MS Australia

MS Australia CEO Rohan Greenland asks whether the Australian Government is doing enough to support MS research and neurological research more generally. Read more 👉 https://bit.ly/4eZBadS

🎙️On this episode of The Raw Nerve, host Dr Julia Morahan is joined by Michael Butler who lives with MS, and his neurologist, Dr Jennifer Massey for an in-depth conversation about AHSCT and MS. Listen now 👉 https://bit.ly/3YGXzHm

MS Australia is delighted to partner with the national Open Coast to Coast Australian Consortium of Multiple Sclerosis (OCCAMS) led by Professor Tri Phan at the Garvan Institute of Medical Research. Using cutting-edge technology, OCCAMS is applying a 'molecular razor' to solve the enigmatic role of the Epstein-Barr virus (EBV) in MS. The multidisciplinary team, including immunologist Professor Phan, neurologist Dr Jennifer Massey, systems biologist Dr Seyhan Yazar, and Mr Mark Elisha, who lives with MS, spoke about "A new hope for MS" in a public seminar on Thursday, 24 October. Professor Phan said, "We are not here to solve esoteric conundrums; we are here to improve the lives of people with MS". Mr Elisha poignantly noted: "MS teaches you to think on your feet. Involvement in research has given me back control of my MS. The most important thing I would like to see from this project is understanding the root cause of MS, so we can look towards prevention". Dr Fiona McKay from MS Australia said, "We are delighted to partner with a team of such a high calibre on such an important project. A better understanding of the role of EBV in MS could open the door to completely new avenues for treatment and move us closer to the ultimate goal of preventing MS for good." Discover more about OCCAMS 👉 https://bit.ly/40r5olP #MS #multiplesclerosis #MSresearch #MSawareness

🔬 TrialSmart: Educational Series on Clinical Trials 🧠 TrialSmart is a series of nine modules for people living with MS and their communities to raise awareness of and provide education about clinical trials in Australia. Get TrialSmart 👉 https://bit.ly/3AcOxs1 #MS #multiplesclerosis #MSresearch #clinicaltrial

📣 On today ⌚ Join Macquarie University online or in-person for their free Mental Health Month Public Lecture from 5.30pm - 7.00pm. In her talk 'Advancing mental health care in people living with neurological disorders', Associate Professor Milena Gandy will explore the gaps in care and how psychology can help bridge them. She will also share promising results from clinical trials of the Wellbeing Neuro Course, a digitally delivered psychological intervention for adults with neurological disorders. Get tickets 👉 https://bit.ly/3NBWTMQ #Webinar #neurologicalconditions

ICYMI: Could a simple blood test predict MS? Antibodies detected years before diagnosis, may help identify people at high risk of developing MS and aid researchers in understanding the very earliest stages of the disease process. Read more 👉 https://bit.ly/3YwZqhB #MS #multiplesclerosis #MSresearch

Last week, two of our MS Australia staff members attended the MS Nurses Australasia’s conference in Brisbane (17 – 19 October). This annual event brings together the latest in MS research featuring advancements in MRI, Epstein Barr virus, co-design in care models, advanced MS care, blood biomarkers in MS management, family planning, pain research, other demyelinating diseases. The conference also offers opportunities for professional development and career paths for MS specialist Nurses, from the aspiring to the most experienced. Access to MS Nurse care improves outcomes for people with MS. These include lower disability level, slower self-reported disease progression, less severe symptoms, lower levels of depression and anxiety, and a higher quality of life. Learn more about MSNA 👉 https://bit.ly/3NydgKA MS Nurse’s Report 👉 https://bit.ly/3TrNoAo Katie Snell and Fiona McKay also got the opportunity to see MS Queensland’s fantastic new Wellness Hub which is dedicated to supporting Queenslanders living with neurological conditions and their families. #MSNA #MS #multiplesclerosis #MSresearch

❗Registrations are filling up fast, and tickets are limited, so be sure to secure your spot soon! MS Australia’s inaugural research symposium, held in partnership with The University of Sydney’s Brain and Mind Centre, will be dedicated to advancing our collective commitment to the Pathways to Cures research strategy to accelerate cures for MS. The Pathways to Cures strategy focuses on primary prevention to stop MS before it starts by reducing exposure to risk factors and secondary prevention to detect MS early, aiming to delay or halt its progression. Alongside this, we will explore tertiary prevention encompassing symptom management for enhancing the lives of those living with MS. 📅 Date: 29 November 2024 🕘 Time: 9am-4pm 📍 Location: Susan Wakil Health Building, The University of Sydney 🎟️ Registration: FREE Join us for a day of insightful presentations, engaging discussions, and networking opportunities with leading experts in MS research. Register now 👉 https://bit.ly/3YqsEz5 #MS #multiplesclerosis #MSresearch #MSawareness

Michelle didn't know she had MS until a chance meeting with a doctor who saw the symptoms. In hindsight, she said breaking her ankle twice in consecutive years was a warning sign. Michelle is sharing her story to promote the MS Gong Ride from Sydney to Wollongong on November 3. Listen to her story 👉 https://ab.co/3NrdmDy #MS #multiplesclerosis

🎙️ In the latest episode of The Raw Nerve, we meet James Riley, a young father and keen runner from Ballarat, Victoria. Diagnosed with MS in 2015, James shares his lived experience of MS, its impact and the joy of running again over a decade after his diagnosis. Listen now 👉 https://bit.ly/4gYtN7U #MS #multiplesclerosis #TheRawNervePod