Debra - The Butterfly Skin Charity

📢 Join our team and make a difference with Debra We’re hiring for two exciting roles that will directly impact the lives of those affected by Epidermolysis Bullosa (EB) in Ireland. If you’re passionate about advocacy, fundraising, and working toward meaningful change, these roles offer an incredible opportunity. 1. Advocacy Lead As our Advocacy Lead, you’ll drive Debra's advocacy strategy, working closely with public representatives, health services, and civic organisations. This role is ideal for a proactive professional committed to shaping policy and leading impactful campaigns to support the EB community. To learn more and apply, visit https://lnkd.in/ePhUSeVw 2. Corporate and Philanthropy Fundraising Professional In this role, you’ll lead Corporate Fundraising and Philanthropy Initiatives with a focus on building strategic partnerships and securing major gifts, legacy giving, and corporate sponsorships. We’re looking for a results-driven fundraiser with a background in corporate partnerships, major gifts, and regular giving who is ready to bring fresh energy and innovation to our fundraising efforts. To learn more and apply, visit https://lnkd.in/ePhUSeVw Why join us? • Purposeful work: Directly contribute to life-changing support and research for EB. • Team culture: Join a passionate, supportive team committed to patient-centered advocacy. • Employee benefits: Competitive salary, generous leave, employer-matched pension, flexible working options, and more. Ready to make an impact? Apply today to become part of a dedicated team working to make a difference in the lives of those living with EB in Ireland. 🌍💙 #Hiring #AdvocacyJobs #FundraisingJobs #jobfairy #MakeADifference

We are proud to see Debra Ambassador Colin Farrell meet An Taoiseach Simon Harris following the incredible success of the Run to 40 with Emma Fogarty. At Debra, We campaign to change policies that affect people’s lives. No one living with EB, or caring for someone with EB, should have to struggle to access essential services. We’re here to ensure no one fights alone. This year, we asked the Government to ring-fence €600,000 for EB home nursing care and invest a further €95,000 to ensure holistic integrated care in line with the vision of Sláintecare (2021). For many in our EB community, access to vital services remains a challenge, often requiring relentless advocacy. We’ll keep campaigning to make sure the voices of those impacted by EB are heard and that their needs are a priority at the highest levels. We will be watching closely and reminding the current and incoming Government of the vital need for ring-fenced funding for those living with EB, and their families. You can support our work and help us drive change. You can still donate at debra.ie. Together, we can make a difference.

Proof that magic still exists ✨ What a monumental achievement by Emma Fogarty and Colin Farrell! Together, they’ve raised over €800,000 for Debra in the Irish Life Dublin Marathon & Race Series, with supporters from everywhere surpassing all expectations. Emma’s courage and Colin’s commitment have inspired an overwhelming wave of generosity—showing just how powerful people can be when they rally for change. None of this could have happened without an extraordinary community. From dedicated partners and supporters to generous companies, this overwhelming outpour of support shows what we can accomplish together. A special thanks to The Shelbourne and Lucius Farrell for their hospitality on the day. “That run was nothing compared to the pain she is forced to endure every single day, even though she doesn’t show it. It was an honour to see her waiting for me with 4km to go, each of those representing a decade of her life, and to do the final stretch together. I’ll never forget it.” From the bottom of our hearts, thank you! We will continue to stand by everyone impacted by EB and our fight to make sure EB care is prioritised will continue.

We’re so grateful to Irish Life and the Irish Life Dublin Marathon & Race Series for their generous €20,000 donation to Debra and for supporting Emma and Colin as they take on the Marathon together. Thank you for standing with us and empowering those living with EB. 🧡 With over 22,500 runners ready to hit the streets this Sunday, the excitement is building! Emma Fogarty and Colin Farrell will be taking on the Irish Life Dublin Marathon, each step symbolising the strength and resilience of everyone affected by EB. We can’t wait to cheer alongside you all on the Irish Life Mile—together, let’s make every step count. A special thanks to Declan Bolger, Jim Aughney, and their teams for all the dedication and support given to Emma, Colin, and the entire EB community over the past few months. You show the true power of the butterfly effect—that even the smallest efforts can make the most monumental impact.

We can’t thank the Irish public enough for your overwhelming generosity. We're blown away by all the support for Emma Fogarty, Colin Farrell and everyone impacted by epidermolysis bullosa (EB) after last night's Late Late Show (RTE). We can't thank the Irish public enough for your generosity and we are delighted to say that, so far, you've raised €4️⃣1️⃣5️⃣,0️⃣0️⃣0️⃣ for EB. 🧡🦋 But we’re not done yet! On October 27th, Colin will take on the Irish Life Dublin Marathon & Race Series for Debra and EB. He’ll be pushing Emma the final 4 kilometres, symbolising the four decades she has lived with this condition. Every euro you donate will fund vital research, provide critical services, and transform the lives of those living with butterfly skin. If you would like to sponsor them, please visit debra.ie or call (01) 902 3938. Thank you so much for standing with everyone impacted by EB.👏 And massive love to Emma, Colin, Patrick Kielty and The Late Late Show for having us on.

🚨 It’s happening tonight! 🚨 We’re beyond excited at Team Debra as we gear up to support Emma, as is our incredible Celebrity Ambassador, Johnny Sexton 📣 Tune in tonight, Friday, October 18th, at 9:30pm on The Late Late Show (RTE) to see Emma Fogarty and Colin Farrell live, talking about their Run to 40 challenge and the importance of raising funds for epidermolysis bullosa (EB). On October 27th, Colin will push Emma across the finish line of the Irish Life Dublin Marathon & Race Series in honour of her 40th birthday – a milestone for someone with Emma’s severe form of EB, as many don’t live past 35. Emma and Colin will do 4km together, one for each decade she has lived and survived EB. Their goal is to raise €400,000 to support Debra’s vital services, research, and families affected by EB. Colin has called Emma the epitome of bravery, and this will be an unforgettable moment for them both. With over €100,000 already raised, they need your help to reach their target! Let’s watch tonight, cheer them on, and support Emma and Colin in making a real difference for the EB community at debra.ie/runto40! 💙

📣 Exciting news! Tomorrow, Friday October 18th at 9:30pm, Colin Farrell and Emma Fogarty will be live on The Late Late Show (RTE) to share their upcoming #RunTo40 challenge and discuss the importance of raising funds for epidermolysis bullosa (EB). On October 27th, Colin will push Emma across the finish line of the Irish Life Dublin Marathon & Race Series in honour of her 40th birthday – a milestone for someone with Emma’s severe form of EB, as many with this condition do not live past 35. Their aim is to raise €400,000 for Debra to support vital services, research, and families living with EB. Colin has called Emma the epitome of bravery and said this will be an unforgettable moment for them both. With over €100,000 already raised, they need your support to hit their target! Let’s watch tomorrow, cheer them on, and help Emma and Colin make a difference for the EB community at debra.ie/runto40! #EB #DublinMarathon #Support #LateLateShow

A massive thank you to Killashee Hotel for raising over €2,600 with their Butterfly Afternoon Tea in aid of Debra and in celebration of Emma Fogarty’s 40th birthday! 🎉 Your generosity is making a real difference for the EB community. We’re also incredibly proud of Ger Alley, Killashee’s General Manager, who will be running the Irish Life Dublin Marathon & Race Series this October in honour of Emma and the incredible work of Debra. 🏃♂️✨ Emma’s story is one of hope and strength. As Debra's Patient Ambassador, she continues to inspire us all with her mission to transform the future for everyone living with EB, a condition that leaves skin as fragile as a butterfly’s wing. 🦋 Let’s keep this momentum going! Inspired by their commitment? You can join Colin, Emma, and countless others taking part in the Run to 40 Challenge to help us reach our fundraising goal. Get involved today: www.debra.ie/runto40 #ButterflySkin #EBCommunity #RunTo40 #DublinMarathon #KillasheeHotel #SupportEmma

Our CEO, ★Jimmy Fearon, has completed his Run to 40 Challenge in honour of Emma Fogarty and Colin Farrell 🚶♂️✨ Jimmy climbed 6,500 feet and completed 80,000 steps! If you haven’t already, please consider sponsoring Emma’s Dublin Marathon Run to 40: https://lnkd.in/eu3YgDCp and help support the incredible work of our family support team and researchers for families living with EB. The amazing Emma Fogarty has hit the big 4-0, defying all the doctors’ predictions. As Debra's Patient Ambassador, Emma has skyrocketed awareness of EB in Ireland—dramatically is an understatement. This October, she’ll be completing part of the Dublin Marathon, with none other than the incredible Colin Farrell pushing her across the finish line. Jimmy did his 40k at high altitude in Spain for Emma, to encourage YOU to sponsor her for the Dublin Marathon or take part in Run to 40 yourself! You can get involved or donate here: https://lnkd.in/eu3YgDCp 💪🏽 #RunTo40 #SupportEmma #DebraIreland #EB #DublinMarathon #SupportEBFamilies

🚴♀️ We went beyond our target, thanks to the competitive spirit of everyone on the bike… and, even better, we surpassed our fundraising goal too! A massive thank you to the fantastic team at HSS Hire Ireland, a leading provider of tools and equipment hire, for organising a Bike-a-Thon as part of their Run to 40 Challenge! Each participant gave it their all, cycling as many kilometres as they could in just 10 minutes to reach their group target of 179km. Together, they raised an amazing €1,160, which HSS Hire has generously matched! 🙌 The Run to 40 Challenge is all about coming together to celebrate Emma Fogarty’s 40th birthday—an incredible milestone for someone with EB—and raising €400,000 to support EB research and care. Your efforts are making a real difference by raising vital funds and awareness for people affected by Epidermolysis Bullosa (EB). 🧡 Inspired by their commitment? You can join Colin, Emma, and countless others taking part in the Run to 40 Challenge to help us reach our fundraising goal. Get involved today: https://lnkd.in/dXeS4zre