). At present, this means the subsidy applies to all individuals diagnosed with early or metastatic breast cancer who may be eligible for olaparib, the only BRCA-specific treatment currently available. The item number was previously specific to treatment with PARP inhibitors but has since been broadened to a more general scope. This change ensures that when new drugs targeting BRCA mutations become available in the future, they can also be covered under this item number. If you are not eligible for subsidised BRCA testing under item number 73295, you may be eligible under another item number. We encourage consumers to consult with their healthcare provider to determine whether they meet the criteria for subsidised testing. Ensuring accurate information is crucial to support informed decision-making and access to appropriate care. For further details or support, please feel free to contact BCNA Helpline on 1800 500 258. #BreastCancerAwareness #BRCATesting #BreastCancerResearch #HealthEducation #PatientAdvocacy #CancerSupport

A world-first study has revealed that two hours of supervised exercise per week significantly benefits people with metastatic breast cancer, improving quality of life while reducing healthcare costs. The PREFERABLE-EFFECT trial, involving 357 participants worldwide, including 35 Australians, is the most extensive exercise study conducted for this population. The study revealed cost-effectiveness benefits of the nine-month supervised exercise program compared to general activity advice. Cost savings were achieved through reductions in home care, day treatments, hospital admissions, and productivity losses. As the number of individuals diagnosed with metastatic breast cancer increases, so too do the associated costs. Investing in supportive care strategies, such as supervised exercise programs, is crucial for managing the cancer burden and mitigating disease- and treatment-related side effects. By demonstrating both clinical and economic benefits, these findings provide a robust foundation for integrating supportive care programs into standard care practices to improve outcomes for patients while reducing the financial burden on healthcare systems. Lead Australian researcher, Melbourne exercise Physiologist Dr. Eva Zopf, emphasised the study’s significance: "These unique findings from our multinational PREFERABLE-EFFECT study are particularly important for healthcare providers, policymakers, and insurers. They demonstrate that supervised exercise for patients with metastatic breast cancer is not only beneficial in improving quality of life and reducing treatment-related side effects but also reduces healthcare costs." BCNA welcomed the findings, emphasising the need to prioritise people living with metastatic breast cancer by better understanding and addressing their needs. Recent data from New South Wales revealed a higher number of people living with metastatic breast cancer than previously estimated, yet they remain underserved in research and healthcare planning. The study underscores the urgent need for national data collection and tailored care to ensure people with metastatic breast cancer can live well with breast cancer. For more information, read our media release at https://ow.ly/ZbIB50UIc9J Eva Zopf Vicki Durston #MetastaticBreastCancer #ExerciseForHealth #CancerResearch #BreastCancerAwareness #SupportiveCare #HealthcareCostSavings #ExerciseBenefits #PatientOutcomes

Have you heard of BCNA’s Seat at the Table (SATT) program? This program trains people with a lived experience of breast cancer to be Consumer Representatives (CRs) to work with clinicians, researchers, health service providers and policymakers across Australia, ensuring the consumer voice is at the heart of wherever decisions are being made. Our CRs come from diverse backgrounds and experiences. In their role, they represent the wider breast cancer community, not only their own experience. To request a CR for your research or project, visit https://lnkd.in/gTVtfmju #BreastCancerAwareness #ConsumerRepresentatives #HealthAdvocacy #BreastCancerCommunity #HealthResearch #CancerSupport #PatientEngagement #HealthcareInnovation

Anne is in her 70s and has attended scheduled BreastScreen mammograms every two years since her 50s and was given the all clear each time. In 2023, just 5 months after she received another ‘all clear’, Anne noticed a change in her right breast along with a mass. After further testing she was diagnosed with Stage 3 breast cancer, with the primary having spread into her lymph glands and pectoral muscle. Anne is now waving the flag about the importance of being breast aware and advocating for yourself, on top of having your regular mammograms. “Know your breast density and keep asking,” advises Anne. “Women need to be informed about breast density and made aware of why they need to know.” BCNA has been advocating for a risk-stratified model for the current BreastScreen population-based screening model so that the risk factor of breast density is also considered. You can read more about Anne’s story at https://ow.ly/KyC550UCl5q #BreastCancerAwareness #BreastScreen #Mammogram #BreastHealth #BreastDensity #WomensHealth #AdvocateForYourself

We're back! BCNA’s Helpline is open again for the new year. At BCNA, we know a breast cancer diagnosis can be overwhelming. Often a phone call can make all the difference. If you or someone you love has been diagnosed with breast cancer, the friendly staff on BCNA’s Helpline can provide you with compassionate and practical support whenever you need it. We can help you navigate the healthcare system and direct you to the right information at the right time for you. We can also suggest peer support options where you can connect with other people going through a similar experience. BCNA’s free and confidential Helpline is open Monday to Friday from 9.00 am - 5.00 pm AEDT on 1800 500 258. #BCNAPinkLady #BreastCancerSupport #CancerAwareness #HealthHelpline #SupportGroups #BreastCancerCommunity #NavigatingCancer

Having successfully achieved their 2024 goal of funding and placing 250 dedicated McGrath Breast Care Nurses within the healthcare system where they are most needed, the McGrath Foundation is recognised for its unwavering leadership in breast cancer support. Today, January 1, 2025, we proudly announce their new initiative to extend this support by funding and recruiting additional nurses for other cancer types. This forward-thinking expansion ensures that all Australians affected by any type of cancer have access to specialised care and support, marking a significant advancement in comprehensive cancer care nationwide. For more information or to find a Breast Care Nurse near you, please visit the McGrath Foundation’s website. #CancerSupport #McGrathFoundation #BCNA #bcnapinklady

From everyone at Breast Cancer Network Australia, we wish you all a safe and happy festive season and thank you for your continued support this year. ⭐ We had a significant year of achievements as we have continued to strive to support all Australians affected by breast cancer through our events and policy & advocacy work. Over the coming days we will highlight the key resources that will be available to assist you over the holiday period. Firstly, for support while our Helpline team is away, visit our website and Online Network at https://lnkd.in/gSn-2Gn5 If you are seeking support about your breast cancer diagnosis, you can: 📞 Call Cancer Council on 13 11 20 with reduced hours over the holiday season (closed Dec 25th, 26th and Jan 1st.) Back to normal hours 9am-5pm from Jan 2nd Monday to Friday. 📞 If you need to speak to someone Lifeline is available 24 hours a day 7 days a week by calling 13 11 14. 📞 For counselling support from a mental health professional, you can call Beyond Blue on 1300 22 4636, also available 24 hours a day 7 days a week. 📞If you would like to talk with an Aboriginal or Torres Strait Islander Crisis Supporter, 13YARN is available 24 hours a day 7 days a week on 13 92 76. #BCNAPinkLady #BreastCancerAwareness #BreastCancerNetwork #FestiveSeason #CancerSupport #HealthAdvocacy #CommunityCare