ERN-LUNG is a patient-centric network of European healthcare providers and patient organisations, committed Europe-wide and globally to reducing morbidity and mortality from rare lung diseases in people of all ages through patient care, advocacy, education, research and knowledge-sharing.
A non-profit project of building a clinical care network for all rare diseases of the respiratory system, ERN-LUNG has been evaluated by the European Commission and in December 2016, the European Reference Network (ERN) Board of Member States approved ERN-LUNG as one of 24 ERNs for rare diseases. ERNs are virtual cross-border healthcare networks that provide rare disease clinicians with a centralised platform across borders to share knowledge and experiences with the objectives of improving patients’ access to diagnosis, care and treatment, establishing common rare disease databases, developing clinical guidelines, thereby facilitating the mobility of expertise rather than patients themselves.
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Branche
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Krankenhäuser und Gesundheitseinrichtungen
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Größe
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5.001–10.000 Beschäftigte
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Hauptsitz
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Frankfurt am Main
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Art
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Nonprofit
