Cystic Fibrosis WA

Cystic Fibrosis WA

Hospitals and Health Care

Nedlands, WA 578 followers

About us

Who are we? Cystic Fibrosis Western Australia was established in the 1970’s by a group of concerned parents. The Association was a self-help organisation, holding regular meetings to share information, purchase equipment and fundraise to support research into cystic fibrosis. In essence the work of CFWA remains the same today. We provide education, counselling, advocacy, recreation and home care services. We also provide home nursing and physiotherapy services to enable early discharge and early intervention from hospital. Mission Statement Our mission is to contribute to the social, physical and emotional well being of those affected by cystic fibrosis and to assist in the promotion of research. Our Philosophy Cystic Fibrosis Western Australia believes that each person should be given the best care and support that it can provide in a comprehensive, empathetic and professional manner. Our Vision Lives unaffected by CF.

Industry
Hospitals and Health Care
Company size
11-50 employees
Headquarters
Nedlands, WA
Type
Nonprofit
Founded
1976

Locations

Employees at Cystic Fibrosis WA

Updates

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    578 followers

    Congratulations to Dr Pamela Laird, on winning Allied Health Researcher of the Year in WA! A fantastic acknowledgement of Pam’s translational research on respiratory disease in Aboriginal children. The insights from this research are saving young lungs; and we are delighted to be able to leverage resources andcollaborate on community awareness of chronic wet cough. Congratulations Pam!

    Congratulations to respiratory health clinician-researcher Dr Pamela Laird, who has won Allied Health Researcher of the Year at the WA Excellence in Allied Health Awards. The Department of Health (WA Health)-supported awards recognise the phenomenal work of allied health workers across Western Australia who have made an outstanding contribution to their field. Dr Laird is a paediatric respiratory physiotherapist at Perth Children’s Hospital and a Senior Clinician Research Fellow with the Wal-yan Respiratory Research Centre at The Kids – a powerhouse partnership between The Kids Research Institute Australia, Perth Children’s Hospital and Perth Children's Hospital Foundation. Her research is focused on reducing the chronic respiratory disease burden in Aboriginal children, especially the impact of the life-shortening ‘orphan disease’ of bronchiectasis and its precursor, chronic wet cough. Working closely with Aboriginal medical services, leaders and communities, she has provided world-first data on the prevalence of these conditions, contributed to national guidelines, and created highly accessible resources that, together with her research, have already helped save more than 1000 little lungs. The award adds to a great year for Dr Laird, who in August was named joint Early Career Researcher of the Year at the Premier’s Science Awards. Congratulations Dr Laird! Child and Adolescent Health Service

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    578 followers

    This is your shot at a dream trip to the US Masters! With prizes including a US Masters Penultimate Package and travel voucher for two valued at $52,000, a $20K travel voucher, and a $10K early bird cash prize, this raffle is packed with amazing prizes! Buy your tickets today for your chance to win and support WA & QLD families impacted by cystic fibrosis at the same time. Tickets are now on sale! 👉 https://lnkd.in/gJgR3A5q Terms and Conditions Apply. Permit LS222082124.

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    578 followers

    Your dream trip to the US Masters is just a raffle ticket away! From a $52K US Masters experience to a $20K travel voucher and a $10K early bird cash prize, this raffle is packed with amazing prizes! Get your tickets now and take your shot at something extraordinary whilst supporting WA & QLD families impacted by cystic fibrosis. Tickets are now on sale—don't miss out! 👉 https://lnkd.in/gJgR3A5q Terms and Conditions Apply. Permit LS222082124.

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    578 followers

    A heartfelt THANK YOU to Morgans Financial Limited for their incredible generosity in being a matching partner for our Giving Day! ✨ With their amazing support, every single dollar donated was doubled—amplifying the impact of our community’s generosity. Together, we'll be able to support WA families in the home with physiotherapy, psychosocial suport, short term cleaning and respite. We are beyond grateful for Morgans' commitment to creating positive change and for standing with us to make a lasting difference 💙 hashtag #GivingDay4CFWA hashtag #MatchedGivingDay

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    578 followers

    Our annual CFWA Giving Day is now live! 💙 For the next 24 hours, thanks to our generous matching partners, every donation made will be MATCHED dollar-for-dollar. Funds raised from our Giving Day will allow WA families impacted by CF to access practical and financial assistance as well as mental health and wellbeing support when it's needed. 👉 Make your gift go twice as far this Giving Day and make a donation here: https://lnkd.in/gkKXd2Dj #GivingDay4CFWA #MatchedGivingDay

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    578 followers

    Congratulations Chris Malajczuk, our latest grant recipient. Chris and his team's research is cutting edge and likely to benefit many people in future, as #antimicrobialresistance leaves people reliant on new options like phage therapy. #phagetherapy #AIinHealth Telethon Kids Institute Yuliya Karpievitch Anthony Kicic Kak Ming Ling

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    1,096 followers

    🎉 Congratulations to Chris Malajczuk Chris is the recipient of the CFWA Golf Classic Innovation Grant 2024 for his project, "AI-Enhanced Bacteriophage Training." This $80,000 grant, funded by Cystic Fibrosis WA, supports his work on PhageTrainer - a cutting-edge AI platform to improve phage therapy against drug-resistant bacteria like P. aeruginosa. By analyzing phage DNA data, PhageTrainer aims to enhance phage therapy's effectiveness, addressing the urgent need for new treatments and improving CF care. Congratulations, Chris, for your groundbreaking work! #CysticFibrosis #InnovationGrant #ChrisMalajczuk #CFWA #CFA

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    578 followers

    We would like to extend a big thank you to Katrina Stratton PhD, MBA for taking the time to visit our team and personally present us with our Lotterywest grant for 2024. Our SIBS and Kids' Camp is made possible with this grant, allowing siblings and children of people with CF to connect and form friendships with people in similar circumstances. This support from Lotterywest is invaluable to us, and we deeply appreciate their ongoing commitment to helping us make a difference in our community. #CysticFibrosisWA #LotterywestGrant

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    578 followers

    Our CWC team attended the Aboriginal Health Conference on the weekend with this year’s theme “Circling the Fire: Connecting, Celebrating and Committing top Aboriginal Health”, embodying the spirit of unity, celebration, and dedication to improving Indigenous health outcomes. The opportunity to connect with community from across the state and engage in presentations, panel discussions, case study discussions and workshops was so valuable and empowers the team to continue their work in growing the community champion network of local people sharing the chronic wet cough message. Highlights of the conference were the keynote speakers this year “Mechelle Turvey and Keisha Calyun-Clarke” two very inspiring women!

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    An exciting opportunity for researchers interested in pursuing a career in advancing care for people living with CF. Click on the link below to learn more and apply today. #CFResearch #GrantOpportunity

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    1,096 followers

    🌟 Cystic Fibrosis Australia (CFA) is excited to introduce the 2024 Conquer Cystic Fibrosis (CCF) Gene Therapy Innovation Grant! 🌟 💡 Who can apply? - Post-doctoral researchers - Scientists - Clinicians - Medical practitioners - Nurses & Allied health professionals 🔬 Focus: Innovative ideas in Cystic Fibrosis (CF) gene therapy research. 🧠 Eligibility: Completed a research higher degree in CF or a related field within the last 10 years. Preference for teams with at least one member from Western Australia. 💰 Grant Amount: Up to $80,000 for one year, with potential extension for another year. 📊 What’s required? - Progress reports to the Australian Cystic Fibrosis Research Trust (ACFRT). - Presentation at a CFA conference (held every two years). 🗓️ Deadline: Apply by 5:00 PM (AEST) on Friday, 11th October 2024 via the CFA website: https://lnkd.in/gsJy25ET ✨ Make a difference in CF research! ✨

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