NeuroEndocrine Cancer Australia

‼️ We’re urgently calling on the help of our NET community to reach out to their local and federal MPs to help improve the lives of neuroendocrine cancer patients around Australia. ❓Why Should NET Patients Meet with Local MPs? Meeting with your local Member of Parliament (MP) can be a powerful way to advocate for better diagnosis, treatment, and funding. These face-to-face meetings can be powerful tools for driving legislative change, ensuring equitable access to healthcare, and raising public awareness of Neuroendocrine Cancer and its subsets, Von Hippel Lindau, MEN, SDHB, Paragangliomas and Pheochromocytomas 🔗Ready to help? Head to our advocacy page for a step-by-step guide https://ow.ly/IsxU50TSbeR

Neuroendocrine Cancer patients are waiting—since May, there’s been no response to the Senate Inquiry’s 41 Recommendations. This delay is affecting lives! Mark Butler MP the NET community urges you to act now. Let’s ensure equitable access to diagnosis, treatment, and support for all. #PatientAdvocacy #PatientSupport #EquitableCare #NeuroendocrineCancer #SenateInquiry #MarkButler Australian Labor Party Australian Government Department of Health and Aged Care

At NECA, we know how crucial it is for healthcare professionals to be well-versed in neuroendocrine tumours (NETs). That's why we offer free educational sessions tailored for GPs, nurses, and other healthcare teams. If you think your practice could benefit from more in-depth knowledge about NETs, we're here to support you. 📧 Contact us at info@neuroendocrine.org.au or request a session directly through our website: https://ow.ly/kWnI50TSaCz #HealthcareProfessionals #NeuroendocrineCancer #NETsEducation #GPTraining #MedicalEducation #HealthcareAwareness #ContinuingEducation #FreeTraining

It currently takes an average of 466 days for a new medicine to become available on the Pharmaceutical Benefits Scheme (PBS) after it's approved in Australia. Australians deserve faster access. If you would like to show support for a #StrongerPBS campaign, you can pledge here: https://ow.ly/JOau50TQo4b #StrongerPBS #NETs #LetsTalkAboutNETs

Our CEO for NECA was honoured to be invited by Medicines Australia to a lunch with Hon Katy Gallagher Minister for Finance, Minster for Women, Minister for the Public Service. There were only ten in attendance for the lunch. The guests included the Senator, #MedicinesAustralia Leadership team, Board members, Patient Voice Initiative and NECA. The lunch was to brief the Minister on the #HTA Review and the recommendations, enhancing consumer voices in the HTA system and the need for reform. This was an amazing opportunity to provide the Minister with insights to the many challenges that patients living with Neuroendocrine Cancer face in accessing medicines and services. It was also an opportunity to discuss the #SenateInquiry 'Equitable access to diagnosis and treatment for individuals with rare and less common cancers, including neuroendocrine cancer' which has recommendations that are aligned with the HTA Review recommendations. #LetsTalkAboutNETs #NeuroendocrineCancer #Advocacy #PatientAdvocacy

The Senate Inquiry released 41 recommendations in May 2024. 🚫NET Patients are STILL waiting for a response from the Australian Government. It’s time to prioritize rare and less common cancers like Neuroendocrine Cancer! ‼️ Mark Butler MP, we need action now—patients deserve to be treated fairly and equitably. Australian Labor Party #PatientSupport #EquitableCare #NeuroendocrineCancer #SenateInquiry #MarkButler

❓Did you know that the incidence of NETs has more than doubled between the year 2000 and 2020? We ask that government funding for education and resources be allocated today, in line with Senate Inquiry recommendation 18. Please #MrMarkButler and #MrAnthonyAlbanese, Australia’s 7th most common cancer is on the rise. Implement the Senate Inquiry recommendations today. Australian Labor Party #LetsTalkaboutNETs #neuroendocrineCancer

As awareness of Neuroendocrine Cancers grow, survival rates have been increasing. With equitable funding & education of the general public and healthcare professionals, we hope to see survival rates increase even further - and reach our ultimate goal of a cure. Help us improve the lives of Neuroendocrine Cancer patients Australian Labor Party #LetsTalkAboutNETs #neuroendocrineCancer

Earlier diagnosis saves lives. The latest AIHW statistics are proof. Implementation of the Senate Inquiry recommendations will save lives Australian Labor Party Note: These statistics include an average of all neuroendocrine cancers, regardless of stage and grade. Please call our free NET Nurse line if you wish to discuss further. #LetsTalkAboutNETs #NeuroendocrineCancer

The Australian Institute of Health and Welfare have now declared Neuroendocrine Cancers to be a common cancer yet many patients are told that neuroendocrine cancers are rare. We urge the Australian government to implement Senate Inquiry recommendation 18, so that we can increase resources, promote neuroendocrine cancer education modules to healthcare professionals and save lives. Learn more about how you can advocate for NET patients by clicking here: https://lnkd.in/gdX-9tZf #LetsTalkAboutNETs #NeuroendocrineCancer #NETs #NECs Australian Labor Party