Cassie and Friends: A Society for Children with Juvenile Arthritis and other rheumatic diseases

Did you know that September is Arthritis Awareness Month? 🌟 As champions for the Juvenile Arthritis (JA) community, we invite YOU to help us spread awareness about childhood rheumatic diseases for the 24,000 kids in Canada affected by these conditions. 🇨🇦 Below are 5 facts about Juvenile Idiopathic Arthritis (JIA) that you may not have known (source: Montreal Childrens Hospital). 💙 1. JIA mostly affects the joints, but it can also affect organs like the eyes, skin, liver, heart, and lungs. 2. There are types of arthritis in children and teenagers that adults don't experience. 3. JIA affects every child differently and can be different every day for the same child. 4. JIA is chronic, so it can last for months or years - or a lifetime. 5. The cause of JIA is unknown, but researchers are trying to figure it out. Please share our #ArthritisAwarnessMonth graphic on your social media channels. Let's educate others that kids get arthritis too - prompt diagnosis and treatment can save a child from a life of pain and disability. 💚 #ConnectingJA #CAFSociety #PainFreeFuture #Research #Education #Connection #Support #Awareness #RareDisease #KidsGetArthritisToo #JuvenileArthritis #JA #JIA #SJIA #PFAPA #JDM #ERA #Lupus #CRMO #Spondyloarthritis #PsoriaticArthritis #FeverSyndromes

Exciting news this #AutoinflammatoryAwarenessMonth! Canada is launching its first-ever national registry for systemic autoinflammatory diseases (SAID)! 🎉 The Can-SAID initiative will collect crucial data on over 50 rare conditions marked by uncontrolled inflammation, many of which start in childhood and can have serious long-term effects. This national registry will revolutionize research and patient care by enabling data sharing across the country. Formed by dedicated clinicians and researchers, with support from Cassie and Friends: A Society for Children with Juvenile Arthritis and other rheumatic diseases and the Canada's Drug Agency, CAN-SAID aims to ensure that every child and adult with SAID is counted. Learn more about the CAN-SAID initiative: https://t.co/tgYNsLUEzn  #AutoinflammatoryRegistry #CANSAID #Canada4Rare - Des nouvelles passionnantes en ce #AutoinflammatoryAwarenessMonth! Le Canada lance son tout premier registre national des maladies autoinflammatoires systémiques! 🎉 L'initiative Can-SAID permettra de recueillir des données cruciales sur plus de 50 maladies rares marquées par une inflammation incontrôlée, dont beaucoup se déclarent dès l'enfance et peuvent avoir de graves effets à long terme. Ce registre national révolutionnera la recherche et les soins aux patients en permettant le partage des données à travers le pays. Créé par des cliniciens et des chercheurs dévoués, avec le soutien de Cassie and Friends: A Society for Children with Juvenile Arthritis and other rheumatic diseases, et le Canada's Drug Agency, le CAN-SAID a pour but de s'assurer que chaque enfant et adulte atteint de SAID est recensé. Pour en savoir plus sur l'initiative CAN-SAID: https://t.co/tgYNsLUEzn #RegistresDesMaladiesAutoinflammatoires #CANSAID #Canada4Rare

Westland energy is contagious! It's part of what has made Cassie + Friends unstoppable in our mission to transform the lives of kids and families affected by Juvenile Arthritis and other rheumatic diseases in Canada. Together, we are bringing together a community of kids and families that has too long suffered from a lack of awareness, isolation, unreliable information and fear. With friends like Westland Insurance Group Ltd., we can stop needless suffering and potential lifelong disability in children - and instead see kids thrive! PS: Shared success = the best kind of success! #PowerofFriendship #AmplifyingCommunities #TeamCassieandFriendsEdmonton Stollery Children's Hospital Alberta Health Services #JIA #JuvenileArthritis

Great news this #AutoinflammatoryAwarenessMonth — Canada is getting its own #SystemicAID registry! In our latest blog, Dr. Lori Tucker BC Children's Hospital, Vancouver and Dr. Kelly Brown BC Children's Hospital Research Institute share how this new registry will advance education + treatment for people living with #SAIDs in Canada -- including kids! The project is being generously funded by Canada's Drug Agency and is strengthened by the full support of Canadian clinicians, researchers and patient partners who came together last year at the 2023 International Society of Systemic Autoinflammatory Diseases (ISSAID) Congress in Toronto. This project will be a game-changer for the #SAID community in Canada, ensuring that every child and adult with an autoinflammatory disease is counted. Cassie + Friends is thrilled to be a part of it and to make sure families are involved every step of the way! Read more here: https://lnkd.in/gYAibpkh Canadian Autoinflammatory Network/Réseau Auto-inflammatoire Canadien Autoinflammatory Alliance RareKids-CAN Canadian Organization for Rare Disorders #ISSAID

Great news this #AutoinflammatoryAwarenessMonth — Canada is getting its own #SystemicAID registry! In our latest blog, Dr. Lori Tucker BC Children's Hospital, Vancouver and Dr. Kelly Brown BC Children's Hospital Research Institute share how this new registry will advance education + treatment for people living with #SAIDs in Canada -- including kids! The project is being generously funded by Canada's Drug Agency and is strengthened by the full support of Canadian clinicians, researchers and patient partners who came together last year at the 2023 International Society of Systemic Autoinflammatory Diseases (ISSAID) Congress in Toronto. This project will be a game-changer for the #SAID community in Canada, ensuring that every child and adult with an autoinflammatory disease is counted. Cassie + Friends is thrilled to be a part of it and to make sure families are involved every step of the way! Read more here: https://lnkd.in/gYAibpkh Canadian Autoinflammatory Network/Réseau Auto-inflammatoire Canadien Autoinflammatory Alliance RareKids-CAN Canadian Organization for Rare Disorders #ISSAID

Kids like Bruce (supported by amazing families) sharing their stories and using their voices to raise awareness to others are BIG, important steps to changing the realities of Juvenile Arthritis in Canada! Have a great walk Katherine Keeling, RPA, CPM and Bruce! Team Cassie + Friends will be walking on the same day at the #ToWaterfront42k to spread awareness about JA and raise funds for our family days, youth mentorship/leadership programs, research and medical equipment/financial aid for families at the The Hospital for Sick Children. For anyone not yet signed up, it's not too late to join us, fellow JA families and our dedicated community partners at Nicola Wealth and Westland Insurance Group Ltd. https://lnkd.in/gvKjxBBf

We are thrilled to have been named the official Charity Partner of the Niagara 5000 powered by McLaren Toronto. Led by entrepreneur and JIA champion/mom, Alana Cara Hurov, this event has something for everyone - car enthusiast, racing renegade, fashionista, wine-lover and definitely a fun family outing for all! There is even a special kids' race in the morning where little ones aged 2-10 years can rent a "luxury" mini and ride down Queen's Street in beautiful Niagara-on-the-Lake. Driving change to see more kids reach remission and be pain-free, like Alana's own daughter, is our single and unwavering focus at Cassie + Friends. We, our healthcare partners and affected kids and families know that great speed is needed in accelerating the research, resources and care afforded to the Juvenile Arthritis and other childhood rheumatic disease community in Canada. We are grateful and excited to be a part of such a meaningful event! McLaren Group Peller Estates Winery And Restaurant #NiagaraOnTheLake #Ontario #Niagara5000 #JuvenileArthritis #PediatricRheumatology

SO many great Team Cassie + Friends Events coming up! Be sure to follow Cassie and Friends: A Society for Children with Juvenile Arthritis and other rheumatic diseases and sign up to run with us from anywhere at https://lnkd.in/geyd8xJf 💙 💚 #TeamCassieAndFriends #JuvenileArthritisAwareness #GetFlaredUp

Mental health is health, and kids living with rheumatic diseases like Juvenile Arthritis need our attention and more resources. This program is a first step in providing better support for the mental well being of young people and their families as they face chronic illness. Thank you Jennifer Wilson and Cassie and Friends: A Society for Children with Juvenile Arthritis and other rheumatic diseases for your inspired partnership and to Brain Canada, for bringing so much heart to brain research. 🙏 ❤️🧠

Together with Cassie and Friends: A Society for Children with Juvenile Arthritis and other rheumatic diseases, Brain Canada is excited to announce the recipients of the Addressing Mental Health in Paediatric Rheumatic Diseases Team Grants program! This year’s awardees are Roberta Berard from London Health Sciences Centre (LHSC) and Mark Ferro from University of Waterloo. Both teams are advancing efforts to better prevent, diagnose, and treat mental illnesses in children and young adults with rheumatic diseases such as juvenile idiopathic arthritis and lupus. These conditions affect approximately 24,000 children and youth across Canada, impacting their daily lives and overall well-being. With a total funding envelope of $480,000, Cassie and Friends and Brain Canada will support two team grants of $240,000 each over two years. Follow the link below to learn more about the research projects. https://lnkd.in/guYupYwk - De concert avec Cassie and Friends: A Society for Children with Juvenile Arthritis and other rheumatic diseases, la Fondation Brain Canada a le plaisir d’annoncer les lauréats du programme Subventions d’équipe Santé mentale des enfants atteints de maladies rhumatismales! Les lauréats de cette année sont Roberta Berard du London Health Sciences Centre (LHSC) et Mark Ferro de University of Waterloo. Les deux équipes font progresser les efforts pour mieux prévenir, diagnostiquer et traiter les maladies mentales chez les enfants et les jeunes adultes atteints de maladies rhumatismales comme l’arthrite juvénile idiopathique et le lupus. Ces affections touchent environ 24 000 enfants et jeunes partout au Canada, ce qui a une incidence sur leur qualité de vie quotidienne et leur bien-être général. Avec une enveloppe de financement totale de 480 000 $, Cassie + Friends et la Fondation Brain Canada soutiendront deux subventions d’équipe de 240 000 $ chacune sur une période de deux ans. Suivez le lien ci-dessous pour en savoir plus sur ces projets de recherche. https://lnkd.in/gAPjsJtk