Multiple Sclerosis Ireland

Today marks the start of the 37th Annual MS Readathon! 📚   We are excited to announce that the MS Readathon kicks off today and runs until December 15th! A HUGE thank you to everyone who has already started reading and fundraising—your support means the world to us and the 10,000 people living with MS in Ireland.   Ready to join the adventure? It’s never too late to get involved! You can register for the MS Readathon here: https://lnkd.in/eNECnu7W   Who can get involved? - Children - Teachers - Adults - Community Groups   Wishing everyone the best of luck! We can’t wait to hear about the adventures you embark on and the amazing books you’ll discover!   If you have any questions, feel free to email our team at read@msreadathon.ie   #MSReadathon2024 #msreadathon  

The latest issue of the MS Ireland eNews is out, where we shared the recording of our webinar, The Unspeakable Bits – ‘MS at the End of Life’, along with information on how to register for our upcoming webinar in November.   We also provided details about our upcoming conference! Don’t forget to submit your questions for our speakers and remember that some sessions will be live-streamed, allowing you to participate from anywhere.   Plus, get involved with the MS Readathon, it’s a fantastic way to support our community and promote reading!   Check out the latest eNews here: https://lnkd.in/eq_uhcNE

Wednesday, 27th November 7pm - Unspeakable Bits Webinar - What's next for People with MS in 2025? We’ll wrap up the 2024 season of The Unspeakable Bits webinar with a very special edition on Wednesday, 27th of November at 7pm.Register for free here https://lnkd.in/eHrS6gdC We will be joined by Ava Battles, CEO MS Ireland, Elizabeth Kasilingam , CEO EMSP (the European Multiple Sclerosis Platform), and Dr Timothy Coetzee, PhD, President, CEO NMSS to talk about the challenges ahead for people in the MS community. We’ll look back at the previous year and into the next with these three key players in the world of patient advocacy. From research to elections results, from shortcomings to high hopes, we’ll ask the questions to which many of us living with the disease, and our families, would like to hear answers. If you’ve any questions for our panel, please leave them in the comments or send them on to fergalo@ms-society.ie . As always, we’ll get to as many of your questions as possible. Leaving them in advance will help guide the discussion.

MS Ireland Unspeakable Bits Webinar - MS at the End of Life  Watch back here https://lnkd.in/erYX-FiV MS Ireland host Trevis L Gleason and a panel of international experts discussed Ms at the End of Life and the more serious complications that very rarely affect people living with multiple sclerosis. Together, they explored ways to understand, prevent, and manage these issues. Our panel included Professor Alessandra Solari, Head of Neuroepidemiology Services, and Scientific Directorate, Fondazione IRCCS at Istituto Neurologico Carlo Besta in Milan, Italy; Dr Rosalind Kalb, PhD, a clinical psychologist who has specialized in MS care and education for close to 40 years and Dee Hickson, a palliative nurse care manager and board member of the Irish Association of Palliative Care.

In November 1988 when promoting the first MS Readathon, writer Roald Dahl met a group of his greatest fans in the children’s section of the Central Library in the Ilac Centre, Dublin. For half an hour some thirty children from Dublin schools quizzed the seventy-two-and-a-bit year old author about his work and life. Listen to this fascinating interview with Roald here https://lnkd.in/ebcjHcWW There is still time to sign up for MS Readtahon 024 starting on the 1st November https://lnkd.in/d2RCQvty

Join Us Virtually for Our National Conference 2024   Our National Conference is happening on November 7th at the Hillgrove Hotel in Monaghan, starting at 9.45am. If you cannot make it in person, join us virtually and catch key moments from the event!   We will be live streaming select sessions on our YouTube channel. Tune in on November 7th through the following link: https://lnkd.in/eFuMseMq   Stay tuned for updates on our social media and website in the coming days for more information!   If you'd like to join us in-person, register here: https://lnkd.in/ewzyKw_K   #MSmakingconnections    

The MS Readathon returns throughout November till the 15th of December. Our aim is always to make MS Readathon as simple and easy as possible. If online fundraising isn’t for you, please contact our MS Readathon team on read@msreadathon.ie or 01 678 1624 if you have any questions. Or sign up here https://www.msreadathon.ie

MS Ireland Unspeakable Bits Webinar - MS at the End of Life 24th October 7.30pm. Register here https://lnkd.in/e8PTJArq Join us for our next Unspeakable Bits webinar on October 24th when our host Trevis L Gleason and a panel of international experts will discuss “MS and the End of Life”. We'll discuss some of the more serious complications that very rarely affect people living with multiple sclerosis. Together, we'll explore ways to understand, prevent, and manage these issues whenever possible, empowering us to address them with confidence if they do arise. We’ll be joined by Professor Alessandra Solari, Head of Neuroepidemiology Services, and Scientific Directorate, Fondazione IRCCS at Istituto Neurologico Carlo Besta in Milan, Italy; Dr Rosalind Kalb, PhD, a clinical psychologist who has specialized in MS care and education for close to 40 years; and Dee Hickson, a palliative nurse care manager and board member of the Irish Association of Palliative Care.

MS Ireland has a long history of trekking and Caminos dating back to the 80s. Many wonderful people have trekked with and for us all over the world. Derek Grogan, who was diagnosed with MS 20 years ago, recenly walked the Camino Frances with his wife Emer from St Jean Pied de Port in France to Santiago de Compostella. Derek talks about why he did the walk, what were the highlights of the famous pilgrimage route and why he fundraised for MS Ireland. Watch the interview here https://lnkd.in/egKXJVpC If you would like to take on the challenge of a Trek or Camino you can set up your fundraising page here:https://lnkd.in/ePrgp3zt Contact melaniec@ms-society.ie for a challenge pack and information on how we can help you on your way. You can still donate on Derek's fundraising page here https://lnkd.in/eMCdBJq2

Last week, the global MS International Federation (MSIF) gathered in London and online, for their Global Networking Meetings. Our CEO Ava Battles had the privilege of Chairing the CEO Advisory Group of the MSIF. It was a wonderful opportunity for global leaders from the MS movement to come together, collaborate, share learnings and discuss key themes of our global vision. The group has one common strategy to bring the world together with urgency, to improve the quality of life and wellbeing of everybody affected by MS, and to end MS forever.